RenalWEB Home Page
Last Updated 05/10/15

Hemodialysis Info

Initially, the diagnosis of end-stage renal disease (ESRD) and the prospect of relying on dialysis treatments for survival are almost always devastating and overwhelming for an individual and their family. However, once people have had time to accept and to begin to deal with the necessary life changes, dialysis-related educational resources are a necessity for attaining a sense of control in one's life.  Gradually increasing feelings of confidence and empowerment replace the initial confusion and despair when educational resources are readily available.

The Internet has a wealth of information available for dialysis patients with a few clicks of a mouse. Information resources range from basic explanations in layman's terms of dialysis procedures and technology to search engines for browsing through the 11 million articles in the National Library of Medicine's MEDLINE database.  If you take a little time to become familiar with using PubMed, you can research the latest medical information on any topic of your choice.

In an effort to make finding information easier, RenalWEB has organized many of these resources into groupings that we hope you will find useful. You will find eighteen categories listed to the left of this paragraph. With over 200 links, even the seasoned veterans will find new and interesting information. For articles, ideas, and sources to answer some of the questions you may have on how to make life with dialysis more comfortable and fulfilling, please visit RenalWEB's A Full and Comfortable Life page.

This listing will be continuously updated as more resources become available on the Internet. Please contact us to suggest web-based resources that you have found useful. If you find this information useful and would like to share it with others, print this flyer and distribute it in your dialysis facility.

Warning:  Changes should never be made in a patient's treatment or care based solely on the information found here.  Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made.  All medical and therapeutic decisions must come from a qualified health care provider.  Read RenalWEB's Legal Disclaimer before proceeding.


  NEWS AND LATEST ARTICLES
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QuickStats: Percentage of Adults Who Did Not Take Medication as Prescribed to Save Money - Item from the CDC's MMWR. - May 8, 2015

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Fall-Related Deaths Nearly Doubled for U.S. Seniors Since 2000 - Article from HealthDay. - May 7, 2015

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Kidney Education Material Available in 19 Languages - Posting from the ISN-Blog. - May 5, 2015

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Patient and Health Care Professional Decision-Making to Commence and Withdraw from Renal Dialysis: A Systematic Review of Qualitative Research - CJASN Express abstract. - May 5, 2015

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Risk Factors for Foot Ulceration and Lower Extremity Amputation in Adults with End-Stage Renal Disease on Dialysis: a Systematic Review and Meta-Analysis - Advance Access Abstract from NDT - May 5, 2015

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The Three Deadliest Drugs in America Are All Totally Legal - Article from Vox. - May 5, 2015

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Self-Reported Medication Adherence in Patients with End-Stage Kidney Disease Undergoing Online-Hemodiafiltration - Early View abstract from Journal of Renal Care. - May 4, 2015

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Overweight Diabetes Patients Outlive Slimmer Ones - Article from Reuters. Abstract and Summary for Patients from Annals of Internal Medicine.- May 4, 2015

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For-Profit/Not-for-Profit Healthcare: What's the Difference? - Article by Dr. Robert J. Rubin from MedPage Today. - May 1, 2015

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How Sick Are Dialysis Patients Undergoing Cholecystectomy?: Analysis Of 92,672 Patients from the ACS NSQIP Database - In Press, Accepted Manuscript from The American Journal of Surgery. - April 30, 2015

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Early Tight Blood Glucose Control Reduces Eye Surgeries in People with Type I Diabetes - Press release from the National Institute of Diabetes and Digestive and Kidney Diseases. Abstract from the New England Journal of Medicine. Article from HealthDay. - April 30, 2015

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Knowledge Is Power for Patients With Heart Failure - April 29, 2015

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Patient Portals: Essential, but Underused by Physicians - Article from Medical Economics. - April 29, 2015

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Church-based Diabetes Education Program Leads to Healthier Lifestyles among Latino Adults - Press release from the University of Chicago Medical Center. - April 28, 2015

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High Blood Glucose Independent of Pre-Existing Diabetic Status Predicts Mortality in Patients Initiating Peritoneal Dialysis Therapy - Online First abstract from International Urology and Nephrology. - April 2015

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What Do Hospital Rating Systems Really Measure? - Article from Healthcare DIVE. - April 27, 2015

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Video on Failing Kidneys and Different Treatment Options - Posting from the Precious Bodily Fluids blog. - April 26, 2015

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Perceived Frailty and Measured Frailty among Adults Undergoing Hemodialysis: a Cross-Sectional Analysis - Provisional abstract and full-text article (14-page pdf) from BMC Geriatrics. - April 24, 2015

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Medicare and Medicaid Programs; Application by the American Association of Diabetes Educators for Continued Deeming Authority for Diabetes Self-Management Training - Proposed notice from The Federal Register. - April 24, 2015

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A Sad Direction in Home Dialysis Research: The FHN 2 Nocturnal Survival Analysis - Blog posting by Dr. John Agar from Home Dialysis Central. - April 23, 2015
Editor's note: When the AJKD Article in Press abstract appeared on April 9th, I immediately e-mailed lead author Dr. Michael Rocco and requested the full-text article. I wanted to read the entire document before commenting. At the same time I specifically asked him why the "elite" of U.S. nephrology would reach such a conclusion from such an underpowered study and then publish it in a top journal. When he did not reply, I repeated the request. I have still not heard from him.

I fear this awful paper will be used to justify the denial of patient requests for home and nocturnal hemodialysis.

In my opinion, this paper serves primarily to protect U.S. nephrologists' legal positions and business interests.

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Biosimilars: Does a Rose by Any Other Name Smell As Sweet? - Posting from the Renal Fellow Network blog. - April 23, 2015

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Organ Harvest Documentary Wins Prestigious Peabody Prize - Article and video from Epoch Times. - April 23, 2015

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Self-Motivation Is Associated With Phosphorus Control in End-Stage Renal Disease - Article in Press abstract from Journal of Renal Nutrition. - April 22, 2015

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Antidiabetic Therapy in End-Stage Renal Disease - Early View abstract from Seminars in Dialysis. - April 21, 2015

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The Myths and Facts about Donating Organs - Interview from St. Louis Public Radio. - April 21, 2015

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PCORI Board Approves $120 Million for New Patient-Centered Research Projects - Press release from the Patient-Centered Outcomes Research Institute. - April 21, 2015

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The Body's Clock Key to Regulating Glucose Levels - (Registration required, but free.) Article from MedPage Today. - April 16, 2015

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Only 251 Hospitals Score Five Stars In Medicare's New Ratings - Article from Kaiser Health News. - April 16, 2015

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Screening for Type 2 Diabetes Mellitus: A Systematic Review for the U.S. Preventive Services Task Force - Free, full-text, Online First review article from Annals of Internal Medicine. - April 14, 2015

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Diabetes More Likely in Children in Stressful Homes - (Registration required, but free.) Article from MedPage Today. - April 13, 2015

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Kids with Type I Diabetes Almost 5 Times As Likely to Be Admitted to Hospital - April 13, 2015

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Medical Costs Hit Residents of Texas, Florida Especially Hard, Study Finds - Article from HealthDay. - April 10, 2015

blue ball The Newsroom of the National Kidney Foundation web site
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Latest Dialysis News Stories from  Yahoo   Continually Updated!
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Latest Transplant News Stories from Yahoo  Continually Updated!
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  ESSENTIAL INFORMATION
blue ball Patient Rights and Responsibilities - from the Kidney School web site
blue ball Patient Rights - 1-page pdf from the Northwest Renal Network
A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland
One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site.
Summary Report of the End Stage Renal Disease (ESRD) Networks’ Annual Reports 2005
Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) -USRDS Presentations & Posters, 2013 Researcher's Guide and the 2014 USRDS annual report - from the United States Renal Data System (USRDS) web site

AAKP Patient Plan©: Four phase education plan from the American Association of Kidney Patients (AAKP) web site
Phase 1 Book
Phase 2 Book
Phase 3 Book
Phase 4 Book

blue ball A-Z Patient Education Library from the Northwest Renal Network’s Patient Education and Orientation Learning and Action Network (LAN) 
Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site
The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site
End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish)
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Financial Help for Treatment of Kidney Failure from the NKUDIC web site  
Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site 
Northwest Renal Network December Newsletter on Treatment Options - 2-page pdf from the NW Renal Network - December 2013
Dialysis Saves Lives is a 6 minute video to educate patients about dialysis from Fresenius Medical Care and the National Kidney Foundation (NKF) - May 2011
The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Living with Kidney Disease DVD - from Kidney Research UK web site
Book: Help, I Need Dialysis! How to have a good future with kidney disease by Dori Schatell, MS and Dr. John Agar © 2012
How to Have a Good Future with Kidney Disease a Life Options CKD Patient Education Toolkit - 2011
The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Kidney Diseases Dictionary from the NIDDK  web site
The Drug Monitor - essential clinical pharmacology / pharmacy information
Know Your Treatment Options, visit Kidney Directions from Baxter Healthcare
Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired).
Medicare Basics - from the Medicare.gov
Medicare for Children with Chronic Kidney Disease from the Medicare web site
The Medicare-Medicaid Relationship (pdf format requires Adobe Acrobat reader) from the Medicare web site
CMS Center for Medicare & Medicaid Innovation from the Medicare web site
Your Medicare Rights and Protections (pdf format requires Adobe Acrobat reader) from the Medicare web site
Medicare-Approved Drug Discount Cards
    Medicare Plan Finder
    Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader)
    Making It Easier At the Pharmacy Counter
Medicare Telehealth Services from the Medicare web site
Health Information Frequently Asked Questions from NIDDK web site
Complaint Process for Medicare Beneficiaries from the Office of Inspector General
Intensive Intervention With The Non-Compliant Patient (requires Microsoft Word™) from the End Stage Renal Disease Network 14 web site
Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book
Family Reunion Health Guide (pdf) resource from the National Kidney Disease Education Program.
Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site
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  GENERAL RESOURCES
E-Kidney - The online newsletter of the National Kidney Foundation (NKF)
Kidney Beginnings: A Patient's Guide - brochure from the American Association of Kidney Patients (AAKP) web site
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Current Issue of At Home with AAKP an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP)
The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site
AAKP Public Policy from the American Association of Kidney Patients (AAKP)
aakpRenalife a magazine for dialysis patients from the American Association of Kidney Patients (AAKP)
A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999
Adherence Toolkit - Resources from The Renal Network, Inc.
Alternative Remedies from the Kidney School web site
BenefitsCheckUpRx - this fast, free, and confidential service will help you or someone you love find public and private programs to save the most money on prescription drugs
Books and pamphlets available from The Renal Network (ESRD Networks 9/10)
CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site
Clinical Trials: Kidney Disease from the Center Watch web site
Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure
Diabetes HealthSense provides easy access to resources to help you live well and meet your goals—whether you have diabetes or are at risk for the disease.rom the National Diabetes Education Program web site
The Diabetes Quiz web site
"Dialysis Answers” Fact Sheets - educational resources from Life Options web site
Dialysis Facility Compare feature from Medicare
Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated!
DPC Education Center - dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers, and developing favorable public policy solutions.
Dialysis, the Flu, and You from Home Dialysis Central web site

Dialysis Treatment Options Patient Education Poster - 1-page pdf from Northwest Renal Network

Dialysis Options Video from the Medical Education Institute's Lets Talk About... LifeOptions page

Emergency Preparedness Resource   from ESRD Network #4

Engaging Patients in Care Design - from Hospital & Health Networks

Self Management UK is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives.
Family Reunion Health Guide (pdf) from the National Kidney Disease Education Program web site

Flyer: Taking Care of What Matters — You - 1-page pdf from Northwest Renal Network.

Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site
Health Library from the Renal Support Network (RSN) web site
Health, United States from the Centers for Disease Control (CDC)
Heart Health, Blood Pressure, and Fluids from the Kidney School web site

Help! I Need Dialysis! -- E-book by Dori Schatell, John Agar

High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site
Hospital Compare from the U.S. Department of Health & Human Services web site
How to protect yourself in the hospital from Home Dialysis Central web site

How To Use the Data.Medicare.Gov Websites - recorded webinar from the Centers for Medicare & Medicaid Services (CMS)

How to Weather Winter Storms from Fresenius Medical Care
I Have Diabetes - from the National Diabetes Education Program web site
InteliHealth  is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare)
Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Keeping Kidney Patients Safe web site
KEY - Kidney Education and You - free kidney education classes from the DaVita web site
Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site
Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site
Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK)
Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules and Audio Books
KidneyTalk from the Renal Support Network web site

Knowledge is Power Kits from the Heartland Kidney Network - February 2013
My Kidney Kit - My Clinic Plan
My Kidney Kit - Introduction
My Kidney Kit - My Treatment
My Kidney Kit - My Plan
My Kidney Kit - My Network
My Kidney Kit - My Information
My Kidney Kit - My Life
My Kidney Kit - My Choices

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new Know Your Treatment Options - Graphic from the National Renal Administrators Association.

A Leadership Resource for Patient and Family Engagement Strategies - from the Hospitals in Pursuit of Excellence web site
Live & Give Newsletter - latest bi-annual update helping educate and motivate people living with chronic kidney disease from Renal Support Network
Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site
Medical Nutrition Therapy Services from Medicare.gov
Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site
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My Life, My Dialysis Choice - KidneyTalk podcast from Renal Support Network

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National Institute of Diabetes and Digestive Diseases (NIDDK) Publications in English and Spanish

  • Chronic Kidney Disease and Medicines (Brochure) (EnglishSpanish)
  • Is My Child At Risk for Kidney Disease? (EnglishSpanish)
  • What I need to know about Kidney Failure and How It's Treated (English+)
National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site
NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications.
PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference.
The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care
NIDDK Publications On-line from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

Pair Up Health Fact Sheets - September 2011
Your Health by the Numbers
Diabetes and Your Kidneys
High Blood Pressure and Your Kidneys

Patient & Family Council information from the National Kidney Foundation (NKF)

Type 2 Diabetes Patient Resources - Trusted online resources from Medpage Today.

Preventive Services Educational Resource Web Guide from the Centers for Medicare & Medicaid Services web site
Publications from the Kidney Foundation of Canada web site
Quackwatch  - A Guide to Health Fraud, Quackery, and Intelligent Decisions.
Take Six Steps that Count to Fight Kidney Disease - article from the American Kidney Fund - April 2008
Understanding Your Kidneys - 8-page (pdf) issue of Kidney Health. - August 2010
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What I Have Learned And How It Can Help - book by dialysis patient Elliott B. Brown

What is Chronic Kidney Disease? from the Nephron Information Center web site
Working with Your Healthcare Team - from the Kidney School web site
Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site
Your Kidneys and How They Work from NIDDK web site
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  HEMODIALYSIS INFORMATION
Latest Scientific Journal Articles on Hemodialysis Adequacy
Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader)
Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site
A Patient Guide to Machine Alarms (pdf format requires Adobe Acrobat Reader) from the Northwest Renal Network web site
Hemodialysis Dose and Adequacy from the NKUDIC web site

A Patient Guide to Machine Alarms - 1-page pdf from the Northwest Renal Network.

Understanding the Kidney Machine - 1-page pdf from the Northwest Renal Network.

Kidney Directions from Baxter Healthcare
Find a home dialysis center in your area from the Home Dialysis Central web site

Live healthier, better, longer with more frequent home hemodialysis an educational booklet that outlines the documented benefits and risks of home and more frequent home hemodialysis therapy from the NxStage web site

Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated!
Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated!
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  PERITONEAL DIALYSIS INFORMATION
Latest Scientific Journal Articles on Peritoneal Dialysis Adequacy
Adequate Peritoneal Dialysis Therapy Topic Page from RenalWEB Continually Updated!
Fact Sheets from ANNA: Peritoneal Dialysis and Pediatric ESRD: Peritoneal Dialysis (pdf format requires Adobe Acrobat reader)
Hernias and peritoneal dialysis: What you need to know - from the Home Dialysis Central web site
How you look on PD: Coping with body image changes - from the Home Dialysis Central web site
International Society for Peritoneal Dialysis  Training Plans (pdf), and Peritoneal Dialysis Training Video
Peritoneal Dialysis (PD) Catheter Placement: What to Expect - from Home Dialysis Central web site
Peritoneal Dialysis Dose and Adequacy from the NKUDIC web site
Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site
Saying yes to PD: separating myth from fact - page down to view article from Home Dialysis Central web site
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  VASCULAR ACCESS INFORMATION
Latest Scientific Journal Articles on Vascular Access
Fistula First web site and Patient Section

Patient Pocket Guide: 6 Tips to Prevent Dialysis Infections - Download file from the Centers for Disease Control and Prevention. - October 2013

Let's Talk About Fistulas - 3 minute video from the Fistula First Breakthrough Iniiative (web site)

Video: Dialysis Patients Speak: a Conversation about the Importance of AV Fistulas - 12-minute video on YouTube produced in 2005 for the ESRD Network of New England. - December 13, 2012

Vascular Access Patient Education "Electronic Notebook" (pdf format which requires Adobe Acrobat reader) from the ESRD Network # 14 web site
Frequently Asked Questions about the ArterioVenous Fistula (pdf) and Fístula Arteria Venosa En Español (pdf) from the Northwest Renal Network web site

Helping the Patient Make Healthy Fistula Choices - educational Web-EX Series from The Renal Network.

Understanding Your Hemodialysis Access Options from the American Association of Kidney Patients (AAKP) web site
Just the Facts: Vascular Access and Información esencial: Acceso vascular (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Lifeline for a Lifetime – Your Vascular Access from the ESRD Network Coordinating Center (NCC) web site

Poster: Protect Your Access – It's Your Lifeline! 1-page pdf from the Northwest Renal Network web site

Caring For & Developing Your New Fistula (pdf) from the Northwest Renal Network web site
Vascular Access for Hemodialysis from the NKUDIC web site
Videos in Clinical Medicine: Placement of an Arterial Line from The New England Journal of Medicine (NEJM)
How Do I Look?: Taking the fear out of AV Fistula Placement - (pdf) from The Renal Network web site
3 Ps for Vascular Access Success - (pdf) Handbook from The Renal Network, Inc. - November 2010
Keeping Your Access Uncovered - (2-page pdf) from the Northwest Renal Network
Blood Pump Speed and Your Dialysis Fistula - Article from Home Dialysis Central. - March 2010.

Self-Cannulation - Video via Renal Fellow Network web site

RenalWEB's Vascular Access Internet Resources Page Continually Updated!
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  TRANSPLANT & BIOTECHNOLOGY
Latest Scientific Journal Articles on Kidney Transplantation
2013 OPTN/SRTR Annual Report from the Scientific Registry of Transplant Recipients web site
Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader)
How the Transplant Waiting List Works - Article from KidneyTimes
KidneyLink+ - created by maintained by the PKD Foundation

Kidney Transplantation - Podcasts from The Renal Support Network

National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site

Organ Donation Toolbox - from the Organ Donation and Transplantation Alliance web site

TransWeb (All about transplantation and donation)
US Government web site on  organ donation
Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site
Medicare Solutions - All you need to know about being an organ donor - powered by HealthPlanOne
blue ball Transplant Living from the United Network for Organ Sharing (UNOS) web site
Working with your Healthcare Team; Overcoming Barriers to Transplant (EnglishSpanish) from the End Stage Renal Disease Network of New York web site
Kidney Transplantation Topic Page from RenalWEB Continually Updated!
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  DIET
Latest Scientific Journal Articles on Nutrition
Chronic Kidney Disease: Nutrition Basics - Free, Full-text Article from Journal of Renal Nutrition - July 2011
Cookbooks for CKD Patients—2009 Update
DaVita Diet Helper from the DaVita web site

Delicious! - AAKP recipe cookbook

Diet Information from the Kidney Patient's Guide (UK site) web site
Eat Right To Feel Right On Hemodialysis from the NKUDIC web site
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Food Safety for Transplant Recipients - from the U.S. Food and Drug Administration

Home-Delivered Meal Options for Chronic Kidney Disease Patients full-text article from Journal of Renal Nutrition - September 2012

Kidney Community Kitchen from the Kidney Foundation of Canada Helps Dialysis Patients with Complex Burden of Diet Planning

Kidney-Friendly Frozen Meal Tips and Suggestions “In A Pinch” full-text article from Journal of Renal Nutrition - September 2012
Kidney Kitchen from the National Kidney Foundation web site

Mom's Meals - home meal delivery for many with stage 5 kidney disease

My Food Coach from the National Kidney Foundation web site
Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Nutrition and Fluids for People on Dialysis from the Kidney School web site
Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient)
RenalWEB's Well Nourished Patient - Internet Resources Continually Updated!

Spice it up! - Renal recipe web site from Canada. Spice it up! booklets are available in English and French, but they are not for sale. They are distributed by renal dietitians to dialysis patients (free of charge).

Truly Tasty - Renal cookbook from Ireland
Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site
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  K/DOQI™ -  Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" )

K/ DOQI Main Page on the National Kidney Foundation web site

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  PUBMED SEARCHES (National Library of Medicine's MEDLINE Database)
PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed.
hemodialysis Continually Updated!
adequacy AND hemodialysis Continually Updated!
peritoneal dialysis Continually Updated!
vascular access AND dialysis Continually Updated!
exercise and dialysis Continually Updated!
renal transplantation AND dialysis Continually Updated!
MEDLINE / Pubmed Information from the National Library of Medicine
Also consider using Yahoo to locate web sites and web pages on any topic of your choice.


  DISCUSSION FORUMS
Dialysis Nursing Discussion Forum on RenalWEB
HealCam - from MedGadget.
Nephkids - a cyber-support group for Parents of Children with Kidney Disease
Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient)
Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten)
Vascular Access Discussion Forum on RenalWEB
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  ORGANIZATIONS AND GOVERNMENT AGENCIES

American Association of Kidney Patients (AAKP) web site

American Diabetes Association (ADA) web site

American Kidney Fund (AKF) web site

B.Braun Avitum web site

BestHealth web site

Caregiver Action Network (CAN) web site

Coalition for Supportive Care of Kidney Patients web site
Congressional Kidney Caucus web site
DaVita Patient Citizens from the DaVita web site
Dialysis/Transplant Patient web sites
The Disabled Living Foundation web site
The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site
European Kidney Patients' Federation web site (UK version)
Everyday Choices for A Healthier LIFE web site

Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks

iHealthRecord web site is a no cost, secure and confidential interactive record that lets you keep all your health information organized, accurate and in one place.
HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs
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Healthy Live Info/Chronic Kidney Disease web site

Home Dialysis Central web site
Home Dialyzors United web site
Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD) web site

Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid

InteliHealth  is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare)
Kidney & Urology Foundation of America (KUFA) web site

The Kidney Foundation of Canada web site

KidneysDoThat.org web site

Kidney Smart web site from DaVita

Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential"

Lupus Foundation of America web site

National Center for Complementary and Alternative Medicine (CAM) web site

National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site

National Institute of Health NIHSeniorHealth.gov web site

National Kidney Federation (UK site) web site

National Kidney Foundation (US site) web site

National Kidney and Urologic Diseases Information Clearinghouse web site

National Patient Safety Agency web site (UK organization)

Patient Advocate Foundation (PAF) web site

Polycystic Kidney Research Foundation web site

Renal Support Network (RSN) web site

Restless Legs Syndrome Foundation web site

Stop Medicare Fraud.gov web site

Transplant Living web site

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  PRODUCTS
 
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  STATISTICS
Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS)
Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site
US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2020 Objectives
statehealthfacts.org - your source for state health data
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  UPCOMING EVENTS
National Kidney Foundation (NKF) Health Screening Schedule
Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261
Renal Support Network (RSN) Renal Events Calendar
Complimentary Audio Conferences - Audio conferences from the HealthWell Foundation® web site
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  YOUR WORDS
Fifteen dialysis cartoons by Lori James-Hartwell
Your Words feature on RenalWEB
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  RELATED WEB PAGES & TOPICS
A Full and Comfortable Life Topic Page from RenalWEB Continually Updated!
Dialysis and AAMI Standards - a book of standards and recommended practices for dialysis that can be ordered from the Association for the Advancement of Medical Instrumentation (AAMI)
National Guideline Clearinghouse - evidence-based clinical practice guidelines
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  INPUT / SUGGESTIONS
E-mail to RenalWEB on the Patient Education Resources Page
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