| RenalWEB Home Page | Last
Updated 08/13/17 |
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Warning: Changes should never be made in a patient's treatment or care based solely on the information found here. Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made. All medical and therapeutic decisions must come from a qualified health care provider. Read RenalWEB's Legal Disclaimer before proceeding.
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| NEWS AND LATEST ARTICLES |
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Trump Declares National Emergency on Opioid Abuse - Articles from HealthDay and Reuters. - August 11, 2017 |
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Study: Only Half of Medicare Advantage Members Understand Their Plan - Article from HealthLeaders Media. Press release from J.D. Power. - August 10, 2017 |
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'NO on SB 349' Responds to Ballot Measures Filed by United Healthcare Workers West Union Today - Press release from the DialysisPatients1st.com web site. - August 9, 2017 |
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Humanizing Adequacy Based on the KDOQI Guidelines - Article from Nephrology News & Issues. - August 9, 2017 "... adequacy of dialysis is sometimes confused with adequacy of other aspects of patient management, with the erroneous assumption that having achieved dialysis adequacy, the goal of dialysis has been accomplished. Humanizing dialysis implies that we do what matters most to our patients, which is to live as normal a life as possible with kidney disease."Editor's note: "As normal a life as possible." This sounds familiar. I hope we will not have to wait another five years before renal rehabilitation and patient employment are considered part of leading "as normal lives as possible." If the financial incentives in dialysis care were changed to include substantial incentives for renal rehabilitation and patient employment, U.S. dialysis care would be immediately transformed on many different levels. How much longer will we continue to pursue the self-defeating practices of junk-bond nephrology instead? |
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SONG-HD Initiative Shows Disparity between Patients and Medical Professionals on Desired Outcomes - Article From Nephrology News & Issues. The SONG Handbook (Version 1, 1st June 2017) is about establishing and implementing core outcomes in chronic kidney disease. - August 9, 2017 |
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Online Team-based Game Helps Patients with Diabetes Lower Blood Glucose - Press release from Brigham and Women's Hospital. - August 8, 2017 |
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Shared Understanding With Patients - Free, full-text, New Online viewpoint article from JAMA Internal Medicine. - August 7, 2017 |
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Why One Insurer's Collapse Could Whack Insurers, Policyholders Across the Country - Article from Kaiser Health News. - August 7, 2017 |
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Articles from ProPublica - August 6, 2017 |
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What Diabetics Need to Know About Over-the-Counter Meds - August 5, 2017 |
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Human Embryos Edited to Stop Disease - August 2, 2017 |
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Patient Experience Excellence - Article from HealthLeaders Media. - August 1, 2017 |
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Best Hospitals for Nephrology - Annual U.S. News & World Report rankings. - August 2017 The top five are:
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Patients' Experiences After CKD Diagnosis: A Meta-Ethnographic Study and Systematic Review - Article in Press Abstracts from American Journal Of Kidney Diseases. - July 29, 2017 |
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Fact Check: Trump's Bold Claims of Reforming VA Health System Don't Hold Up - Article from AP via STAT. - July 28, 2017 |
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Free, Open Access Articles from BMC Nephrology (Note Amgen/Consulting Services Authors): - July 28, 2017 |
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Patient Perspective: KIDNEYcon 2017 - 3-minute YouTube video from KIDNEYcon. - July 26, 2017 |
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The Price of Crossing the Border for Medications - Free, Full-Text Article from The New England Journal Of Medicine. - July 27, 2017 |
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Patient Advocacy Groups Send Joint Letter Calling for Step Therapy Reform - News release from the Chronic Disease Coalition. - July 25, 2017 |
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Strengthening Chronic Care Is Both Personal and Financial for the Patient - Blog posting from Health Populi. Article from Healthcare IT News. Report (17-page pdf) and resources from West. - July 2017 |
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Self-Cannulation: A Patient Right and CMS Expectation for Interested and Trained Patients - Posting from the KidneyViews blog. - July 20, 2017 |
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Free NIDDK Brochures - July 19, 2017 |
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The One Universal Truth about Medicine — Communication Is Key - (Registration required, but free.) Article from MedPage Today. - July 18, 2017 |
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PCORI Announces New Initiative to Support Shared Decision Making - Press release from the Patient-Centered Outcomes Research Institute. - July 18, 2017 |
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Can't Remember the Last Time a US President Cheered Suffering of Our Citizens & Advocated for Failure of Our Economy - Tweet from Rep. Joe Kennedy III. News summary from Kaiser Health News. - July 18, 2017 |
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The Largest Dialysis Providers in 2017: More Jump on Integrated Care Bandwagon - Annual feature from Nephrology News & Issues. - July 17, 2017 |
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What Is Medicaid? More Than Meets the Eye - Free, full-text, New Online viewpoint article from The Journal of the American Medical Association. - July 17, 2017 |
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Report: US Healthcare System Worst among 11 Weatlthy Nations - News brief from Healthcare DIVE. Report from the Commonwealth Fund. - July 15, 2017 |
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The Newsroomof the National Kidney Foundation web site |
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Latest Dialysis News Stories from Yahoo Continually Updated! |
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Latest Transplant News Stories from Yahoo Continually Updated! |
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| ESSENTIAL INFORMATION |
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Patient Rights and Responsibilities - from the Kidney School web site | |
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Patient Rights - 1-page pdf from the Northwest Renal Network | |
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A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland | |
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One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site. | |
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Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) - USRDS Presentations & Posters, 2016 Researcher's Guide and the 2016 USRDS annual report- from the United States Renal Data System (USRDS) web site | |
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AAKP Patient Plan©: Four phase education plan from the American Association of Kidney Patients (AAKP) web site |
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A-Z Patient Education Library from the Northwest Renal Network’s Patient Education and Orientation Learning and Action Network (LAN) | |
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Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site | |
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The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site | |
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End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish) | |
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Video on Failing Kidneys and Different Treatment Options - Posting from the Precious Bodily Fluids blog. | |
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Financial Help for Treatment of Kidney Failure from the NKUDIC web site | |
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Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site | |
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Treatment Options from Baxter Healthcare | |
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Dialysis Saves Lives is a 6 minute video to educate patients about dialysis from Fresenius Medical Care and the National Kidney Foundation (NKF) - May 2011 | |
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The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site | |
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The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site | |
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Living with Kidney Disease DVD - from Kidney Research UK web site | |
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Book: Help, I Need Dialysis! How to have a good future with kidney disease by Dori Schatell, MS and Dr. John Agar © 2012 | |
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How to Have a Good Future with Kidney Disease a Life Options CKD Patient Education Toolkit - 2011 | |
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The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site | |
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Kidney Diseases Dictionary from the NIDDK web site | |
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Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired). | |
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Medicare Basics - from the Medicare.gov | |
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Medicare for Children with Chronic Kidney Disease from the Medicare web site | |
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The Medicare-Medicaid Relationship (pdf formatrequires Adobe Acrobat reader) from the Medicare web site | |
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CMS Center for Medicare & Medicaid Innovation from the Medicare web site | |
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Your Medicare Rights and Protections (pdf formatrequires Adobe Acrobat reader) from the Medicare web site | |
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Medicare-Approved Drug Discount Cards | |
| Medicare Plan Finder | ||
| Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader) | ||
| Making It Easier At the Pharmacy Counter | ||
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Medicare Telehealth Services from the Medicare web site | |
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Health Information Frequently Asked Questions from NIDDK web site | |
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Complaint Process for Medicare Beneficiaries from the Office of Inspector General | |
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Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book | |
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Family Reunion Health Guide (pdf) resource from the National Kidney Disease Education Program. | |
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Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site | |
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| GENERAL RESOURCES |
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E-Kidney - The online newsletter of the National Kidney Foundation (NKF) |
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Kidney Beginnings: A Patient's Guide - 62 page book from the American Association of Kidney Patients (AAKP) web site |
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Nutrition Counter from the American Association of Kidney Patients (AAKP) web site |
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The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site |
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AAKP Public Policy from the American Association of Kidney Patients (AAKP) |
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aakpRenalife a magazine for dialysis patients from the American Association of Kidney Patients (AAKP) |
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A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999 |
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Adherence Toolkit - Resources from The Renal Network, Inc. |
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Alternative Remedies from the Kidney School web site |
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Anemia - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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Bone and Mineral Metabolism - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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Books and pamphlets available from The Renal Network (ESRD Networks 9/10) |
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CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site |
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ChoosingDialysis - "Empowering patients on choices for renal replacement therapy" |
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Chronic Kidney Disease patient page from the Journal of the American Medical Association. - May 24/31, 2016 |
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Clinical Implications of Renal Physiology - Free IBook from the Renal Fellow Network - October 2016 |
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Clinical Trials: Kidney Disease from the Center Watch web site |
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Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure |
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DaVita Medical Insights Podcasts from the DaVita web site |
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Diabetes HealthSense provides easy access to resources to help you live well and meet your goals—whether you have diabetes or are at risk for the disease.rom the National Diabetes Education Program web site |
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The Diabetes Quiz web site |
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Diabetic Kidney Disease - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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"Dialysis Answers” Fact Sheets - educational resources from Life Options web site |
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Dialysis Facility Compare and the feature from Medicare |
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Dialysis Patient Grievance Toolkit - Toolkit from the Medical Advisory Council (MAC) of the National Forum of ESRD Networks. - 2017 |
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Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated! |
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DPC Education Center - dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers, and developing favorable public policy solutions. |
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Dialysis, the Flu, and You from Home Dialysis Central web site |
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Dialysis
Options Video from the Medical Education Institute's Lets
Talk About... LifeOptions page |
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Dialysis - You Have Options (pdf) from Northwest Renal
Network web site |
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Emergency Preparedness Resource from ESRD Network #4 |
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Engaging Patients in Care Design - from Hospital & Health Networks |
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Essentials of Chronic Kidney Disease - KidneyTalk podcast from Renal Support Network. - October 6, 2015 |
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Family Reunion Health Guide (pdf) from the National Kidney Disease Education Program web site |
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5-Diamond Patient Safety web site and the 2014-2015 5-Diamond Data Book |
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Free Online Patient Education Resource for Kidney Diseases Available in 20 Languages from Kidneyeducation.com |
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4 Steps to Mange Your Diabetes for Life from the Centers for Disease Control (CDC) |
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Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site |
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The Greatest Potassium Lecture Ever — Parts 1, 2 and 3 - Lectures from Oakland University William Beaumont School of Medicine by Joel Topf, MD via the Precious Bodily Fluids blog. - August 2016 |
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Health Library from the Renal Support Network (RSN) web site |
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Health, United States from the Centers for Disease Control (CDC) |
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Heart Health, Blood Pressure, and Fluids from the Kidney School web site |
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Help!
I Need Dialysis! -- E-book by Dori Schatell, John Agar |
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High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site |
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Hospital Compare from the U.S. Department of Health & Human Services web site |
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How to protect yourself in the hospital from Home Dialysis Central web site |
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How to Weather Winter Storms from Fresenius Medical Care |
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I Have Diabetes - from the National Diabetes Education Program web site |
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infoKID Web Site (UK) - providing information for parents and carers about kidney conditions in babies, children and young people. |
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Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Keeping Kidney Patients Safe web site |
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KEY - Kidney Education and You - free kidney education classes from the DaVita web site |
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The Kidneys and Kidney Disease (pdf) from Kidney Health New Zealand |
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Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site |
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Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site |
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Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK) |
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Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules and Audio Books |
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KidneyTalk from the Renal Support Network web site |
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Knowledge
is Power Kits from the Heartland Kidney Network - February 2013 |
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A Leadership Resource for Patient and Family Engagement Strategies - from the Hospitals in Pursuit of Excellence web site |
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Live & Give Newsletter - latest bi-annual update helping educate and motivate people living with chronic kidney disease from Renal Support Network |
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Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site |
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Medical Nutrition Therapy Services from Medicare.gov |
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Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site |
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My Life, My Dialysis Choice - KidneyTalk podcast from Renal Support Network |
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National Institute of Diabetes and Digestive Diseases (NIDDK) Publications in English and Spanish |
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National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site |
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NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications. |
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NIDDK Publications On-line from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) |
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Pathophysiology of Renal Disease - Free IBook from the Renal Fellow Network - October 2016 |
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PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference. |
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Planning to Return Home After Surgery - Free, Full-Text Article from the Journal of the American Medical Association - August 30, 2016 |
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The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care |
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Pair Up Health Fact Sheets - September 2011 |
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Patient & Family Council information from the National Kidney Foundation (NKF) |
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Preventive Services Educational Resource Web Guide from the Centers for Medicare & Medicaid Services web site |
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Publications from the Kidney Foundation of Canada web site |
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Quackwatch - A Guide to Health Fraud, Quackery, and Intelligent Decisions. |
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Self Management UK is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives. |
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Type 2 Diabetes Patient Resources - Trusted online resources from Medpage Today. |
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Understanding Kidney Disease (Four free book chapters) - resource from ISN Education- January 2016 |
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Understanding Your Kidneys - 8-page (pdf) issue of Kidney Health. - August 2010 |
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Video: A Home Hemodialysis Treatment Step-by-Step - 43-minute YouTube video by Tami Ramsey, a nurse who does home hemodialysis herself. |
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What I Have Learned And How It Can Help - book by dialysis patient Elliott B. Brown |
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What is Chronic Kidney Disease? from the Nephron Information Center web site |
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Working with Your Healthcare Team - from the Kidney School web site |
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Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site |
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Your Kidneys and How They Work from NIDDK web site |
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| HEMODIALYSIS INFORMATION |
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Latest Scientific Journal Articles on Hemodialysis Adequacy |
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Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader) |
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Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Hemodialysis Dose and Adequacy from the NKUDIC web site |
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Hemodialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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A Patient Guide to Machine Alarms - from the Northwest Renal Network. |
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Find a home dialysis center in your area from the Home Dialysis Central web site |
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Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated! |
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Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated! |
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| PERITONEAL DIALYSIS INFORMATION |
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Latest Scientific Journal Articles on Peritoneal Dialysis Adequacy |
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Adequate Peritoneal Dialysis Therapy Topic Page from RenalWEB Continually Updated! |
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Fact Sheets from ANNA: Peritoneal Dialysis and Pediatric ESRD: Peritoneal Dialysis (pdf format requires Adobe Acrobat reader) |
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Hernias and peritoneal dialysis: What you need to know - from the Home Dialysis Central web site |
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How you look on PD: Coping with body image changes - from the Home Dialysis Central web site |
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International Society for Peritoneal Dialysis Training Plans (pdf), and Peritoneal Dialysis Training Video |
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Peritoneal Dialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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Peritoneal Dialysis (PD) Catheter Placement: What to Expect - from Home Dialysis Central web site |
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Peritoneal Dialysis Dose and Adequacy from the NKUDIC web site |
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Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site |
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Saying yes to PD: separating myth from fact - page down to view article from Home Dialysis Central web site |
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| VASCULAR ACCESS INFORMATION |
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| TRANSPLANT & BIOTECHNOLOGY |
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Latest Scientific Journal Articles on Kidney Transplantation |
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2013 OPTN/SRTR Annual Report from the Scientific Registry of Transplant Recipients web site |
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Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader) |
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Brochure Addresses Patients' Questions about Transplant Candidate Kidney Evaluation and Listing - PDF Resource from the United Network for Organ Sharing. |
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Financial Assistance for Living Donors web site |
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How the Transplant Waiting List Works - Article from KidneyTimes |
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Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match - A young, hopeful doctor's memoir (book) --an unforgettable love story and an informative journey into the world of medicine and kidney transplantation that ultimately asks: What does it mean to let go of something that you love, even if it is life itself? |
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KidneyLink - created by maintained by the PKD Foundation |
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Kidney Transplantation - Podcasts from The Renal Support Network |
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Living Kidney Donor Search Tools and Tips web site |
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National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site |
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Organ Donation Toolbox - from the Organ Donation and Transplantation Alliance web site |
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Renal Transplantation - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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TransWeb (All about transplantation and donation) |
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US Government web site on organ donation |
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Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site |
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Transplant Living from the United Network for Organ Sharing (UNOS) web site |
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Working with your Healthcare Team; Overcoming Barriers to Transplant (English| Spanish) from the End Stage Renal Disease Network of New York web site |
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Kidney Transplantation Topic Page from RenalWEB Continually Updated! |
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| DIET |
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Latest Scientific Journal Articles on Nutrition |
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Chronic Kidney Disease: Nutrition Basics - Free, Full-text Article from Journal of Renal Nutrition - July 2011 |
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Cookbooks for CKD Patients—2009 Update |
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DaVita Diet Helper from the DaVita web site |
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Delicious! - AAKP recipe cookbook |
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Diet Information from the Kidney Patient's Guide (UK site) web site |
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Eat Right To Feel Right On Hemodialysis from the NKUDIC web site |
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Fluid and Electrolytes - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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Food
Safety for Transplant Recipients -
from the U.S. Food and Drug Administration |
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Home-Delivered Meal Options for Chronic Kidney Disease Patients full-text article from Journal of Renal Nutrition - September 2012 |
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Kidney Community Kitchen from the Kidney Foundation of Canada Helps Dialysis Patients with Complex
Burden of Diet Planning |
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Kidney-Friendly Frozen Meal Tips and Suggestions “In A Pinch” full-text article from Journal of Renal Nutrition - September 2012 |
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Mom's
Meals - home meal delivery for many with stage 5 kidney disease |
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Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition |
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Nutrition Counter from the American Association of Kidney Patients (AAKP) web site |
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Nutrition and Fluids for People on Dialysis from the Kidney School web site |
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Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient) |
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RenalWEB's Well Nourished Patient - Internet Resources Continually Updated! |
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Short How-To Recipe Videos Launch for Kidney Disease and Dialysis Patients - from DaVita Kidney Care |
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Smoothie Recipe Book for Renal and Heart Health by Victoria L Hulett JD (Author), Jennifer L Waybright RN (Contributor) |
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Spice it up! - Renal recipe web
site from Canada. Spice it up! booklets are available in English and French,
but they are not for sale. They are distributed by renal dietitians to
dialysis patients (free of charge). |
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Truly Tasty - Renal cookbook from Ireland |
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Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site |
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| K/DOQI™ - Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" ) |
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| PUBMED SEARCHES (National Library of Medicine's MEDLINE Database) |
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PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed. |
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hemodialysis Continually Updated! |
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adequacy AND hemodialysis Continually Updated! |
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peritoneal dialysis Continually Updated! |
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vascular access AND dialysis Continually Updated! |
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exercise and dialysis Continually Updated! |
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renal transplantation AND dialysis Continually Updated! |
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MEDLINE / Pubmed Information from the National Library of Medicine |
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Also consider using Yahoo to locate web sites and web pages on any topic of your choice. |
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| DISCUSSION FORUMS |
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Care-Partners for Home Dialysis discussion page |
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Dialysis Nursing Discussion Forum on RenalWEB |
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HealCam - from MedGadget. |
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I Hate Dialysis discussion page |
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Living Donors Online Message Board discussion page |
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Nephkids - a cyber-support group for Parents of Children with Kidney Disease |
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Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient) |
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Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten) |
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Vascular Access Discussion Forum on RenalWEB |
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| ORGANIZATIONS AND GOVERNMENT AGENCIES |
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Alliance for Home Dialysis web site |
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American Association of Kidney Patients (AAKP) web site |
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American Diabetes Association (ADA) web site |
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American Kidney Fund (AKF) web site |
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B.Braun Avitum web site |
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BestHealth web site |
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Caregiver Action Network (CAN) web site |
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CaregiverStress web site |
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Coalition for Supportive Care of Kidney Patients web site |
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DaVita Health Solutions web site |
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DaVita Patient Citizens from the DaVita web site |
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Dialysis/Transplant Patient web sites |
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The Disabled Living Foundation web site |
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The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site |
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European Kidney Patients' Federation web site (UK version) |
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Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks |
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HealthUnlocked web site - Ask questions. Get answers. Connect with others like you. |
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iHealthRecord web site is a no cost, secure and confidential interactive record that lets you keep all your health information organized, accurate and in one place. |
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HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs |
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Home Dialysis Central web site |
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Home Dialyzors United web site |
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Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD) web site |
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infoKID Web Site (UK) - Providing information for parents and carers about kidney conditions in babies, children and young people. |
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Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid |
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Kidney & Urology Foundation of America (KUFA) web site |
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Kidney Community Emergency Response web site |
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The Kidney Foundation of Canada web site |
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KidneysDoThat.org web site |
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KIDNEYNATION, a Community United to Fund the Fight Against Kidney Disease |
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Kidney
Smart web site from DaVita |
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Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential" |
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Living Kidney Donor Network web site |
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Living Kidney Donor Search web site |
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Lupus Foundation of America web site |
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MedWish web site for donating medical supplies |
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National Center for Complementary and Alternative Medicine (CAM) web site |
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National Foundation for Transplants web site |
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National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site |
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National Institute of Health NIHSeniorHealth.gov web site |
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National Kidney Federation (UK site) web site |
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National Kidney Foundation (US site) web site |
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National Kidney Registry web site |
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National Kidney and Urologic Diseases Information Clearinghouse web site |
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National Patient Safety Agency web site (UK organization) |
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Patient Access Network Foundation web site - medication assistance |
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Patient Advocate Foundation (PAF) web site |
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Polycystic Kidney Research Foundation web site |
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Renal Support Network (RSN) web site |
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Restless Legs Syndrome Foundation web site |
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Stop Medicare Fraud.gov web site |
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Transplant Living web site |
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| PRODUCTS |
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Dialysis Arm Bands — Protect your access from GEM ideas LLC |
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Emergency Medical Emblems from Medic Alert |
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Emergency Medical Bracelets from The ID Band Company |
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| STATISTICS |
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Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS) |
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Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site |
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US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2020 Objectives |
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statehealthfacts.org - your source for state health data |
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| UPCOMING EVENTS |
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National Kidney Foundation (NKF) Health Screening Schedule |
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Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261 |
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Renal Support Network (RSN) Renal Events Calendar |
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Complimentary Audio Conferences - Audio conferences from the HealthWell Foundation® web site |
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| YOUR WORDS |
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Fifteen dialysis cartoons by Lori James-Hartwell |
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Your Words feature on RenalWEB |
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| RELATED WEB PAGES & TOPICS |
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A Full and Comfortable Life Topic Page from RenalWEB Continually Updated! |
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Dialysis and AAMI Standards - a book of standards and recommended practices for dialysis that can be ordered from the Association for the Advancement of Medical Instrumentation (AAMI) |
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National Guideline Clearinghouse - evidence-based clinical practice guidelines |
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| INPUT / SUGGESTIONS |
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E-mail to RenalWEB on the Patient Education Resources Page |
Except where noted, no information within the RenalWEB web site can be copied, duplicated, or reproduced in any form without the express written consent of RenalWEB.
