RenalWEB Home Page
Last Updated 06/18/17

Hemodialysis Info

Initially, the diagnosis of end-stage renal disease (ESRD) and the prospect of relying on dialysis treatments for survival are almost always devastating and overwhelming for an individual and their family. However, once people have had time to accept and to begin to deal with the necessary life changes, dialysis-related educational resources are a necessity for attaining a sense of control in one's life.  Gradually increasing feelings of confidence and empowerment replace the initial confusion and despair when educational resources are readily available.

The Internet has a wealth of information available for dialysis patients with a few clicks of a mouse. Information resources range from basic explanations in layman's terms of dialysis procedures and technology to search engines for browsing through the 11 million articles in the National Library of Medicine's MEDLINE database.  If you take a little time to become familiar with using PubMed, you can research the latest medical information on any topic of your choice.

In an effort to make finding information easier, RenalWEB has organized many of these resources into groupings that we hope you will find useful. You will find eighteen categories listed to the left of this paragraph. With over 200 links, even the seasoned veterans will find new and interesting information. For articles, ideas, and sources to answer some of the questions you may have on how to make life with dialysis more comfortable and fulfilling, please visit RenalWEB's A Full and Comfortable Life page.

This listing will be continuously updated as more resources become available on the Internet. Please contact us to suggest web-based resources that you have found useful. If you find this information useful and would like to share it with others, print this flyer and distribute it in your dialysis facility.

Warning:  Changes should never be made in a patient's treatment or care based solely on the information found here.  Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made.  All medical and therapeutic decisions must come from a qualified health care provider.  Read RenalWEB's Legal Disclaimer before proceeding.

  NEWS AND LATEST ARTICLES
blue ball

Three Points on Dialysis John Oliver Forgot to Make - Posting from the KevinMD blog. - June 15, 2017

Editor's note: For me, the most symbolic moment in John Oliver's exposé of what is wrong is U.S. dialysis care occurs around the 7:40 mark. DaVita's Kent Thiry is leading a cheer and among those responding is the nephrologist who is the honorary historian for the American Association of Kidney Patients (AAKP). In a 2017 press release AAKP President Paul T. Conway stated, "Dr. (redacted) is a prolific and respected writer, and we are honored to have him tell the compelling history of how kidney patients have worked through the past several decades to impact treatment and chart the course for strategic patient engagement for themselves and all who suffer from a chronic disease."

I believe the biggest point that John Oliver missed is how complicit U.S. nephrologists have been with junk-credit-rating companies in providing embarrassingly poor dialysis care. Hundreds of now prominent U.S. nephrologists have become multimillionaires from these business practices. Thousands of younger nephrologists are now financially dependent on this business model. Their incomes, their medical school loan payments, their children's college funds, and their own retirement plans depend upon continuing these medically- and morally-poor business practices.

John Oliver could have also made these points:

  • Virtually all nephrologists would choose a different dialysis treatment modality for themselves than the one that the vast majority of their patients utilize
  • The largest non-profit dialysis provider has had better survival and hospitalization rates than the largest for-profit providers for 14 consecutive years
  • This field of medicine has abysmal employment and rehabilitation rates

Will U.S. nephrology continue ever be capable of any kind of effective self-examination? Will they listen to financially independent patient groups that don't fawn over them for their supposed patient-centered care?

They say history is written by the winners. U.S. dialysis patients have not been the winners.
blue ball

Patient Engagement QIA - Posting from the Northwest Renal Network. - June 15, 2017
blue ball

Renal Telemedicine through Video-As-A-Service Delivered to Patients on Home Dialysis: a Qualitative Study on the Renal Care Team Members' Experience -  Early View Abstracts from Journal of Renal Care. - June 14, 2017
blue ball

CMS Releases 1991-2014 Health Care Spending by State - Press release. Full-text article from Health Affairs. - June 14, 2017
blue ball

Committee Wants Diabetes Docs to Watch Their Language - (Registration required, but free.) Article from MedPage Today. - June 13, 2017
blue ball

Big Pharma Gives Your Doctor Gifts. Then Your Doctor Gives You Big Pharma's Drugs. - Article from The Washington Post. - June 13, 2017
blue ball

The 50 Most Active Kidney Transplant Centers in 2016 - Article from Nephrology News & Issues. - June 12, 2017
blue ball

Human Insulin for Type 2 Diabetes - An Effective, Less-Expensive Option - Free, full-text, New Online viewpoint article from the Journal of the American Medical Association. - June 12, 2017
blue ball

Collaboration Key in Winning NQF Endorsement for Medication Management Measure - Article by Allen R. Nissenson, MD and Edward R. Jones, MD from Nephrology News & Issues. - June 9, 2017

Editor's note: Did patients think this was a priority? Patient priorities get the usual lip service.
blue ball

Is the Finger-Stick Blood Test Necessary for Type 2 Diabetes Treatment? - Press release from the University of North Carolina School of Medicine. Free, full-text, New Online article and editorial from JAMA Internal Medicine. - June 8, 2017
blue ball

Video: A Home Hemodialysis Treatment Step-by-Step - 43-minute YouTube video by Tami Ramsey, a nurse who does home hemodialysis herself. - June 8, 2017
blue ball

Can Personalized Care Planning Improve Primary Care? - Free, full-text, New Online viewpoint article from the Journal of the American Medical Association. - June 8, 2017
blue ball

Study Confirms Link Between Diabetes Med and Rare But Dangerous Complication - Article from HealthDay. - June 7, 2017
blue ball

DaVita Introduces DaVita® Health Solutions - Press release. - June 6, 2017

Editor's note: Is rehabilitation any part of DaVita Health Solutions?
blue ball

Hospitals Now Tap Lawyers To Fulfill Patients' Legal Needs - Article from Kaiser Health News. - June 6, 2017
blue ball

The Value of Teaching Patients to Administer Their Own Care - Article from Harvard Business Review. - June 2, 2017

"An example is a dialysis program implemented at the Central Texas Nephrology Associates (CTNA) clinic in Waco, Texas, by CTNA's medical director, Dr. Richard Gibney, and his team."

"In 2016, nearly 40% of CTNA's 751 patients performed their own dialysis while experiencing fewer hospitalizations and a lower mortality rate than patients receiving dialysis the conventional way. Patients delivering their own dialysis experienced better outcomes and the health system minimized costs by avoiding unnecessary hospital visits."

"(The) Providers' role changed from performing every step of the process to serving as coaches and supporters of patients doing their own care. The resulting redeployment of staff resources led to higher productivity and throughput for the clinic."
blue ball

Factors Associated With Functional Capacity in Hemodialysis Patients - Early View abstract from Artificial Organs.- June 1, 2017

"In conclusion, functional capacity was significantly associated with educational level, hemoglobin, peripheral muscle strength, and depression in hemodialysis patients."
blue ball

ASN: 2017 Innovations in Kidney Education Contest - June 2017
blue ball

Burden of Multiple Chronic Illness Told through New Chartbook - Press release from the Rand Corporation. - May 31, 2017
blue ball

Poll: Most Disapprove of ObamaCare Repeal Efforts - Article from The Hill. - May 31, 2017
blue ball

Drug Rebates Reward Industry Players — And Often Hurt Patients - Article from Kaiser Health News. - May 30, 2017
blue ball

New Medicare Cards Offer Greater Protection to More Than 57.7 Million Americans - CMS press release. News brief from AHANews. - May 30, 2017
blue ball

New Biomarkers Predict Accelerated Diabetic Eye Disease - News item from Science Daily. - May 29, 2017
blue ball

One in 3 High Blood Pressure Patients Failing to Take Medication - Press release from the University of Leicester. - May 25, 2017
blue ball

Does Telling Patients of Possible Side Effects Make Them More Likely? - Article from Reuters Health. - May 25, 2017
blue ball

Dialysis Facility Compare Social Media Toolkit Brochures - Notice from the Northwest Renal Network. - May 24, 2017
blue ball

Americans Skeptical of Corporate-Backed Health Research - Article from HealthDay. - May 22, 2017
blue ball

Medication Adherence Perspectives in Hemodialysis Patients: a Qualitative Study - Free, Open Access Article from BMC Nephrology. - May 22, 2017
blue ball

New Answers for Kids with Inherited Kidney Disease - Press release from the University of Queensland. - May 22, 2017
blue ball

Kidney Patient Education: A Lost Art, or Just Rarely Seen? - Posting from the KidneyViews blog. - May 18, 2017
blue ball

5 Drugs You May Need to Avoid or Adjust if You Have Kidney Disease - Guide from the National Kidney Foundation. - May 2017
blue ball

DaVita Medical Insights Podcasts - May 2017
blue ball

Your Dialysis Care Team - Guide from the National Kidney Foundation. - May 2017

Editor's note: Two questions:

  1. Who is the captain of the team?
  2. Is the patient even considered part of the team?
blue ball

infoKID Web Site (UK) - Providing information for parents and carers about kidney conditions in babies, children and young people. - May 2017
blue ball The Newsroomof the National Kidney Foundation web site
blue ball
 Latest Dialysis News Stories from  Yahoo   Continually Updated!
blue ball
 Latest Transplant News Stories from Yahoo  Continually Updated!
Top of Page

  ESSENTIAL INFORMATION
blue ball Patient Rights and Responsibilities - from the Kidney School web site
blue ball Patient Rights - 1-page pdf from the Northwest Renal Network
A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland
One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site.
Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) - USRDS Presentations & Posters, 2016 Researcher's Guide and the 2016 USRDS annual report- from the United States Renal Data System (USRDS) web site

AAKP Patient Plan©: Four phase education plan from the American Association of Kidney Patients (AAKP) web site
blue ball A-Z Patient Education Library from the Northwest Renal Network’s Patient Education and Orientation Learning and Action Network (LAN) 
Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site
The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site
End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish)
blue ball Video on Failing Kidneys and Different Treatment Options - Posting from the Precious Bodily Fluids blog. 
Financial Help for Treatment of Kidney Failure from the NKUDIC web site
Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site
blue ball Treatment Options from Baxter Healthcare
Dialysis Saves Lives is a 6 minute video to educate patients about dialysis from Fresenius Medical Care and the National Kidney Foundation (NKF) - May 2011
The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Living with Kidney Disease DVD - from Kidney Research UK web site
Book: Help, I Need Dialysis! How to have a good future with kidney disease by Dori Schatell, MS and Dr. John Agar © 2012
How to Have a Good Future with Kidney Disease a Life Options CKD Patient Education Toolkit - 2011
The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Kidney Diseases Dictionary from the NIDDK web site
Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired).
Medicare Basics - from the Medicare.gov
Medicare for Children with Chronic Kidney Disease from the Medicare web site
The Medicare-Medicaid Relationship (pdf formatrequires Adobe Acrobat reader) from the Medicare web site
CMS Center for Medicare & Medicaid Innovation from the Medicare web site
Your Medicare Rights and Protections (pdf formatrequires Adobe Acrobat reader) from the Medicare web site
Medicare-Approved Drug Discount Cards
    Medicare Plan Finder
    Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader)
    Making It Easier At the Pharmacy Counter
Medicare Telehealth Services from the Medicare web site
Health Information Frequently Asked Questions from NIDDK web site
Complaint Process for Medicare Beneficiaries from the Office of Inspector General
Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book
blue ball Family Reunion Health Guide (pdf) resource from the National Kidney Disease Education Program.
 
Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site
Top of Page

  GENERAL RESOURCES
E-Kidney - The online newsletter of the National Kidney Foundation (NKF)
Kidney Beginnings: A Patient's Guide - 62 page book from the American Association of Kidney Patients (AAKP) web site
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site
AAKP Public Policy from the American Association of Kidney Patients (AAKP)
aakpRenalife a magazine for dialysis patients from the American Association of Kidney Patients (AAKP)
A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999
Adherence Toolkit - Resources from The Renal Network, Inc.
Alternative Remedies from the Kidney School web site
blue ball Anemia - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
blue ball Bone and Mineral Metabolism - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
Books and pamphlets available from The Renal Network (ESRD Networks 9/10)
CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site
blue ball

ChoosingDialysis - "Empowering patients on choices for renal replacement therapy" 
blue ball

Chronic Kidney Disease patient page from the Journal of the American Medical Association. - May 24/31, 2016
blue ball

Clinical Implications of Renal Physiology - Free IBook from the Renal Fellow Network  - October 2016
Clinical Trials: Kidney Disease from the Center Watch web site
Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure
blue ball new DaVita Medical Insights Podcasts from the DaVita web site
Diabetes HealthSense provides easy access to resources to help you live well and meet your goals—whether you have diabetes or are at risk for the disease.rom the National Diabetes Education Program web site
The Diabetes Quiz web site
blue ball Diabetic Kidney Disease - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
"Dialysis Answers” Fact Sheets - educational resources from Life Options web site
Dialysis Facility Compare and the feature from Medicare
blue ball

Dialysis Patient Grievance Toolkit - Toolkit from the Medical Advisory Council (MAC) of the National Forum of ESRD Networks. - 2017
Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated!
DPC Education Center - dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers, and developing favorable public policy solutions.
Dialysis, the Flu, and You from Home Dialysis Central web site

Dialysis Options Video from the Medical Education Institute's Lets Talk About... LifeOptions page
blue ball

Dialysis - You Have Options (pdf) from Northwest Renal Network web site
Emergency Preparedness Resource from ESRD Network #4

Engaging Patients in Care Design - from Hospital & Health Networks
blue ball

Essentials of Chronic Kidney Disease - KidneyTalk podcast from Renal Support Network. - October 6, 2015
Family Reunion Health Guide (pdf) from the National Kidney Disease Education Program web site
5-Diamond Patient Safety web site and the 2014-2015 5-Diamond Data Book
Free Online Patient Education Resource for Kidney Diseases Available in 20 Languages from Kidneyeducation.com
blue ball 4 Steps to Mange Your Diabetes for Life from the Centers for Disease Control (CDC)
Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site
blue ball

The Greatest Potassium Lecture Ever — Parts 1, 2 and 3 - Lectures from Oakland University William Beaumont School of Medicine by Joel Topf, MD via the Precious Bodily Fluids blog. - August 2016
Health Library from the Renal Support Network (RSN) web site
Health, United States from the Centers for Disease Control (CDC)
Heart Health, Blood Pressure, and Fluids from the Kidney School web site

Help! I Need Dialysis! -- E-book by Dori Schatell, John Agar
High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site
Hospital Compare from the U.S. Department of Health & Human Services web site
How to protect yourself in the hospital from Home Dialysis Central web site
How to Weather Winter Storms from Fresenius Medical Care
I Have Diabetes - from the National Diabetes Education Program web site
Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Keeping Kidney Patients Safe web site
KEY - Kidney Education and You - free kidney education classes from the DaVita web site
The Kidneys and Kidney Disease (pdf) from Kidney Health New Zealand
Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site
Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site
Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK)
Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules and Audio Books
KidneyTalk from the Renal Support Network web site

Knowledge is Power Kits from the Heartland Kidney Network - February 2013
• My Kidney Kit - My Clinic Plan (pdf)
• My Kidney Kit - Introduction
• My Kidney Kit - My Treatment
• My Kidney Kit - My Plan
• My Kidney Kit - My Network
• My Kidney Kit - My Information
• My Kidney Kit - My Life
• My Kidney Kit - My Choices
A Leadership Resource for Patient and Family Engagement Strategies - from the Hospitals in Pursuit of Excellence web site
Live & Give Newsletter - latest bi-annual update helping educate and motivate people living with chronic kidney disease from Renal Support Network
Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site
Medical Nutrition Therapy Services from Medicare.gov
Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site
blue ball

My Life, My Dialysis Choice - KidneyTalk podcast from Renal Support Network
blue ball

National Institute of Diabetes and Digestive Diseases (NIDDK) Publications in English and Spanish

  • Chronic Kidney Disease and Medicines (Brochure) (English | Spanish)
  • Is My Child At Risk for Kidney Disease? (English | Spanish)
  • What I need to know about Kidney Failure and How It's Treated (English | Spanish)
National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site
NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications.
NIDDK Publications On-line from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)
blue ball

Pathophysiology of Renal Disease - Free IBook from the Renal Fellow Network  - October 2016
PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference.
Planning to Return Home After Surgery - Free, Full-Text Article from the Journal of the American Medical Association - August 30, 2016
The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care

Pair Up Health Fact Sheets - September 2011
• Diabetes and Your Kidneys
• High Blood Pressure and Your Kidneys
Patient & Family Council information from the National Kidney Foundation (NKF)
Preventive Services Educational Resource Web Guide from the Centers for Medicare & Medicaid Services web site
Publications from the Kidney Foundation of Canada web site
Quackwatch - A Guide to Health Fraud, Quackery, and Intelligent Decisions.
Self Management UK is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives.

Type 2 Diabetes Patient Resources - Trusted online resources from Medpage Today.
blue ball

Understanding Kidney Disease (Four free book chapters) - resource from ISN Education- January 2016
Understanding Your Kidneys - 8-page (pdf) issue of Kidney Health. - August 2010
blue ball

newVideo: A Home Hemodialysis Treatment Step-by-Step - 43-minute YouTube video by Tami Ramsey, a nurse who does home hemodialysis herself.
blue ball

What I Have Learned And How It Can Help - book by dialysis patient Elliott B. Brown
What is Chronic Kidney Disease? from the Nephron Information Center web site
Working with Your Healthcare Team - from the Kidney School web site
Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site
Your Kidneys and How They Work from NIDDK web site
Top of Page

  HEMODIALYSIS INFORMATION
Latest Scientific Journal Articles on Hemodialysis Adequacy
Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader)
Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Hemodialysis Dose and Adequacy from the NKUDIC web site
blue ball Hemodialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.

A Patient Guide to Machine Alarms - from the Northwest Renal Network.

Find a home dialysis center in your area from the Home Dialysis Central web site
Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated!
Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated!
Top of Page

  PERITONEAL DIALYSIS INFORMATION
Latest Scientific Journal Articles on Peritoneal Dialysis Adequacy
Adequate Peritoneal Dialysis Therapy Topic Page from RenalWEB Continually Updated!
Fact Sheets from ANNA: Peritoneal Dialysis and Pediatric ESRD: Peritoneal Dialysis (pdf format requires Adobe Acrobat reader)
Hernias and peritoneal dialysis: What you need to know - from the Home Dialysis Central web site
How you look on PD: Coping with body image changes - from the Home Dialysis Central web site
International Society for Peritoneal Dialysis Training Plans (pdf), and Peritoneal Dialysis Training Video
blue ball Peritoneal Dialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
Peritoneal Dialysis (PD) Catheter Placement: What to Expect - from Home Dialysis Central web site
Peritoneal Dialysis Dose and Adequacy from the NKUDIC web site
Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site
Saying yes to PD: separating myth from fact - page down to view article from Home Dialysis Central web site
Top of Page

  VASCULAR ACCESS INFORMATION
Latest Scientific Journal Articles on Vascular Access
Fistula First web page from the ESRD Network Coordinating Center web site
Dialysis Access from the VascularWeb web site

Patient Pocket Guide: 6 Tips to Prevent Dialysis Infections - Download file from the Centers for Disease Control and Prevention. - October 2013
Let's Talk About Fistulas - 3 minute video from the Fistula First Breakthrough Iniiative (web site)

Video: Dialysis Patients Speak: a Conversation about the Importance of AV Fistulas - 12-minute video on YouTube produced in 2005 for the ESRD Network of New England. - December 13, 2012
Frequently Asked Questions about the ArterioVenous Fistula from the Northwest Renal Network web site

Helping the Patient Make Healthy Fistula Choices - educational Web-EX Series from The Renal Network.
Understanding Your Hemodialysis Access Options from the American Association of Kidney Patients (AAKP) web site
Just the Facts: Vascular Access and Información esencial: Acceso vascular (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Lifeline for a Lifetime – Your Vascular Access from the ESRD Network Coordinating Center (NCC) web site

Protect Your Access – It's Your Lifeline! from the Northwest Renal Network web site
Caring For & Developing Your New Fistula from the Northwest Renal Network web site
Vascular Access for Hemodialysis from the NKUDIC web site
Videos in Clinical Medicine: Placement of an Arterial Line from The New England Journal of Medicine (NEJM)
How Do I Look?: Taking the fear out of AV Fistula Placement - (pdf) from The Renal Network web site
3 Ps for Vascular Access Success - (pdf) Handbook from The Renal Network, Inc. - November 2010
Keeping Your Access Uncovered from the Northwest Renal Network
Blood Pump Speed and Your Dialysis Fistula - Article from Home Dialysis Central. - March 2010.

Self-Cannulation - Video via Renal Fellow Network web site
RenalWEB's Vascular Access Internet Resources Page Continually Updated!
Top of Page

  TRANSPLANT & BIOTECHNOLOGY
Latest Scientific Journal Articles on Kidney Transplantation
2013 OPTN/SRTR Annual Report from the Scientific Registry of Transplant Recipients web site
Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader)
blue ball

Brochure Addresses Patients' Questions about Transplant Candidate Kidney Evaluation and Listing - PDF Resource from the United Network for Organ Sharing.
Financial Assistance for Living Donors web site
How the Transplant Waiting List Works - Article from KidneyTimes
KidneyLink - created by maintained by the PKD Foundation

Kidney Transplantation - Podcasts from The Renal Support Network
Living Kidney Donor Search Tools and Tips web site
National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site

Organ Donation Toolbox - from the Organ Donation and Transplantation Alliance web site
blue ball Renal Transplantation - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
TransWeb (All about transplantation and donation)
US Government web site on organ donation
Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site
blue ball Transplant Living from the United Network for Organ Sharing (UNOS) web site
Working with your Healthcare Team; Overcoming Barriers to Transplant (English|  Spanish) from the End Stage Renal Disease Network of New York web site
Kidney Transplantation Topic Page from RenalWEB Continually Updated!
Top of Page

  DIET
Latest Scientific Journal Articles on Nutrition
Chronic Kidney Disease: Nutrition Basics - Free, Full-text Article from Journal of Renal Nutrition - July 2011
Cookbooks for CKD Patients—2009 Update
DaVita Diet Helper from the DaVita web site

Delicious! - AAKP recipe cookbook
Diet Information from the Kidney Patient's Guide (UK site) web site
Eat Right To Feel Right On Hemodialysis from the NKUDIC web site
blue ball Fluid and Electrolytes - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
blue ball

Food Safety for Transplant Recipients - from the U.S. Food and Drug Administration
Home-Delivered Meal Options for Chronic Kidney Disease Patients full-text article from Journal of Renal Nutrition - September 2012

Kidney Community Kitchen from the Kidney Foundation of Canada Helps Dialysis Patients with Complex Burden of Diet Planning
Kidney-Friendly Frozen Meal Tips and Suggestions “In A Pinch” full-text article from Journal of Renal Nutrition - September 2012

Mom's Meals - home meal delivery for many with stage 5 kidney disease
Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Nutrition and Fluids for People on Dialysis from the Kidney School web site
Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient)
RenalWEB's Well Nourished Patient - Internet Resources Continually Updated!
blue ball

Short How-To Recipe Videos Launch for Kidney Disease and Dialysis Patients - from DaVita Kidney Care
Smoothie Recipe Book for Renal and Heart Health by Victoria L Hulett JD (Author), Jennifer L Waybright RN (Contributor)

Spice it up! - Renal recipe web site from Canada. Spice it up! booklets are available in English and French, but they are not for sale. They are distributed by renal dietitians to dialysis patients (free of charge).

Truly Tasty - Renal cookbook from Ireland
Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site
Top of Page

  K/DOQI™ -  Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" )

K/ DOQI Main Page on the National Kidney Foundation web site
Top of Page

  PUBMED SEARCHES (National Library of Medicine's MEDLINE Database)
PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed.
hemodialysis Continually Updated!
adequacy AND hemodialysis Continually Updated!
peritoneal dialysis Continually Updated!
vascular access AND dialysis Continually Updated!
exercise and dialysis Continually Updated!
renal transplantation AND dialysis Continually Updated!
MEDLINE / Pubmed Information from the National Library of Medicine
Also consider using Yahoo to locate web sites and web pages on any topic of your choice.

  DISCUSSION FORUMS
Care-Partners for Home Dialysis discussion page
Dialysis Nursing Discussion Forum on RenalWEB
HealCam - from MedGadget.
I Hate Dialysis discussion page
Living Donors Online Message Board discussion page
Nephkids - a cyber-support group for Parents of Children with Kidney Disease
Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient)
Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten)
Vascular Access Discussion Forum on RenalWEB
Top of Page

  ORGANIZATIONS AND GOVERNMENT AGENCIES
Alliance for Home Dialysis web site

American Association of Kidney Patients (AAKP) web site

American Diabetes Association (ADA) web site

American Kidney Fund (AKF) web site

B.Braun Avitum web site

BestHealth web site

Caregiver Action Network (CAN) web site
CaregiverStress web site
Coalition for Supportive Care of Kidney Patients web site
blue ball   new DaVita Health Solutions web site
DaVita Patient Citizens from the DaVita web site
Dialysis/Transplant Patient web sites
The Disabled Living Foundation web site
The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site
European Kidney Patients' Federation web site (UK version)

Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks
iHealthRecord web site is a no cost, secure and confidential interactive record that lets you keep all your health information organized, accurate and in one place.
HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs
Home Dialysis Central web site
Home Dialyzors United web site
Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD) web site
blue ball

new infoKID Web Site (UK) - Providing information for parents and carers about kidney conditions in babies, children and young people.

Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid
Kidney & Urology Foundation of America (KUFA) web site
Kidney Community Emergency Response web site

The Kidney Foundation of Canada web site
KidneysDoThat.org web site
blue ball

KIDNEYNATION, a Community United to Fund the Fight Against Kidney Disease

Kidney Smart web site from DaVita

Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential"
Living Kidney Donor Network web site
Living Kidney Donor Search web site

Lupus Foundation of America web site
MedWish web site for donating medical supplies
National Center for Complementary and Alternative Medicine (CAM) web site
National Foundation for Transplants web site

National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site
National Institute of Health NIHSeniorHealth.gov web site

National Kidney Federation (UK site) web site

National Kidney Foundation (US site) web site
National Kidney Registry web site

National Kidney and Urologic Diseases Information Clearinghouse web site
National Patient Safety Agency web site (UK organization)
Patient Access Network Foundation web site - medication assistance

Patient Advocate Foundation (PAF) web site

Polycystic Kidney Research Foundation web site

Renal Support Network (RSN) web site

Restless Legs Syndrome Foundation web site
Stop Medicare Fraud.gov web site

Transplant Living web site
Top of Page

  PRODUCTS
Dialysis Arm Bands — Protect your access from GEM ideas LLC
Emergency Medical Emblems from Medic Alert
Emergency Medical Bracelets from The ID Band Company
Top of Page

  STATISTICS
Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS)
Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site
US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2020 Objectives
statehealthfacts.org - your source for state health data
Top of Page

  UPCOMING EVENTS
National Kidney Foundation (NKF) Health Screening Schedule
Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261
Renal Support Network (RSN) Renal Events Calendar
Complimentary Audio Conferences - Audio conferences from the HealthWell Foundation® web site
Top of Page

  YOUR WORDS
Fifteen dialysis cartoons by Lori James-Hartwell
Your Words feature on RenalWEB
Top of Page

  RELATED WEB PAGES & TOPICS
A Full and Comfortable Life Topic Page from RenalWEB Continually Updated!
Dialysis and AAMI Standards - a book of standards and recommended practices for dialysis that can be ordered from the Association for the Advancement of Medical Instrumentation (AAMI)
National Guideline Clearinghouse - evidence-based clinical practice guidelines
Top of Page

  INPUT / SUGGESTIONS
E-mail to RenalWEB on the Patient Education Resources Page
Top of Page

 

Except where noted, no information within the RenalWEB web site can be copied, duplicated, or reproduced in any form without the express written consent of RenalWEB.