RenalWEB Home Page
Last Updated 11/22/14

Hemodialysis Info

Initially, the diagnosis of end-stage renal disease (ESRD) and the prospect of relying on dialysis treatments for survival are almost always devastating and overwhelming for an individual and their family. However, once people have had time to accept and to begin to deal with the necessary life changes, dialysis-related educational resources are a necessity for attaining a sense of control in one's life.  Gradually increasing feelings of confidence and empowerment replace the initial confusion and despair when educational resources are readily available.

The Internet has a wealth of information available for dialysis patients with a few clicks of a mouse. Information resources range from basic explanations in layman's terms of dialysis procedures and technology to search engines for browsing through the 11 million articles in the National Library of Medicine's MEDLINE database.  If you take a little time to become familiar with using PubMed, you can research the latest medical information on any topic of your choice.

In an effort to make finding information easier, RenalWEB has organized many of these resources into groupings that we hope you will find useful. You will find eighteen categories listed to the left of this paragraph. With over 200 links, even the seasoned veterans will find new and interesting information. For articles, ideas, and sources to answer some of the questions you may have on how to make life with dialysis more comfortable and fulfilling, please visit RenalWEB's A Full and Comfortable Life page.

This listing will be continuously updated as more resources become available on the Internet. Please contact us to suggest web-based resources that you have found useful. If you find this information useful and would like to share it with others, print this flyer and distribute it in your dialysis facility.

Warning:  Changes should never be made in a patient's treatment or care based solely on the information found here.  Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made.  All medical and therapeutic decisions must come from a qualified health care provider.  Read RenalWEB's Legal Disclaimer before proceeding.


  NEWS AND LATEST ARTICLES
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National Diabetes Month — November 2014 - November 21, 2014

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Diabetes Self-Management Education and Training Among Privately Insured Persons with Newly Diagnosed Diabetes — United States, 2011–2012 - Article from Morbidity and Mortality Weekly Report. - November 21, 2014

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Some Type 2 Diabetes Patients Gain No Benefit From Exercise - November 20, 2014

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Glycemic Control and Excess Mortality in Type 1 Diabetes - Abstract from the New England Journal of Medicine. Article from HealthDay. - November 20, 2014

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Only Half of Patients Take Their Medications as Prescribed - November 20, 2014

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Eighty Percent of Kidney Dialysis Patients Unprepared for Natural Disaster or Emergency - Press release from Loyola University Health System. - November 19, 2014
Editor's comment: Are patient groups satisfied with these numbers?

What information does the Kidney Community Emergency Response (KCER) web site give out to dialysis patients, their families, and the public during weater-related disasters?

Weather reports. Quite an accomplishment for this largely tax-payer funded organization. Good luck trying to find out what clinics are closed, open, or accepting patients after hours.

Information provides power and money. KCER hoards information during disasters. This benefits those companies that seek to profit from controlling vulnerable people during disasters.

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How Are Organs Chosen for Transplant? - Article from the BBC. - November 19, 2014

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Video: Using Telehealth to Improve Medication Adherence - November 19, 2014

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New World Kidney Day Website Is Launched - November 18, 2014

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Nearly 3 in 10 Americans With Diabetes Don't Know It: Study - Article from HealthDay. - November 18, 2014

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Home Dialysis May Be Better Than In-Center Hemodialysis - News release via Medindia. - November 16, 2014

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Hurricane Sandy Stranded Dialysis Patients. Lessons Learned? - Articles from NPR and HealthDay. - November 13, 2014
Editor's note: During the Sandy disaster, the Kidney Community Response Coalition (KCER) hoarded information from patients and the public. This allows dialysis providers to maintain its control of patients with private insurance.

What people want most during a disaster is... information.

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Patients Should Share Accountability for Own Health - (Registration required, but free.) Article from MedPage Today. - November 13, 2014

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National Diabetes Education Program Releases Guiding Principles for Diabetes Care - Press release from the National Institutes of Health. Guiding Principles from the National Diabetes Education Program. - November 12, 2014

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Health Insurance Marketplace Offers Tool to Help Consumers Review Their Plan Options for 2015 - CMS press release. - November 9, 2014

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Four Pennsylvania Ambulance Passengers (Dialysis Patients) Charged with Fraud for Accepting Kickbacks - Article from the Philadelphia Inquirer. - November 7, 2014

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Dietary and Fluid Restrictions in CKD: A Thematic Synthesis of Patient Views From Qualitative Studies - Article in Press abstract from American Journal of Kidney Diseases. - November 6, 2014

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Dexcom's Continuous Glucose Monitor Now with Artificial Pancreas Algorithm - November 6, 2014

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Alliance Issues Training Video on Organ Donation, Transplantation - 30-minute video (click "View Video" link) from the Organ Donation and Transplantation Alliance. - November 2014

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Internet Claims on Dietary and Herbal Supplements in Advanced Nephropathy: Truth or Myth - Issue in Progress abstract from American Journal of Nephrology. - November 6, 2014

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Blood-Thinner Pradaxa: What You Should Know - November 5, 2014

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Request for Comments: FDA Activities for Patient Participation in Medical Product Discussions - Notice from the Federal Register. - November 4, 2014

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Serum Phosphorus Levels and Pill Burden Are Inversely Associated with Adherence in Patients on Hemodialysis - Free, Full-Text Article from NDT - November 2014

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Free, Full-Text Articles from American Journal of Kidney Diseases - November 2014

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Early Onset Type 2 Diabetes: Risk Factors, Clinical Impact and Management - (Registration required, but free.) Article from Therapeutic Advances in Chronic Diseases via Medscape Nephrology. - November 2014

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New Diabetes Combo Approved - October 30, 2014

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Epidemiology of Medication Related Problems in Children with Kidney Disease - Free, full-text, Online First article from Pediatric Nephrology. - October 29, 2014

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Initial Choice of Oral Glucose-Lowering Medication for Diabetes Mellitus:  A Patient-Centered Comparative Effectiveness Study - Online First abstract from JAMA Internal Medicine. - October 27, 2014

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Diabetes Patients Report Better Outcomes with Improved Physician Accessibility - October 27, 2014

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NxStage Director of Public Policy Honored for Dedication to Patient Advocacy - October 24, 2014

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Conservative Care – A Conversation To Be Had - Posting from the eAJKD blog. - October 23, 2014

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Summary Adherence Estimates Do Not Portray the True Incongruity between Drug Intake, Nurse Documentation and Physicians' Orders - Provisional abstract and full-text article (23-page pdf) from BMC Nephrology. - October 23, 2014

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Association Between Hospital Conversions to For-Profit Status and Clinical and Economic Outcomes - Free, full-text article from the Journal of the American Medical Association. - October 22/29, 2014
"Hospital conversion to for-profit status was associated with improvements in financial margins but not associated with differences in quality or mortality rates or with the proportion of poor or minority patients receiving care."

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Americans Show Distrust of Medical Profession in Survey - Article from HealthDay. Free, full-text perspective piece from the New England Journal of Medicine. - October 22, 2014
"The United States is tied for 24th place in terms of the proportion of adults who agree with the statement, “All things considered, doctors in [your country] can be trusted.”"

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Analysis Reveals Large Increase in Hospitalizations in Recent Years Among Older Patients Prescribed Opioids - Free, Full-Text Article from the Journal of the American Medical Association - October 22/29, 2014

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U.S. Ranks Last Among Wealthy Nations in Access to Health Care - Article from HealthDay. Free, full-text perspective piece from the New England Journal of Medicine. - October 22, 2014

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Neuropathy: Learn the Warning Signs & Seek Help - KidneyTalk podcast from Renal Support Network. - October 21, 2014

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Portable and Wearable Dialysis Devices for the Treatment of Patients with End-Stage Kidney Failure: Wishful Thinking or Just over the Horizon? - Free, full-text, Online First review article from Pediatric Nephrology. - October 21, 2014

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Patient Engagement and Patient-Centered Care in the Management of Advanced Chronic Kidney Disease and Chronic Kidney Failure - Provisional abstract and full-text article (16-page pdf) from Canadian Journal of Kidney Health and Disease. - October 21, 2014
Editor's note: Perhaps the most telling statement of this review is this:
"LIMITATIONS: A limitation of this review is the absence of a substantial pre-existing literature on this topic."

Nephrologists, the alchemical gods of internal medicine, have little interest in practicing this kind of medicine. Patient leaders should force nephrology to answer for decades of wrong thinking, hubris, and self-serving financial interests.
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Communication About Serious Illness Care Goals - Online First abstract from JAMA Intenal Medicine. - October 20, 2014
"An understanding of patients' care goals in the context of a serious illness is an essential element of high-quality care, allowing clinicians to align the care provided with what is most important to the patient."

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In UK, NHS Trial of Medical Video Conferencing for Patients on Dialysis - Video from BBC Health. - October 17, 2014

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Citizens against Government Waste Releases Poll Results regarding Use of Biosimilar Drugs - Press release. - October 16, 2014

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Medicare Open Enrollment Begins Oct. 15 - October 15, 2014

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Significant Racial Disparities Identified in Diabetes Related Amputations - (3-page pdf) Press release and report (70-page pdf) from The Dartmouth Atlas of Health Care. Article from MedPage Today (registration required, but free.) - October 14, 2014

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Major Advance for Diabetes Stem Cell Therapy? - (Registration required, but free.) Article from MedPage Today. - October 14, 2014

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National Kidney Foundation Launches Interactive Nutrition Portal My Food Coach - October 14, 2014

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Organ Procurement and Transplantation Network (OPTN) Estimated Post Transplant Survival Calculator - An Estimated Post Transplant Survival (EPTS) score is assigned to all adult candidates on the kidney waiting list and is based on four factors: - October 2014

  1. Candidate time on dialysis
  2. Current diagnosis of diabetes
  3. Prior solid organ transplants
  4. Candidate age
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Study Protocol — Your Path to Transplant: a Randomized Controlled Trial of a Tailored Computer Education Intervention to Increase Living Donor Kidney Transplant - Provisional abstract and full-text article (29-page pdf) from BMC Nephrology. - October 14, 2014

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Personalized Treatment for Stress-Related Diabetes - October 14, 2014

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A Creative Way to Find a Home HD Care Partner - Blog posting by Lana Schmidt. - October 9, 2014

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Symptom Clusters Predict Mortality Among Dialysis Patients in Norway: A Prospective Observational Cohort Study - Abstract from Journal of Pain and Symptom Management. - May 22, 2014

blue ball The Newsroom of the National Kidney Foundation web site
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Latest Dialysis News Stories from  Yahoo   Continually Updated!
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Latest Transplant News Stories from Yahoo  Continually Updated!
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  ESSENTIAL INFORMATION
blue ball Patient Rights and Responsibilities - from the Kidney School web site
blue ball Patient Rights - 1-page pdf from the Northwest Renal Network
A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland
One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site.
Summary Report of the End Stage Renal Disease (ESRD) Networks’ Annual Reports 2005
Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) -USRDS Presentations & Posters, 2013 Researcher's Guide and the 2014 USRDS annual report - from the United States Renal Data System (USRDS) web site

AAKP Patient Plan©: Four phase education plan from the American Association of Kidney Patients (AAKP) web site
Phase 1 Book
Phase 2 Book
Phase 3 Book
Phase 4 Book

blue ball A-Z Patient Education Library from the Northwest Renal Network’s Patient Education and Orientation Learning and Action Network (LAN) 
Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site
The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site
End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish)
Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site 
Northwest Renal Network December Newsletter on Treatment Options - 2-page pdf from the NW Renal Network - December 2013
Dialysis Saves Lives is a 6 minute video to educate patients about dialysis from Fresenius Medical Care and the National Kidney Foundation (NKF) - May 2011
The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Living with Kidney Disease DVD - from Kidney Research UK web site
Book: Help, I Need Dialysis! How to have a good future with kidney disease by Dori Schatell, MS and Dr. John Agar © 2012
How to Have a Good Future with Kidney Disease a Life Options CKD Patient Education Toolkit - 2011
The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Kidney Dialysis Dictionary from the ESRD Network 11  web site
Kidney Diseases Dictionary from the NIDDK  web site
The Drug Monitor - essential clinical pharmacology / pharmacy information
Know Your Treatment Options, visit Kidney Directions from Baxter Healthcare
Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired).
Medicare Basics - from the Medicare.gov
Medicare for Children with Chronic Kidney Disease from the Medicare web site
The Medicare-Medicaid Relationship (pdf format requires Adobe Acrobat reader) from the Medicare web site
CMS Center for Medicare & Medicaid Innovation from the Medicare web site
Your Medicare Rights and Protections (pdf format requires Adobe Acrobat reader) from the Medicare web site
Medicare-Approved Drug Discount Cards
    Medicare Plan Finder
    Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader)
    Making It Easier At the Pharmacy Counter
Medicare Telehealth Services from the Medicare web site
Financial Help for Treatment of Kidney Failure from NIDDK web site
Complaint Process for Medicare Beneficiaries from the Office of Inspector General
Intensive Intervention With The Non-Compliant Patient (requires Microsoft Word™) from the End Stage Renal Disease Network 14 web site
Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book
Family Reunion Health Guide (pdf) resource from the National Kidney Disease Education Program.
Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site
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  GENERAL RESOURCES
E-Kidney - The online newsletter of the National Kidney Foundation (NKF)
Kidney Beginnings: A Patient's Guide - brochure from the American Association of Kidney Patients (AAKP) web site
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Current Issue of At Home with AAKP an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP)
The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site
AAKP Public Policy from the American Association of Kidney Patients (AAKP)
aakpRenalife a magazine for dialysis patients from the American Association of Kidney Patients (AAKP)
A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999
Adherence Toolkit+ - Resources from The Renal Network, Inc.
Alternative Remedies from the Kidney School web site
BenefitsCheckUpRx - this fast, free, and confidential service will help you or someone you love find public and private programs to save the most money on prescription drugs
Books and pamphlets+ available from The Renal Network (ESRD Networks 9/10)
CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site
Clinical Trials: Kidney Disease from the Center Watch web site
Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure
Diabetes & Me - from the National Diabetes Education Program web site
Diabetes HealthSense provides easy access to resources to help you live well and meet your goals—whether you have diabetes or are at risk for the disease.rom the National Diabetes Education Program web site
The Diabetes Quiz web site
"Dialysis Answers” Fact Sheets - educational resources from Life Options web site
Dialysis Facility Compare feature from Medicare
Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated!
DPC Education Center - dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers, and developing favorable public policy solutions.
Dialysis, the Flu, and You from Home Dialysis Central web site

Dialysis Treatment Options Patient Education Poster - 1-page pdf from Northwest Renal Network

Dialysis Options Video from the Medical Education Institute's Lets Talk About... LifeOptions page

Emergency Preparedness Resource   from ESRD Network #4

Engaging Patients in Care Design - from Hospital & Health Networks

Self Management UK is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives.
Family Reunion Health Guide (pdf) from the National Kidney Disease Education Program web site

Flyer: Taking Care of What Matters — You - 1-page pdf from Northwest Renal Network.

Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site
Health Library from the Renal Support Network (RSN) web site
Health, United States from the Centers for Disease Control (CDC)
Heart Health, Blood Pressure, and Fluids from the Kidney School web site

Help! I Need Dialysis! -- E-book by Dori Schatell, John Agar

High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site
Hospital Compare from the U.S. Department of Health & Human Services web site
How to protect yourself in the hospital from Home Dialysis Central web site

How To Use the Data.Medicare.Gov Websites - recorded webinar from the Centers for Medicare & Medicaid Services (CMS)

How to Weather Winter Storms from Fresenius Medical Care
InteliHealth  is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare)
Interactive Tutorial on Kidney Failure from the Patient Education Institute web site
Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Keeping Kidney Patients Safe web site
KEY - Kidney Education and You - free kidney education classes from the DaVita web site
Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site
Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site
Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK)
Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules and Audio Books
KidneyTalk from the Renal Support Network web site

Knowledge is Power Kits from the Heartland Kidney Network - February 2013
My Kidney Kit - My Clinic Plan
My Kidney Kit - Introduction
My Kidney Kit - My Treatment
My Kidney Kit - My Plan
My Kidney Kit - My Network
My Kidney Kit - My Information
My Kidney Kit - My Life
My Kidney Kit - My Choices

A Leadership Resource for Patient and Family Engagement Strategies - from the Hospitals in Pursuit of Excellence web site
Live & Give Newsletter - latest bi-annual update helping educate and motivate people living with chronic kidney disease from Renal Support Network
Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site
Medical Nutrition Therapy Services from Medicare.gov
Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site
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National Institute of Diabetes and Digestive Diseases (NIDDK) Publications in English and Spanish

  • Chronic Kidney Disease and Medicines (Brochure) (EnglishSpanish)
  • Is My Child At Risk for Kidney Disease? (EnglishSpanish)
  • What I need to know about Kidney Failure and How It's Treated (English)
National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site
NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications.
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New Patient Experience Video: Jay's Story from the Renal Network web site

PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference.
The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care
NIDDK Publications On-line from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

Pair Up Health Fact Sheets - September 2011
Your Health by the Numbers
Diabetes and Your Kidneys
High Blood Pressure and Your Kidneys

Patient & Family Council information from the National Kidney Foundation (NKF)

Type 2 Diabetes Patient Resources - Trusted online resources from Medpage Today.

Preventive Services Educational Resource Web Guide from the Centers for Medicare & Medicaid Services web site
Publications from the Kidney Foundation of Canada web site
Quackwatch  - A Guide to Health Fraud, Quackery, and Intelligent Decisions.
Take Six Steps that Count to Fight Kidney Disease - article from the American Kidney Fund - April 2008
Understanding Your Kidneys - 8-page (pdf) issue of Kidney Health. - August 2010
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What I Have Learned And How It Can Help - book by dialysis patient Elliott B. Brown

What is Chronic Kidney Disease? from the Nephron Information Center web site
Working with Your Healthcare Team - from the Kidney School web site
Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site
Your Kidneys and How They Work from NIDDK web site
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  HEMODIALYSIS INFORMATION
Latest Scientific Journal Articles on Hemodialysis Adequacy
Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader)
Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site
A Patient Guide to Machine Alarms (pdf format requires Adobe Acrobat Reader) from the Northwest Renal Network web site
Hemodialysis Dose and Adequacy from the NKUDIC web site

A Patient Guide to Machine Alarms - 1-page pdf from the Northwest Renal Network.

Understanding the Kidney Machine - 1-page pdf from the Northwest Renal Network.

Kidney Directions from Baxter Healthcare
Find a home dialysis center in your area from the Home Dialysis Central web site

Live healthier, better, longer with more frequent home hemodialysis an educational booklet that outlines the documented benefits and risks of home and more frequent home hemodialysis therapy from the NxStage web site

Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated!
Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated!
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  PERITONEAL DIALYSIS INFORMATION
Latest Scientific Journal Articles on Peritoneal Dialysis Adequacy
Adequate Peritoneal Dialysis Therapy Topic Page from RenalWEB Continually Updated!
Fact Sheets from ANNA: Peritoneal Dialysis and Pediatric ESRD: Peritoneal Dialysis (pdf format requires Adobe Acrobat reader)
Hernias and peritoneal dialysis: What you need to know - from the Home Dialysis Central web site
How you look on PD: Coping with body image changes - from the Home Dialysis Central web site
International Society for Peritoneal Dialysis  Treatment GuidelinesTraining Plans (pdf), Peritoneal Dialysis Training Video, and  QA Protocols
Peritoneal Dialysis (PD) Catheter Placement: What to Expect - from Home Dialysis Central web site
Peritoneal Dialysis Dose and Adequacy from the NKUDIC web site
Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site
Saying yes to PD: separating myth from fact - page down to view article from Home Dialysis Central web site
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  VASCULAR ACCESS INFORMATION
Latest Scientific Journal Articles on Vascular Access
Fistula First web site and Patient Section

Patient Pocket Guide: 6 Tips to Prevent Dialysis Infections - Download file from the Centers for Disease Control and Prevention. - October 2013

Let's Talk About Fistulas - 3 minute video from the Fistula First Breakthrough Iniiative (web site)

Video: Dialysis Patients Speak: a Conversation about the Importance of AV Fistulas - 12-minute video on YouTube produced in 2005 for the ESRD Network of New England. - December 13, 2012

Vascular Access Patient Education "Electronic Notebook" (pdf format which requires Adobe Acrobat reader) from the ESRD Network # 14 web site
Frequently Asked Questions about the ArterioVenous Fistula (pdf) and Fístula Arteria Venosa En Español (pdf) from the Northwest Renal Network web site

Helping the Patient Make Healthy Fistula Choices - educational Web-EX Series from The Renal Network.

Understanding Your Hemodialysis Access Options from the American Association of Kidney Patients (AAKP) web site
Just the Facts: Vascular Access and Información esencial: Acceso vascular (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Lifeline for a Lifetime – Your Vascular Access from the ESRD Network Coordinating Center (NCC) web site

Poster: Protect Your Access – It's Your Lifeline! 1-page pdf from the Northwest Renal Network web site

Caring For & Developing Your New Fistula (pdf) from the Northwest Renal Network web site
Vascular Access for Hemodialysis from the NKUDIC web site
Videos in Clinical Medicine: Placement of an Arterial Line from The New England Journal of Medicine (NEJM)
How Do I Look?: Taking the fear out of AV Fistula Placement+ - (pdf) from The Renal Network web site
3 Ps for Vascular Access Success+ - Handbook from The Renal Network, Inc. and slides - November 2010
Keeping Your Access Uncovered - (2-page pdf) from the Northwest Renal Network
Blood Pump Speed and Your Dialysis Fistula - Article from Home Dialysis Central. - March 2010.

Self-Cannulation - Video via Renal Fellow Network web site

RenalWEB's Vascular Access Internet Resources Page Continually Updated!
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  TRANSPLANT & BIOTECHNOLOGY
Latest Scientific Journal Articles on Kidney Transplantation
2012 OPTN/SRTR Annual Report from the Scientific Registry of Transplant Recipients web site

new Alliance Issues Training Video on Organ Donation, Transplantation - 30-minute video (click "View Video" link) from the Organ Donation and Transplantation Alliance web site

Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader)
How the Transplant Waiting List Works - Article from KidneyTimes
KidneyLink - created by maintained by the PKD Foundation

Kidney Transplantation - Podcasts from The Renal Support Network

National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site
TransWeb (All about transplantation and donation)
US Government web site on  organ donation
Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site
Medicare Solutions - All you need to know about being an organ donor - powered by HealthPlanOne
blue ball Transplant Living from the United Network for Organ Sharing (UNOS) web site
Working with your Healthcare Team; Overcoming Barriers to Transplant (EnglishSpanish) from the End Stage Renal Disease Network of New York web site
Kidney Transplantation Topic Page from RenalWEB Continually Updated!
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  DIET
Latest Scientific Journal Articles on Nutrition
Chronic Kidney Disease: Nutrition Basics - Free, Full-text Article from Journal of Renal Nutrition - July 2011
Cookbooks for CKD Patients—2009 Update
DaVita Diet Helper from the DaVita web site

Delicious! - AAKP recipe cookbook

Diet Information from the Kidney Patient's Guide (UK site) web site
Eat Right To Feel Right On Hemodialysis from the NKUDIC web site
Eating Healthy From the Start: Kid and Kidney-Friendly Nutrition Tips (pdf) resource from the ESRD Network #15 web site
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Food Safety for Transplant Recipients - from the U.S. Food and Drug Administration

Home-Delivered Meal Options for Chronic Kidney Disease Patients full-text article from Journal of Renal Nutrition - September 2012

Kidney Community Kitchen from the Kidney Foundation of Canada Helps Dialysis Patients with Complex Burden of Diet Planning

Kidney-Friendly Frozen Meal Tips and Suggestions “In A Pinch” full-text article from Journal of Renal Nutrition - September 2012
Kidney Kitchen from the National Kidney Foundation web site

Mom's Meals - home meal delivery for many with stage 5 kidney disease

new My Food Coach from the National Kidney Foundation web site
Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Nutrition and Fluids for People on Dialysis from the Kidney School web site
Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient)
RenalWEB's Well Nourished Patient - Internet Resources Continually Updated!

Spice it up! - Renal recipe web site from Canada. Spice it up! booklets are available in English and French, but they are not for sale. They are distributed by renal dietitians to dialysis patients (free of charge).

Truly Tasty - Renal cookbook from Ireland
Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site
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  K/DOQI™ -  Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" )

K/ DOQI Main Page on the National Kidney Foundation web site

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  PUBMED SEARCHES (National Library of Medicine's MEDLINE Database)
PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed.
hemodialysis Continually Updated!
adequacy AND hemodialysis Continually Updated!
peritoneal dialysis Continually Updated!
vascular access AND dialysis Continually Updated!
exercise and dialysis Continually Updated!
renal transplantation AND dialysis Continually Updated!
MEDLINE / Pubmed Information from the National Library of Medicine
Also consider using Yahoo to locate web sites and web pages on any topic of your choice.


  DISCUSSION FORUMS
Dialysis Nursing Discussion Forum on RenalWEB
HealCam - from MedGadget.
Nephkids - a cyber-support group for Parents of Children with Kidney Disease
Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient)
Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten)
Vascular Access Discussion Forum on RenalWEB
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  ORGANIZATIONS AND GOVERNMENT AGENCIES

American Association of Kidney Patients (AAKP) web site

American Diabetes Association (ADA) web site

American Kidney Fund (AKF) web site

B.Braun Avitum web site

BestHealth web site

Caregiver Action Network (CAN) web site

Coalition for Supportive Care of Kidney Patients web site
Congressional Kidney Caucus web site
DaVita Patient Citizens from the DaVita web site
Dialysis/Transplant Patient web sites
The Disabled Living Foundation web site
The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site
European Kidney Patients' Federation web site (UK version)
Everyday Choices for A Healthier LIFE web site

Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks

iHealthRecord web site is a no cost, secure and confidential interactive record that lets you keep all your health information organized, accurate and in one place.
HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs
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Healthy Live Info/Chronic Kidney Disease web site

Home Dialysis Central web site
Home Dialyzors United web site
Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD) web site

Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid

InteliHealth  is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare)
Kidney & Urology Foundation of America (KUFA) web site

The Kidney Foundation of Canada web site

KidneysDoThat.org web site

Kidney Smart web site from DaVita

Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential"

Lupus Foundation of America web site

National Center for Complementary and Alternative Medicine (CAM) web site

National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site

National Institute of Health NIHSeniorHealth.gov web site

National Kidney Federation (UK site) web site

National Kidney Foundation (US site) web site

National Kidney and Urologic Diseases Information Clearinghouse web site

National Patient Safety Agency web site (UK organization)

Patient Advocate Foundation (PAF) web site

Polycystic Kidney Research Foundation web site

Renal Support Network (RSN) web site

Restless Legs Syndrome Foundation web site

Roche Transplantation web site

Stop Medicare Fraud.gov web site

Transplant Living web site

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  PRODUCTS
 
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  STATISTICS
Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS)
Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site
US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2020 Objectives
statehealthfacts.org - your source for state health data
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  UPCOMING EVENTS
National Kidney Foundation (NKF) Health Screening Schedule
Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261
Renal Support Network (RSN) Renal Events Calendar
Complimentary Audio Conferences - Audio conferences from the HealthWell Foundation® web site
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  YOUR WORDS
Fifteen dialysis cartoons by Lori James-Hartwell
Your Words feature on RenalWEB
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  RELATED WEB PAGES & TOPICS
A Full and Comfortable Life Topic Page from RenalWEB Continually Updated!
Dialysis and AAMI Standards - a book of standards and recommended practices for dialysis that can be ordered from the Association for the Advancement of Medical Instrumentation (AAMI)
National Guideline Clearinghouse - evidence-based clinical practice guidelines
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  INPUT / SUGGESTIONS
E-mail to RenalWEB on the Patient Education Resources Page
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