| RenalWEB Home Page | Last
Updated 02/15/15 |
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Warning: Changes should never be made in a patient's treatment or care based solely on the information found here. Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made. All medical and therapeutic decisions must come from a qualified health care provider. Read RenalWEB's Legal Disclaimer before proceeding.
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| NEWS AND LATEST ARTICLES |
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| ESSENTIAL INFORMATION |
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Patient Rights and Responsibilities - from the Kidney School web site | |
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Patient Rights - 1-page pdf from the Northwest Renal Network | |
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A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland | |
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One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site. | |
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Summary Report of the End Stage Renal Disease (ESRD) Networks’ Annual Reports 2005 | |
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Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) -USRDS Presentations & Posters, 2013 Researcher's Guide and the 2014 USRDS annual report - from the United States Renal Data System (USRDS) web site | |
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AAKP
Patient Plan©: Four phase education plan from the American Association
of Kidney Patients (AAKP) web site |
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A-Z Patient Education Library from the Northwest Renal Network’s Patient Education and Orientation Learning and Action Network (LAN) | |
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Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site | |
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The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site | |
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End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish) | |
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Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site | |
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Northwest Renal Network December Newsletter on Treatment Options - 2-page pdf from the NW Renal Network - December 2013 | |
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Dialysis Saves Lives is a 6 minute video to educate patients about dialysis from Fresenius Medical Care and the National Kidney Foundation (NKF) - May 2011 | |
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The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site | |
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The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site | |
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Living with Kidney Disease DVD - from Kidney Research UK web site | |
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Book: Help, I Need Dialysis! How to have a good future with kidney disease by Dori Schatell, MS and Dr. John Agar © 2012 | |
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How to Have a Good Future with Kidney Disease a Life Options CKD Patient Education Toolkit - 2011 | |
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The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site | |
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Kidney Dialysis Dictionary from the ESRD Network 11 web site | |
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Kidney Diseases Dictionary from the NIDDK web site | |
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The Drug Monitor - essential clinical pharmacology / pharmacy information | |
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Know Your Treatment Options, visit Kidney Directions from Baxter Healthcare | |
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Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired). | |
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Medicare Basics - from the Medicare.gov | |
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Medicare for Children with Chronic Kidney Disease from the Medicare web site | |
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The Medicare-Medicaid Relationship (pdf format requires Adobe Acrobat reader) from the Medicare web site | |
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CMS Center for Medicare & Medicaid Innovation from the Medicare web site | |
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Your Medicare Rights and Protections (pdf format requires Adobe Acrobat reader) from the Medicare web site | |
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Medicare-Approved Drug Discount Cards | |
| Medicare Plan Finder | ||
| Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader) | ||
| Making It Easier At the Pharmacy Counter | ||
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Medicare Telehealth Services from the Medicare web site | |
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Financial Help for Treatment of Kidney Failure from NIDDK web site | |
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Complaint Process for Medicare Beneficiaries from the Office of Inspector General | |
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Intensive Intervention With The Non-Compliant Patient (requires Microsoft Word™) from the End Stage Renal Disease Network 14 web site | |
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Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book | |
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Family Reunion Health Guide (pdf) resource from the National Kidney Disease Education Program. | |
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Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site | |
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| GENERAL RESOURCES |
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E-Kidney - The online newsletter of the National Kidney Foundation (NKF) |
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Kidney Beginnings: A Patient's Guide - brochure from the American Association of Kidney Patients (AAKP) web site |
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Nutrition Counter from the American Association of Kidney Patients (AAKP) web site |
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Current Issue of At Home with AAKP an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP) |
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The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site |
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AAKP Public Policy from the American Association of Kidney Patients (AAKP) |
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aakpRenalife a magazine for dialysis patients from the American Association of Kidney Patients (AAKP) |
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A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999 |
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Adherence Toolkit - Resources from The Renal Network, Inc. |
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Alternative Remedies from the Kidney School web site |
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BenefitsCheckUpRx - this fast, free, and confidential service will help you or someone you love find public and private programs to save the most money on prescription drugs |
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Books and pamphlets available from The Renal Network (ESRD Networks 9/10) |
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CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site |
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Clinical Trials: Kidney Disease from the Center Watch web site |
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Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure |
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Diabetes & Me - from the National Diabetes Education Program web site |
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Diabetes HealthSense provides easy access to resources to help you live well and meet your goals—whether you have diabetes or are at risk for the disease.rom the National Diabetes Education Program web site |
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The Diabetes Quiz web site |
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"Dialysis Answers” Fact Sheets - educational resources from Life Options web site |
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Dialysis Facility Compare feature from Medicare |
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Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated! |
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DPC Education Center - dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers, and developing favorable public policy solutions. |
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Dialysis, the Flu, and You from Home Dialysis Central web site |
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Dialysis
Treatment Options Patient Education Poster - 1-page pdf from Northwest
Renal Network |
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Dialysis
Options Video from the Medical Education Institute's Lets
Talk About... LifeOptions page |
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Emergency Preparedness Resource from ESRD Network #4 |
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Engaging Patients in Care Design - from Hospital & Health Networks |
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Self Management UK is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives. |
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Family Reunion Health Guide (pdf) from the National Kidney Disease Education Program web site |
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Flyer:
Taking Care of What Matters — You - 1-page pdf from Northwest
Renal Network. |
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Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site |
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Health Library from the Renal Support Network (RSN) web site |
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Health, United States from the Centers for Disease Control (CDC) |
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Heart Health, Blood Pressure, and Fluids from the Kidney School web site |
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Help!
I Need Dialysis! -- E-book by Dori Schatell, John Agar |
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High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site |
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Hospital Compare from the U.S. Department of Health & Human Services web site |
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How to protect yourself in the hospital from Home Dialysis Central web site |
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How
To Use the Data.Medicare.Gov Websites - recorded webinar from
the Centers for Medicare & Medicaid Services (CMS) |
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How to Weather Winter Storms from Fresenius Medical Care |
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InteliHealth is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare) |
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Interactive Tutorial on Kidney Failure from the Patient Education Institute web site |
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Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Keeping Kidney Patients Safe web site |
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KEY - Kidney Education and You - free kidney education classes from the DaVita web site |
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Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site |
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Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site |
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Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK) |
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Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules and Audio Books |
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KidneyTalk from the Renal Support Network web site |
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Knowledge is Power
Kits from the Heartland Kidney Network - February 2013 |
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A Leadership Resource for Patient and Family Engagement Strategies - from the Hospitals in Pursuit of Excellence web site |
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Live & Give Newsletter - latest bi-annual update helping educate and motivate people living with chronic kidney disease from Renal Support Network |
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Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site |
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Medical Nutrition Therapy Services from Medicare.gov |
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Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site |
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National Institute of Diabetes and Digestive Diseases (NIDDK) Publications in English and Spanish |
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National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site |
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NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications. |
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New Patient Experience Video: Jay's Story from the Renal Network web site |
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PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference. |
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The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care |
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NIDDK Publications On-line from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) |
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Pair
Up Health Fact Sheets - September 2011 |
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Patient & Family Council information from the National Kidney Foundation (NKF) |
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Type 2 Diabetes Patient Resources - Trusted online resources from Medpage Today. |
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Preventive Services Educational Resource Web Guide from the Centers for Medicare & Medicaid Services web site |
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Publications from the Kidney Foundation of Canada web site |
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Quackwatch - A Guide to Health Fraud, Quackery, and Intelligent Decisions. |
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Take Six Steps that Count to Fight Kidney Disease - article from the American Kidney Fund - April 2008 |
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Understanding Your Kidneys - 8-page (pdf) issue of Kidney Health. - August 2010 |
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What I Have Learned And How It Can Help - book by dialysis patient Elliott B. Brown |
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What is Chronic Kidney Disease? from the Nephron Information Center web site |
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Working with Your Healthcare Team - from the Kidney School web site |
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Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site |
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Your Kidneys and How They Work from NIDDK web site |
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| HEMODIALYSIS INFORMATION |
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Latest Scientific Journal Articles on Hemodialysis Adequacy |
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Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader) |
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Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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A Patient Guide to Machine Alarms (pdf format requires Adobe Acrobat Reader) from the Northwest Renal Network web site |
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Hemodialysis Dose and Adequacy from the NKUDIC web site |
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A Patient Guide to Machine Alarms - 1-page pdf from the Northwest Renal Network. |
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Understanding the Kidney Machine - 1-page pdf from the Northwest Renal Network. |
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Kidney Directions from Baxter Healthcare |
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Find a home dialysis center in your area from the Home Dialysis Central web site |
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Live
healthier, better, longer with more frequent home hemodialysis an
educational booklet that outlines the documented benefits and risks of
home and more frequent home hemodialysis therapy from the NxStage web
site |
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Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated! |
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Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated! |
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| PERITONEAL DIALYSIS INFORMATION |
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Latest Scientific Journal Articles on Peritoneal Dialysis Adequacy |
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Adequate Peritoneal Dialysis Therapy Topic Page from RenalWEB Continually Updated! |
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Fact Sheets from ANNA: Peritoneal Dialysis and Pediatric ESRD: Peritoneal Dialysis (pdf format requires Adobe Acrobat reader) |
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Hernias and peritoneal dialysis: What you need to know - from the Home Dialysis Central web site |
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How you look on PD: Coping with body image changes - from the Home Dialysis Central web site |
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International Society for Peritoneal Dialysis Treatment Guidelines, Training Plans (pdf), Peritoneal Dialysis Training Video, and QA Protocols |
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Peritoneal Dialysis (PD) Catheter Placement: What to Expect - from Home Dialysis Central web site |
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Peritoneal Dialysis Dose and Adequacy from the NKUDIC web site |
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Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site |
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Saying yes to PD: separating myth from fact - page down to view article from Home Dialysis Central web site |
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| VASCULAR ACCESS INFORMATION |
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| TRANSPLANT & BIOTECHNOLOGY |
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Latest Scientific Journal Articles on Kidney Transplantation |
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2012 OPTN/SRTR Annual Report from the Scientific Registry of Transplant Recipients web site |
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Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader) |
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How the Transplant Waiting List Works - Article from KidneyTimes |
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KidneyLink - created by maintained by the PKD Foundation |
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Kidney Transplantation - Podcasts from The Renal Support Network |
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National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site |
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Organ Donation Toolbox - from the Organ Donation and Transplantation Alliance web site |
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TransWeb (All about transplantation and donation) |
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US Government web site on organ donation |
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Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site |
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Medicare Solutions - All you need to know about being an organ donor - powered by HealthPlanOne |
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Transplant Living from the United Network for Organ Sharing (UNOS) web site |
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Working with your Healthcare Team; Overcoming Barriers to Transplant (English| Spanish) from the End Stage Renal Disease Network of New York web site |
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Kidney Transplantation Topic Page from RenalWEB Continually Updated! |
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| DIET |
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Latest Scientific Journal Articles on Nutrition |
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Chronic Kidney Disease: Nutrition Basics - Free, Full-text Article from Journal of Renal Nutrition - July 2011 |
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Cookbooks for CKD Patients—2009 Update |
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DaVita Diet Helper from the DaVita web site |
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Delicious!
- AAKP recipe cookbook |
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Diet Information from the Kidney Patient's Guide (UK site) web site |
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Eat Right To Feel Right On Hemodialysis from the NKUDIC web site |
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Eating Healthy From the Start: Kid and Kidney-Friendly Nutrition Tips (pdf) resource from the ESRD Network #15 web site |
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Food
Safety for Transplant Recipients -
from the U.S. Food and Drug Administration |
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Home-Delivered Meal Options for Chronic Kidney Disease Patients full-text article from Journal of Renal Nutrition - September 2012 |
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Kidney
Community Kitchen from the Kidney Foundation of Canada Helps Dialysis
Patients with Complex Burden of Diet Planning |
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Kidney-Friendly Frozen Meal Tips and Suggestions “In A Pinch” full-text article from Journal of Renal Nutrition - September 2012 |
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Kidney Kitchen from the National Kidney Foundation web site |
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Mom's
Meals - home meal delivery for many with stage 5 kidney disease |
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My Food Coach from the National Kidney Foundation web site |
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Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition |
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Nutrition Counter from the American Association of Kidney Patients (AAKP) web site |
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Nutrition and Fluids for People on Dialysis from the Kidney School web site |
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Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient) |
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RenalWEB's Well Nourished Patient - Internet Resources Continually Updated! |
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Spice
it up! - Renal recipe web site from Canada. Spice it up! booklets
are available in English and French, but they are not for sale. They are
distributed by renal dietitians to dialysis patients (free of charge). |
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Truly Tasty - Renal cookbook from Ireland |
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Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site |
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| K/DOQI™ - Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" ) |
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| PUBMED SEARCHES (National Library of Medicine's MEDLINE Database) |
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PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed. |
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hemodialysis Continually Updated! |
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adequacy AND hemodialysis Continually Updated! |
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peritoneal dialysis Continually Updated! |
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vascular access AND dialysis Continually Updated! |
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exercise and dialysis Continually Updated! |
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renal transplantation AND dialysis Continually Updated! |
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MEDLINE / Pubmed Information from the National Library of Medicine |
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Also consider using Yahoo to locate web sites and web pages on any topic of your choice. |
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| DISCUSSION FORUMS |
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Dialysis Nursing Discussion Forum on RenalWEB |
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HealCam - from MedGadget. |
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Nephkids - a cyber-support group for Parents of Children with Kidney Disease |
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Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient) |
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Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten) |
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Vascular Access Discussion Forum on RenalWEB |
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| ORGANIZATIONS AND GOVERNMENT AGENCIES |
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American Association of Kidney Patients (AAKP) web site |
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American Diabetes Association (ADA) web site |
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American Kidney Fund (AKF) web site |
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B.Braun Avitum web site |
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BestHealth web site |
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Caregiver Action Network (CAN) web site |
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Coalition for Supportive Care of Kidney Patients web site |
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Congressional Kidney Caucus web site |
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DaVita Patient Citizens from the DaVita web site |
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Dialysis/Transplant Patient web sites |
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The Disabled Living Foundation web site |
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The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site |
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European Kidney Patients' Federation web site (UK version) |
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Everyday Choices for A Healthier LIFE web site |
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Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks |
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iHealthRecord web site is a no cost, secure and confidential interactive record that lets you keep all your health information organized, accurate and in one place. |
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HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs |
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Healthy Live Info/Chronic Kidney Disease web site |
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Home Dialysis Central web site |
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Home Dialyzors United web site |
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Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD) web site |
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Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid |
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InteliHealth is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare) |
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Kidney & Urology Foundation of America (KUFA) web site |
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The Kidney Foundation of Canada web site |
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KidneysDoThat.org web site |
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Kidney Smart web
site from DaVita |
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Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential" |
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Lupus Foundation of America web site |
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National Center for Complementary and Alternative Medicine (CAM) web site |
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National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site |
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National Institute of Health NIHSeniorHealth.gov web site |
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National Kidney Federation (UK site) web site |
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National Kidney Foundation (US site) web site |
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National Kidney and Urologic Diseases Information Clearinghouse web site |
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National Patient Safety Agency web site (UK organization) |
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Patient Advocate Foundation (PAF) web site |
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Polycystic Kidney Research Foundation web site |
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Renal Support Network (RSN) web site |
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Restless Legs Syndrome Foundation web site |
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Stop Medicare Fraud.gov web site |
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Transplant Living web site |
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| PRODUCTS |
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| STATISTICS |
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Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS) |
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Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site |
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US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2020 Objectives |
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statehealthfacts.org - your source for state health data |
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| UPCOMING EVENTS |
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National Kidney Foundation (NKF) Health Screening Schedule |
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Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261 |
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Renal Support Network (RSN) Renal Events Calendar |
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Complimentary Audio Conferences - Audio conferences from the HealthWell Foundation® web site |
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| YOUR WORDS |
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Fifteen dialysis cartoons by Lori James-Hartwell |
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Your Words feature on RenalWEB |
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| RELATED WEB PAGES & TOPICS |
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A Full and Comfortable Life Topic Page from RenalWEB Continually Updated! |
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Dialysis and AAMI Standards - a book of standards and recommended practices for dialysis that can be ordered from the Association for the Advancement of Medical Instrumentation (AAMI) |
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National Guideline Clearinghouse - evidence-based clinical practice guidelines |
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| INPUT / SUGGESTIONS |
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E-mail to RenalWEB on the Patient Education Resources Page |
Except where noted, no information within the RenalWEB web site can be copied, duplicated, or reproduced in any form without the express written consent of RenalWEB.
