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Warning: Changes should never be made in a patient's treatment or care based solely on the information found here. Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made. All medical and therapeutic decisions must come from a qualified health care provider. Read RenalWEB's Legal Disclaimer before proceeding.
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| NEWS AND LATEST ARTICLES |
AAKP
Conference Call on Jan. 25: Home Hemodialysis: Helping Patients Lead a
Healthier Life! - Registration information from the American Association
of Kidney Patients. |
|
Kidney
Failure Patients Prone to GI Tract Bleeding - Article from HealthDay.
JASN Express abstract.
- January 19, 2012 |
|
Taking
Multiple Meds Ups Fall Risk - January 17, 2012 |
|
Diabetes
Patients Get Benefit from House Calls - Article from MedPage Today.
- January 12, 2012 |
|
Patient
Advocates Seek More Time To Weigh In On Essential Benefit Rules -
News summary from Kaiser Health News. - January 12, 2012 |
|
The
Health Law Goes Graphic (a la comic books) - Article from Kaiser Health
News. - January 9, 2012 |
|
DaVita
Urges Dialysis Patients to Prepare for Winter Weather-Related Emergencies
- January 5, 2012 |
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Hospital Readmission Rates Not Always Controllable - January 1, 2012 |
|
For
Some In Need, Facebook Is Route To New Kidney - January 1, 2012 |
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Healthcare Associated Infections - Web site by Kimberly-Clark. Patient's guide (2-page pdf) to hand hygiene. - December 2011 |
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A Patient Guide to Machine Alarms - 1-page pdf from the Northwest Renal Network. - December 2011 |
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December Newsletter from the Northwest Renal Network - December 2011 |
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The Patient Will See You Now - Free, full-text article from Journal of Participatory Medicine. - December 28, 2011 |
|
Why
Patients Are Turning Less to Media and Friends for Health Information
- Article from American Medical News. - December 26, 2011 |
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Doctors Should Tell Patients the Realities of Aging, Study Says - Article from Orange County Register via STL Today. - December 22, 2011 |
|
Managing
Older Adults With CKD: Individualized Versus Disease-Based Approaches
- Article in Press abstract from American Journal of Kidney Diseases.
- December 22, 2011 |
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Engaging Patients in Care Design - Video from Hospital & Health Networks. - December 21, 2011 |
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Patients Want To Read, Share Their Medical Records - December 19, 2011 |
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AAKP
HealthLine Program Conference Call Scheduled for Jan. 25th - December
19, 2011 |
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Physical
Activity and Energy Expenditure in Hemodialysis Patients: an International
Survey - Advance Access Abstracts from NDT - December 15, 2011 |
|
Protect
Your Wallet: How to Prevent, Identify and Dispute Medical Billing Errors
- KidneyTalk podcast from Renal Support Network. - December 13, 2011 |
|
CMS
2012 Performance Score Certificates (PSC) Available for Downloading on
DialysisReports.org = See the DialysisReports.org home page announcement
and the secure
site for downloading PSCs. - December 2011 |
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New
Web Resource from Kidney Foundation of Canada Helps Dialysis Patients
with Complex Burden of Diet Planning - Article from The Canadian Press.
- December 12, 2011 |
|
Brief,
High-Intensity Workouts Show Promise in Helping Diabetics Lower Blood
Sugar: Study - December 12, 2011 |
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Brilliant
Little Video on Exercise - December 12, 2011 |
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A
Health Care System Tailor-Made For Patients - Article from Hospitals
& Health Networks. - December 12, 2011 |
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| The Newsroom of the National Kidney Foundation web site | |
| Latest Dialysis News Stories from Yahoo Continually Updated! | |
| Latest Transplant News Stories from Yahoo Continually Updated! | |
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| ESSENTIAL INFORMATION |
| Patient Rights and Responsibilities - from the Kidney School web site | ||
| A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland | ||
| One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site. | ||
| Summary Report of the End Stage Renal Disease (ESRD) Networks Annual Reports 2005 | ||
| Videos on Chronic Kidney Disease - 19-chapter educational series from TheVisualMD.com. - October 2011 | ||
| Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) - 2010 USRDS Presentations & Posters, 2009 Researcher's Guide and the 2011 USRDS annual report - from the United States Renal Data System (USRDS) web site | ||
| AAKP Patient Plan©: Four phase education plan from the American Association of Kidney Patients (AAKP) web site | ||
| Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site | ||
| Patient Guide to ESRD Bundle from the Dialysis Patient Citizens web site | ||
| The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site | ||
| End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish) | ||
| Your Treatment, Your Choice is a patient education program designed to satisfy Medicare's requirements for reimbursement of the MIPPA Kidney Education Benefit from the National Kidney Foundation (NKF) | ||
| Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site | ||
| Life on Dialysis: A Lived Experience - 7-page pdf from Nephrology Nursing Journal. - January/February 2010 | ||
| Dialysis Saves Lives is a 6 minute video to educate patients about dialysis from Fresenius Medical Care and the National Kidney Foundation (NKF) - May 2011 | ||
| The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site | ||
| The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site | ||
| Living with Kidney Disease DVD - from Kidney Research UK web site | ||
| How to Have a Good Future with Kidney Disease a Life Options CKD Patient Education Toolkit - 2011 | ||
| The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site | ||
| Kidney Dialysis Dictionary from the ESRD Network 11 web site | ||
| Kidney Diseases Dictionary from the NIDDK web site | ||
| The Drug Monitor - essential clinical pharmacology / pharmacy information | ||
| Know Your Treatment Options, visit Kidney Directions from Baxter Healthcare | ||
| Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired). | ||
| Medicare Basics - from the Medicare.gov | ||
| Medicare for Children with Chronic Kidney Disease from the Medicare web site | ||
| The Medicare-Medicaid Relationship (pdf format requires Adobe Acrobat reader) from the Medicare web site | ||
| Medicare & You from the Medicare web site | ||
| CMS Center for Medicare & Medicaid Innovation from the Medicare web site | ||
| Your Medicare Rights and Protections (pdf format requires Adobe Acrobat reader) from the Medicare web site | ||
| Medicare-Approved Drug Discount Cards | ||
| Medicare Plan Finder: Updated Information On 2011 Medicare Health Plans | ||
| Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader) | ||
| Facts You Need to Know About Medicare-Approved Drug Discount Cards | ||
| Find and Compare Plans | ||
| Compare Medicare Prescription Drug Plans: A Step-by-Step Guide for Using the Medicare Drug Plan Finder (pdf format requires Adobe Acrobat Reader) | ||
| Making It Easier At the Pharmacy Counter | ||
| Getting Drugs After Your Transition Period (pdf format requires Adobe Acrobat Reader) | ||
| Medicare Telehealth Services from the Medicare web site | ||
| Financial Help for Treatment of Kidney Failure from NIDDK web site | ||
| Complaint Process for Medicare Beneficiaries from the Office of Inspector General | ||
| Intensive Intervention With The Non-Compliant Patient (requires Microsoft Word™) from the End Stage Renal Disease Network 14 web site | ||
| Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book | ||
| Family Reunion Health Guide resource from the National Kidney Disease Education Program. | ||
| Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site | ||
| Anemia Treatment Fact Sheet (2-page pdf) from Renal Support Network (RSN) web site | ||
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|
| GENERAL RESOURCES |
| E-Kidney - The online newsletter of the National Kidney Foundation (NKF) | |
| Current Issue of AAKP Public Policy Briefing an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP) | |
| Current Issue of Kidney Beginnings: The Electronic Newsletter an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP) | |
| Current Issue of Renal Flash an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP) | |
| Kidney Beginnings: The Magazine - from the American Association of Kidney Patients (AAKP) web site | |
| Kidney Beginnings: Live - from the American Association of Kidney Patients (AAKP) web site | |
| Kidney Beginnings: A Patient's Guide - brochure from the American Association of Kidney Patients (AAKP) web site | |
| aakpRENALIFE - from the American Association of Kidney Patients (AAKP) web site | |
| Current Issue of At Home with AAKP an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP) | |
| The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site | |
| A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999 | |
| Adherence Toolkit - Resources from The Renal Network, Inc. | |
| Alternative Remedies from the Kidney School web site | |
| ASN 2006 NAS Presentations & Posters from the Chronic Disease Research Group web site | |
| BenefitsCheckUpRx - this fast, free, and confidential service will help you or someone you love find public and private programs to save the most money on prescription drugs - from the Access to Benefits Coalition web site | |
| Books and pamphlets available from The Renal Network (ESRD Networks 9/10) | |
| CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site | |
| Clinical Trials: Kidney Disease from the Center Watch web site | |
| Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure | |
| Diabetes & Me - from the U.S. National Institute of Health web site | |
| Diabetes HealthSense provides easy access to resources to help you live well and meet your goals—whether you have diabetes or are at risk for the disease.The Diabetes Quiz web site | |
| The Diabetes Quiz web site | |
| "Dialysis Answers” Fact Sheets - educational resources from Life Options web site | |
| Dialysis Facility Compare feature from Medicare | |
| Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated! | |
| Dialysis, the Flu, and You from Home Dialysis Central web site | |
| What is Chronic Kidney Disease? from the Nephron Information Center web site | |
| Emergency Preparedness Resource (pdf format requires Adobe Acrobat Reader) from ESRD Network #4 | |
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|
| Expert Patients Programme is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives. | |
| Family Reunion Health Guide from the National Kidney Disease Education Program web site | |
| Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site | |
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| Health, United States from the Centers for Disease Control (CDC) | |
| Heart Health, Blood Pressure, and Fluids from the Kidney School web site | |
| Hemodoc — From Doctor to Patient - Blog site by Peter Laird, MD and dialysis patient | |
| High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site | |
| Hospital Compare from the U.S. Department of Health & Human Services web site | |
| How to protect yourself in the hospital from Home Dialysis Central web site | |
| How to Weather Winter Storms from Fresenius Medical Care | |
| Identifying Kidney Failure web cast from the Kidney & Urology Foundation of America (KUFA) web site | |
| InteliHealth is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare) | |
| Interactive Tutorial on Kidney Failure from the Patient Education Institute web site | |
| Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| Keeping Kidney Patients Safe web site | |
| KEY - Kidney Education and You - free kidney education classes from the DaVita web site | |
| Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site | |
| Kidney Drug Coverage web site developed by the Kidney Medicare Drugs Awareness and Education Initiative to provide timely, consistent, reliable, and up-to-date information about Medicare and Medicare Prescription Drug Coverage (Part D), specifically for kidney patients. | |
| Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site | |
| Kidney Health Podcast Series from the American Kidney Fund (AKF) web site | |
| Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK) | |
| Kidney Patient HealthLine - free, one-hour conference call designed to educate kidney patients on a variety of topics affecting them and their families, from the American Association of Kidney Patients | |
| Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules and Audio Books | |
| KidneyTalk from the Renal Support Network web site | |
| Kidney Times web site from the Renal Support Network (RSN) | |
| Live & Give Newsletter - latest bi-annual update helping educate and motivate people living with chronic kidney disease from Renal Support Network | |
| Living Longer, Living Better - A Heart-Healthy Wellness Program for Patients on Dialysis from the National Kidney Foundation (NKF) web site | |
| Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site | |
| Managing your Life with Kidney Failure from the National Kidney Foundation web site | |
| Medical Nutrition Therapy Services from Medicare.gov | |
| Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site | |
| My Health - from the American Association of Kidney Patients (AAKP) web site | |
| A National Conversation - Friends and Family First Toolkit - 15 page pdf packet on Medicare Prescription Drug Coverage from the Centers for Medicare & Medicaid Services (CMS) web site | |
| National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site | |
| NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications. | |
AAKP
Online Educational Sessions from Their August 2011 National Convention |
|
| PatientLinx - free newsletter containing the days articles from a variety of lay and medical sources | |
| PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference. | |
| PEPP Program (Patients Educating Patients and Professionals) from the Renal Support Network | |
| The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care | |
| NIDDK Publications On-line from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) | |
Pair
Up Health Fact Sheets - September 2011 |
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| Parents' Corner from the National Kidney Foundation web site | |
| Patient & Family Council information including the People Like Us video series from the National Kidney Foundation (NKF) | |
| Preventive Services Educational Resource Web Guide from the Centers for Medicare & Medicaid Services web site | |
| Progress and Priorities: Renal Disease Research Plan (pdf format requires Adobe Acrobat reader) from the National Institute of Diabetes and Digestive and Kidney Disease (NIDDK) web site | |
| Publications from the Kidney Foundation of Canada web site | |
| Quackwatch - A Guide to Health Fraud, Quackery, and Intelligent Decisions. | |
| Spanish Resource Guide - list of resources in Spanish from the American Nephrology Nurses Association (ANNA) | |
| Take Six Steps that Count to Fight Kidney Disease - article from the American Kidney Fund - April 2008 | |
| Ten Facts about African-Americans and Kidney Disease from the NKF web site | |
| Tips to Survive and Thrive on Dialysis - article from KidneyTimes™ | |
| Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site | |
| Your Kidneys and How They Work from NIDDK web site | |
| UltraCare-Dialysis.com is a resource for treatment options and lifestyle advice for living with kidney disease from Fresenius Medical Care | |
| Understanding Your Kidneys - 8-page (pdf) issue of Kidney Health. - August 2010 | |
| Working with Your Healthcare Team - from the Kidney School web site | |
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|
| HEMODIALYSIS INFORMATION |
| Latest Scientific Journal Articles on Hemodialysis - list compiled by RenalWEB's Journal Watch | |
| Hemodialysis Dialysis Advisory Information from the American Association of Kidney Patients (AAKP) web site | |
| Understanding Your Hemodialysis Options and Conozca Sus Opciones De Hemodialysis (pdf format requires Adobe Acrobat Reader) from the American Association of Kidney Patients (AAKP) web site | |
| Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader) | |
| Hemodialysis: A Life Saver for Kidney Disease web cast from the Kidney & Urology Foundation of America (KUFA) web site | |
| Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| A Patient Guide to Machine Alarms (pdf format requires Adobe Acrobat Reader) from the Northwest Renal Network web site | |
| Dialysis disequilibrium syndrome from the Western Queen's Dialysis web site | |
| Hemodialysis Dose and Adequacy from the NKUDIC web site | |
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|
| Kidney Directions from Baxter Healthcare | |
| Find a home dialysis center in your area from the Home Dialysis Central web site | |
| Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated! | |
| Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated! | |
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| PERITONEAL DIALYSIS INFORMATION |
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|
| VASCULAR ACCESS INFORMATION |
| |
| TRANSPLANT & BIOTECHNOLOGY |
| Latest Scientific Journal Articles on Kidney Transplantation - list compiled by RenalWEB's Journal Watch | |
| Current issue of Kidney Transplant Today an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP) | |
| 2009 OPTN/SRTR Annual Report from the USTransplant.org web site | |
| Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader) | |
| How the Transplant Waiting List Works - Article from KidneyTimes. - April 2011 | |
| KidneyLink - created by maintained by the PKD Foundation | |
Kidney Transplantation: Understanding the Match - Podcast from KidneyTalk. |
|
| Kidney Transplant Guide - step-by-step information and tools to help you and your family work with your doctor. | |
| 25 Facts About Organ Donation and Transplantation from the National Kidney Foundation web site | |
| National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site | |
| TransWeb (All about transplantation and donation) | |
| US Government web site on organ donation | |
| Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site | |
| Medicare Solutions - All you need to know about being an organ donor - powered by HealthPlanOne | |
| Patient Resources Available Online from the United Network for Organ Sharing (UNOS) web site | |
| Kidney Transplantation Topic Page from RenalWEB Continually Updated! | |
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| DIET |
| Latest Scientific Journal Articles on Renal Nutrition - list compiled by RenalWEB's Journal Watch | |
| aakpDelicious! from the American Association of Kidney Patients (AAKP) web site | |
| AAKP Diet Tips and Bits from the American Association of Kidney Patients (AAKP) web site | |
| Brilliant Eats Cookbook from PKD Foundation web site | |
| Chronic Kidney Disease: Nutrition Basics - Free, Full-text Article from Journal of Renal Nutrition - July 2011 | |
| Cookbooks for CKD Patients—2009 Update | |
| DaVita Diet Helper from the DaVita web site | |
| Diet Information from the Kidney Patient's Guide (UK site) web site | |
| Eat Right To Feel Right On Hemodialysis from the NKUDIC web site | |
| Eating Healthy From the Start: Kid and Kidney-Friendly Nutrition Tips (pdf) resource from the ESRD Network #15 web site | |
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| Kidney Kitchen from the National Kidney Foundation web site | |
| Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition | |
| Nutrition Counter from the American Association of Kidney Patients (AAKP) web site | |
| Nutrition and Fluids for People on Dialysis from the Kidney School web site | |
| Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site | |
| Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient) | |
| RenalWEB's Well Nourished Patient - Internet Resources Continually Updated! | |
Spice
it up! - Renal recipe web site from Canada. Spice it up! booklets
are available in English and French, but they are not for sale. They are
distributed by renal dietitians to dialysis patients (free of charge).
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| Truly Tasty - Renal cookbook from Ireland | |
| Understanding High Phosporus and Your Treatment Options (pdf format requires Adobe Acrobat reader) from the American Association of Kidney Patients (AAKP) | |
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| K/DOQI - Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" ) |
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| PUBMED SEARCHES (National Library of Medicine's MEDLINE Database) |
| PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed. | |
| hemodialysis Continually Updated! | |
| adequacy AND hemodialysis Continually Updated! | |
| peritoneal dialysis Continually Updated! | |
| vascular access AND dialysis Continually Updated! | |
| exercise and dialysis Continually Updated! | |
| renal transplantation AND dialysis Continually Updated! | |
| MEDLINE / Pubmed Information from the National Library of Medicine | |
| Also consider using Yahoo to locate web sites and web pages on any topic of your choice. | |
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| DISCUSSION FORUMS |
| Dialysis Nursing Discussion Forum on RenalWEB | |
| DIALYSIS_SUPPORT - from Yahoo Groups - end-stage renal disease (ESRD) support and educational forum | |
| HealCam - from MedGadget. | |
| Nephkids - a cyber-support group for Parents of Children with Kidney Disease | |
| Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient) | |
| Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten) | |
| Vascular Access Discussion Forum on RenalWEB | |
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| ORGANIZATIONS AND GOVERNMENT AGENCIES |
| American Association of Kidney Patients (AAKP) web site |
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| American Diabetes Association (ADA) web site |
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| American Kidney Fund (AKF) web site |
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| BestHealth web site |
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| Congressional Kidney Caucus web site | |
| DaVita Patient Citizens from the DaVita web site | |
| Dialysis Patient Citizens web site | |
| Dialysis/Transplant Patient web sites | |
| The Disabled Living Foundation web site | |
| The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site | |
| European Kidney Patients' Federation web site (UK version) | |
| Everyday Choices for A Healthier LIFE web site | |
| Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks |
|
| iHealthRecord web site is a no cost, secure and confidential interactive record that lets you keep all your health information organized, accurate and in one place. | |
| HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs | |
| Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD) web site | |
Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid |
|
| InteliHealth is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare) | |
| Kidney & Urology Foundation of America (KUFA) web site | |
| The Kidney Foundation of Canada web site |
|
| KidneysDoThat.org web site | |
| Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential" |
|
| Lupus Foundation of America web site |
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| National Center for Complementary and Alternative Medicine (CAM) web site | |
| National Family Caregivers Association (NFCA) web site |
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| National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site |
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| National Institute of Health NIHSeniorHealth.gov web site | |
| National Kidney Federation (UK site) web site |
|
| National Kidney Foundation (US site) web site |
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| National Kidney and Urologic Diseases Information Clearinghouse web site |
|
| National Patient Safety Agency web site (UK organization) | |
| Patient Advocate Foundation (PAF) web site |
|
| Polycystic Kidney Research Foundation web site |
|
| Renal Health web site |
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| Renal Support Network (RSN) web site |
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| Restless Legs Syndrome Foundation web site |
|
| Roche Transplantation web site |
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| Stop Medicare Fraud.gov web site | |
| Transplant Living web site |
|
|
|
| PRODUCTS |
| Professional Teaching Tools for Professionals from the Health Teaching.com specializes in visual and descriptive educational tools | |
|
|
| STATISTICS |
| NIDDK Identifies Risks, Measures Burden of Kidney and Urologic Diseases+ from the National Kidney and Urologic Diseases Information Clearinghouse web site | |
| Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS) | |
| Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site | |
| Prevalence of Chronic Kidney Disease and Associated Risk Factors --- United States, 1999--2004 from Morbidity and Mortality Weekly Report - March 2, 2007 | |
| Racial Differences in Trends of End-Stage Renal Disease, by Primary Diagnosis --- United States, 1994--2004 from Morbidity and Mortality Weekly Report - March 23, 2007 | |
| US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2020 Objectives | |
| statehealthfacts.org - your source for state health data | |
|
|
| UPCOMING EVENTS |
| August 9-11, 2012 - American Association of Kidney Patients (AAKP) 2012 Annual Patient Meeting: Kidney Care - Innovations in a Changing Enviroment, Grand Hyatt Atlanta, Atlanta, GA – meeting page, AAKP web site, (800) 749-2257, fax (813) 636-8122, e-mail | |
| National Kidney Foundation (NKF) Health Screening Schedule | |
| Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261 | |
| Renal Support Network (RSN) Renal Events Calendar | |
| Kidney Beginnings: Live Schedule presented by the American Association of Kidney Patients (AAKP) - AAKP web site, (800) 749-2257, fax (813) 5639-8122, e-mail | |
| How the HealthWell Foundation Helps Patients Afford Therapies They Need - 2011 audio conferences from the HealthWell Foundation® web site | |
|
|
| YOUR WORDS |
| Fifteen dialysis cartoons by Lori James-Hartwell | |
| Your Words feature on RenalWEB | |
|
|
| RELATED WEB PAGES & TOPICS |
| A Full and Comfortable Life Topic Page from RenalWEB Continually Updated! | |
| Dialysis and AAMI Standards - a book of standards and recommended practices for dialysis that can be ordered from the Association for the Advancement of Medical Instrumentation (AAMI) | |
| National Guideline Clearinghouse - evidence-based clinical practice guidelines | |
|
|
| INPUT / SUGGESTIONS |
| E-mail to RenalWEB on the Patient Education Resources Page | |

Except where noted, no information within the RenalWEB web site can be copied, duplicated, or reproduced in any form without the express written consent of RenalWEB.
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