It is essential that you become aware of your treatment options and advocate for the best possible care you can have.Dear patients, providers, family and friends,
I am a family physician and dialysis patient in Seattle. I have dialyzed from 3-6 days a week, and have found 5-6 day/week dialysis to be much more effective in reducing my fatigue, anemia, and other problems. Patients in the US, Canada and Europe are doing more frequent daily and nocturnal hemodialysis with remarkable results - fewer uermic symptoms, better quality of life, and less need for drugs to treat anemia and high blood pressure.
In the US, this treatment is not available to patients because Medicare only pays for dialysis 3 times a week. The government are interested in more frequent dialysis and is planning a study for several years. Patients, physicians and staff who have experienced or seen the benefits of more frequent treatment feel they cannot wait for availability through the Medicare program.
Seattle Congressman Jim McDermott (D) and Congresswoman Jennifer Dunn (R) have introduced legislation (HR1759) to pay for more frequent hemodialysis. Attached is a copy of their letter asking colleagues to co-sponsor this bill and also some background information. For more frequent dialysis to be available to all patients who wish to use it, Congress must direct Medicare to provide payment so dialysis units can provide this service. At the same time, Medicare will save from fewer hospitalizations and lower drug costs, while the improved quality of life will allow more patients to return to work or school.
For HR1759 to pass Congress a grass-roots effort is needed for each of you to:
1. Write, call, email and/or fax the Representatives in your state asking them to co-sponsor HR1759.
3. Write John Davis, Chief Executive Officer, National Kidney Foundation,
asking the Foundation to support HR1759.
4. Write Kris Robinson, Executive Director, American Association of Kidney
Patients, asking the Association to support HR1759.
Sample letters are attached. Keep it brief and to the point. Phone calls, faxes and emails are also effective. A visit to the district office of your Congressperson is even better. Let meknow whom you have approached and their responses.
If you or someone you know have experience with frequent dialysis, describe these experiences. You may also write to comment on current experiences with 3 times a week dialysis and why you would like to have more frequent treatment as an option that you and other patients could select if you wished to do so.
If you have questions, contact me at bob@kickbutt.org. Thanks for your support.
Robert D Jaffe MD
Dear Congressman (woman)_________
There is increasing evidence that hemodialysis five or more times weekly rather than the usual three times a week provides great benefits for many patients with end stage renal disease. Patients feel better during and between dialyses, their quality of life is markedly improved and opportunity for rehabilitation is enhanced. These benefits have been reported in many papers from this country, Canada, and Europe. The Medicare Program currently only pays for hemodialysis three times weekly. While more frequent dialysis will increase the cost of dialysis, this will be offset by savings to both Medicare and patients from reduction or elimination of the need for erythropoetin and drugs to control high blood pressure, and reduction in frequency and days of hospitalization.
I (My family member__________ or My friend______) have/has been on more frequent dialysis in (place)_____ since (date)_________confirms these findings.
On May 8th, Congressman Jim McDermott (D) and Congresswoman Jennifer Dunn (R) introduced HR1759, the “Kidney Patient Daily Dialysis Quality Act of 2001” to amend title XVIII of the Social Security Act to provide for payment under the Medicare program for more frequent hemodialysis treatments.
On behalf of dialysis patients here and throughout the United States, I urge you to support this bipartisan legislation and to consider becoming a co-sponsor of this important bill.
If you have any questions, please feel free to contact Representatives McDermott or Dunn or their staff or to call me at ___-___-____.
Sincerely yours
_____________(Patient, Family of Patient, Friend of Patient)
John Davis
Chief Executive Officer
National Kidney Foundation
30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Fax: 212-689-9261
Email: info@kidney.org
Dear Mr. Davis,
There is increasing evidence that hemodialysis five or more times weekly rather than the usual three times a week provides great benefits for many patients with end stage renal disease. Patients feel better during and between dialyses, their quality of life is markedly improved and opportunity for rehabilitation is enhanced. These benefits have been reported in many papers from this country, Canada, and Europe. The Medicare Program currently only pays for thrice weekly hemodialysis. While more frequent dialysis will increase the cost of dialysis, this will be offset by savings to both Medicare and patients.
I (My family member__________ or My friend______) have/has been on more frequent dialysis in (place)_____ since (date)_________confirms these findings.
On May 8th, Congressman Jim McDermott (D) and Congresswoman Jennifer Dunn (R) introduced HR1759, the “Kidney Patient Daily Dialysis Quality Act of 2001” to amend title XVIII of the Social Security Act to provide for payment under the Medicare program for more frequent hemodialysis treatments.
On behalf of dialysis patients throughout the United States, I urge the National Kidney Foundation to support this bipartisan legislation - HR1759. This is an important quality of care issue, as well as a choice issue for all ESRD patients.
Sincerely yours
_____________(Patient, Family of Patient, Friend of Patient)
Kris Robinson
Executive Director
American Association of Kidney Patients
100 S Ashley Drive, Suite 280
Tampa, FL 33602
Phone: 800-749-2257
Fax: 813-223-0001
Email: info@aakp.org
Dear Ms. Robinson,
There is increasing evidence that hemodialysis five or more times weekly rather than the usual three times a week provides great benefits for many patients with end stage renal disease. Patients feel better during and between dialyses, their quality of life is markedly improved and opportunity for rehabilitation is enhanced. These benefits have been reported in many papers from this country, Canada, and Europe, and there are now more than 150 papers in the world literature documenting them. The Medicare Program currently only pays for hemodialysis three times weekly. While more frequent dialysis will increase the cost of dialysis, this will be offset by savings to both Medicare and patients.
I (My family member__________ or My friend______) have/has been on more frequent dialysis in (place)_____ since (date)_________confirms these findings.
On May 8th, Congressman Jim McDermott (D) and Congresswoman Jennifer Dunn (R) introduced HR1759, the “Kidney Patient Daily Dialysis Quality Act of 2001” to amend title XVIII of the Social Security Act to provide for payment under the Medicare program for more frequent hemodialysis treatments.
On behalf of dialysis patients throughout the United States, I urge the American Association of Kidney Patients to support this bipartisan legislation - HR1759. This is an important quality of care issue, as well as a choice issue for all ESRD patients.
Sincerely yours
_____________(Patient, Family of Patient, Friend of Patient)