RenalWEB Home Page
Last Updated 5/12/13

Hemodialysis Info

Initially, the diagnosis of end-stage renal disease (ESRD) and the prospect of relying on dialysis treatments for survival are almost always devastating and overwhelming for an individual and their family. However, once people have had time to accept and to begin to deal with the necessary life changes, dialysis-related educational resources are a necessity for attaining a sense of control in one's life.  Gradually increasing feelings of confidence and empowerment replace the initial confusion and despair when educational resources are readily available.

The Internet has a wealth of information available for dialysis patients with a few clicks of a mouse. Information resources range from basic explanations in layman's terms of dialysis procedures and technology to search engines for browsing through the 11 million articles in the National Library of Medicine's MEDLINE database.  If you take a little time to become familiar with using PubMed, you can research the latest medical information on any topic of your choice.

In an effort to make finding information easier, RenalWEB has organized many of these resources into groupings that we hope you will find useful. You will find eighteen categories listed to the left of this paragraph. With over 200 links, even the seasoned veterans will find new and interesting information. For articles, ideas, and sources to answer some of the questions you may have on how to make life with dialysis more comfortable and fulfilling, please visit RenalWEB's A Full and Comfortable Life page.

This listing will be continuously updated as more resources become available on the Internet. Please contact us to suggest web-based resources that you have found useful. If you find this information useful and would like to share it with others, print this flyer and distribute it in your dialysis facility.

Warning:  Changes should never be made in a patient's treatment or care based solely on the information found here.  Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made.  All medical and therapeutic decisions must come from a qualified health care provider.  Read RenalWEB's Legal Disclaimer before proceeding.

  NEWS AND LATEST ARTICLES

Diabetes: Dirty Air 'May Raise' Insulin Resistance Risk - May 9, 2013

A Long Unrecognized Syndrome: Failure to Thrive on Dialysis - Article from RenalWEB that includes a history, symptoms, causes, and possible interventions for this obvious, but long unrecognized, syndrome. It's a starting point. - May 7, 2013
Editor's note: It looks like Kent Thiry will be staying in his position at DaVita for some time. If so, this article provides a completely new way for him to view his dialysis patients. (I promise never to use this link again.)
I first published this article in late March with a different title. However, after seeing this story on misdiagnoses in The Washington Post today, I realized that my article really did describe a syndrome (depression, withdrawal from dialysis, unemployment, loss of life meaning, noncompliance, etc.) with causes that can be effectively addressed by the medical and business community. While the article obviously will need some further editing, I decided to simply republish it with a new title for now. The foundation and much of the structure for defining this syndrome is already there (and the closing quotation is still perfect.)
Making this a recognized medical syndrome/diagnosis would motivate nephrologists to provide the same care to all patients that they would want for themselves and their own family members. I hope Mr. Thiry can take the lead in the business community in addressing this syndrome that affects so many of his patients.

2012 Researcher's Guide to the USRDS Database - PDF files from the United States Renal Data System. - May 2013

4 Steps to Move From "Good" to "Great" Patient Experience - Article from Becker's Clinical Quality & Infection Control. - May 6, 2013
"The first step in moving to the next level of patient experience improvement is understanding that patient experience is more than "happiness" and being treated like a hotel guest. Rather, patient experience is a multifaceted concept including patients' physical, emotional and mental well-being."
Editor's note: Sitting in a chair for four hours does not capture the dialysis patient experience.

Experts Discuss Ways To Embed Patient Voices and Values in Clinical Research - Press release and full-text article from Mayo Clinic Proceedings. - April 30, 2013

Engaging Health Care Users for Better Health and Quality Care - Article from Hospitals & Health Networks. - April 30, 2013

Risk Factors of Short-Term Mortality after Acute Nonvariceal Upper Gastrointestinal Bleeding in Patients on Dialysis: a Population-based Study - Provisional abstract and full-text article (15-page pdf) from BMC Nephrology. - April 26, 2013

Study Finds That Dialysis Patients Who Use DaVita Rx Live Longer - Press release. - April 24, 2013
Editor's note: The only new projects or products likely to be approved by upper management in large for-profit corporations are those that offer high profit margins. This project ideally fits that criteria.
Projects and products that could greatly improve patient care and improve Medicare patient survival, but offer no additional or small profit margins, are not likely to be championed by any business executive in these organizations. The chief medical officers report to these businessmen.
Ironically, the same logic applies for most patient advocacy organizations. They will only champion causes that guarantee continued corporate funding. Guess who controls the patients' fates.
We need leadership that wants more for patients.

Diabetes Self-Care Improves Slowly, U.S. Report Finds - Article from HealthDay. Abstract from NEJM. - April 24, 2013

Is Communication the Root Cause of All Root Causes? - Article from the Heartland Kidney Network - April 2013

Patient-Centered Outcomes Research Institute to Invest Up to $68 Million to Develop a National Patient-Centered Clinical Research Network - Press release. - April 23, 2013

AMA Launches Diabetes, Heart Disease Programs - Press release from the American Medical Association. - April 22, 2013

Slow Walking Speed Linked with Premature Death in Kidney Disease Patients - Press release and JASN Express abstract from the American Society of Nephrology. - April 12, 2013

Renal Supportive Care — Accepted Articles Abstracts and Free, Full-Text PDFs from Nephrology - April 16, 2013
• The Often Difficult Decision of Which Patients Will Benefit from Dialysis
• Legal Issues concerning Withholding and Withdrawal of Dialysis
• Educational Needs in Supportive and End of Life Care
• Management Guidelines for Patients Choosing the Renal Supportive Care (RSC) Pathway: Information and Web-based Treatment Protocols Available to All
• Research Issues in Elderly Patients: Gaps in Knowledge and Suggested Directions
• Renal Supportive Care and the Primary Care Physician
• Issues and Models of Renal Supportive Care in Rural Areas
• Models of Care – End of Life Pathways
• Running and Setting up a Renal Supportive Care Program
• Inappropriate Interventions in the Dying Patient
• Holistic Palliative Care Approach-Physical, Spiritual, Religious and Psychological Needs
• Appropriate Assessment of Symptom Burden and Provision of Patient Information
• Ethical Principles for Patients, Families and Doctors to Consider
• Quality of Life. What Information Is Already Available and What Evidence Is This Based on?
• Predictive Modelling Risk Calculators and the Non Dialysis Pathway
The Newsroom of the National Kidney Foundation web site
Latest Dialysis News Stories from  Yahoo   Continually Updated!
Latest Transplant News Stories from Yahoo  Continually Updated!
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  ESSENTIAL INFORMATION
Patient Rights and Responsibilities - from the Kidney School web site
A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland
One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site.
Summary Report of the End Stage Renal Disease (ESRD) Networks’ Annual Reports 2005
Videos on Chronic Kidney Disease - 19-chapter educational series from TheVisualMD.com. - October 2011
Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) -USRDS Presentations & Posters, 2012 Researcher's Guide and the 2012 USRDS annual report - from the United States Renal Data System (USRDS) web site

AAKP Patient Plan©: Four phase education plan from the American Association of Kidney Patients (AAKP) web site
• Phase 1 Book
• Phase 2 Book
• Phase 3 Book
• Phase 4 Book

Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site
The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site
End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish)
Your Treatment, Your Choice is a patient education program designed to satisfy Medicare's requirements for reimbursement of the MIPPA Kidney Education Benefit from the National Kidney Foundation (NKF)
Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site 
Northwest Renal Network December Newsletter on Treatment Options - 2-page pdf from the NW Renal Network - December 2013
Dialysis Saves Lives is a 6 minute video to educate patients about dialysis from Fresenius Medical Care and the National Kidney Foundation (NKF) - May 2011
The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Living with Kidney Disease DVD - from Kidney Research UK web site
Book: Help, I Need Dialysis! How to have a good future with kidney disease by Dori Schatell, MS and Dr. John Agar © 2012
How to Have a Good Future with Kidney Disease a Life Options CKD Patient Education Toolkit - 2011
The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Kidney Dialysis Dictionary from the ESRD Network 11  web site
Kidney Diseases Dictionary from the NIDDK  web site
The Drug Monitor - essential clinical pharmacology / pharmacy information
Know Your Treatment Options, visit Kidney Directions from Baxter Healthcare
Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired).
Medicare Basics - from the Medicare.gov
Medicare for Children with Chronic Kidney Disease from the Medicare web site
The Medicare-Medicaid Relationship (pdf format requires Adobe Acrobat reader) from the Medicare web site
CMS Center for Medicare & Medicaid Innovation from the Medicare web site
Your Medicare Rights and Protections (pdf format requires Adobe Acrobat reader) from the Medicare web site
Medicare-Approved Drug Discount Cards
    Medicare Plan Finder
    Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader)
    Facts You Need to Know About Medicare-Approved Drug Discount Cards
    Making It Easier At the Pharmacy Counter
Medicare Telehealth Services from the Medicare web site
Financial Help for Treatment of Kidney Failure from NIDDK web site
Complaint Process for Medicare Beneficiaries from the Office of Inspector General
Intensive Intervention With The Non-Compliant Patient (requires Microsoft Word™) from the End Stage Renal Disease Network 14 web site
Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book
Family Reunion Health Guide resource from the National Kidney Disease Education Program.
Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site
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  GENERAL RESOURCES
E-Kidney - The online newsletter of the National Kidney Foundation (NKF)
Kidney Beginnings: A Patient's Guide - brochure from the American Association of Kidney Patients (AAKP) web site
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Current Issue of At Home with AAKP an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP)
The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site
AAKP Public Policy from the American Association of Kidney Patients (AAKP)
aakpRenalife a magazine for dialysis patients from the American Association of Kidney Patients (AAKP)
A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999
Adherence Toolkit - Resources from The Renal Network, Inc.
Alternative Remedies from the Kidney School web site
BenefitsCheckUpRx - this fast, free, and confidential service will help you or someone you love find public and private programs to save the most money on prescription drugs
Books and pamphlets available from The Renal Network (ESRD Networks 9/10)
CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site
Clinical Trials: Kidney Disease from the Center Watch web site
Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure
Diabetes & Me - from the National Diabetes Education Program web site
Diabetes HealthSense provides easy access to resources to help you live well and meet your goals—whether you have diabetes or are at risk for the disease.rom the National Diabetes Education Program web site
The Diabetes Quiz web site
"Dialysis Answers” Fact Sheets - educational resources from Life Options web site
Dialysis Facility Compare feature from Medicare
Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated!
DPC Education Center - dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers, and developing favorable public policy solutions.
Dialysis, the Flu, and You from Home Dialysis Central web site

Dialysis Treatment Options Patient Education Poster - 1-page pdf from Northwest Renal Network

Dialysis Options Video from the Medical Education Institute's Lets Talk About... LifeOptions page
Emergency Preparedness Resource (pdf format requires Adobe Acrobat Reader)  from ESRD Network #4

Engaging Patients in Care Design - Video from Hospital & Health Networks
Expert Patients Programme is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives.
Family Reunion Health Guide (pdf) from the National Kidney Disease Education Program web site
Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site

Healthcare Associated Infections - Web site by Kimberly-Clark. Patient's guide (2-page pdf) to hand hygiene.
Health Library from the Renal Support Network (RSN) web site
Health, United States from the Centers for Disease Control (CDC)
Heart Health, Blood Pressure, and Fluids from the Kidney School web site

Help! I Need Dialysis! -- E-book by Dori Schatell, John Agar
Hemodoc — From Doctor to Patient - Blog site by Peter Laird, MD and dialysis patient
High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site
Hospital Compare from the U.S. Department of Health & Human Services web site
How to protect yourself in the hospital from Home Dialysis Central web site
How to Weather Winter Storms from Fresenius Medical Care
Identifying Kidney Failure web cast from the Kidney & Urology Foundation of America (KUFA) web site
InteliHealth  is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare)
Interactive Tutorial on Kidney Failure from the Patient Education Institute web site
Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Keeping Kidney Patients Safe web site
KEY - Kidney Education and You - free kidney education classes from the DaVita web site
Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site
Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site
Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK)
Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules and Audio Books
KidneyTalk from the Renal Support Network web site

Knowledge is Power Kits from the Heartland Kidney Network - February 2013
• My Kidney Kit - My Clinic Plan
• My Kidney Kit - Introduction
• My Kidney Kit - My Treatment
• My Kidney Kit - My Plan
• My Kidney Kit - My Network
• My Kidney Kit - My Information
• My Kidney Kit - My Life
• My Kidney Kit - My Choices
Live & Give Newsletter - latest bi-annual update helping educate and motivate people living with chronic kidney disease from Renal Support Network
Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site
Medical Nutrition Therapy Services from Medicare.gov
Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site
National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site
NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications.
PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference.
The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care
NIDDK Publications On-line from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

Pair Up Health Fact Sheets - September 2011
• Your Health by the Numbers
• Diabetes and Your Kidneys
• High Blood Pressure and Your Kidneys
Patient & Family Council information including the People Like Us™ video series from the National Kidney Foundation (NKF)
Preventive Services Educational Resource Web Guide from the Centers for Medicare & Medicaid Services web site
Progress and Priorities: Renal Disease Research Plan (pdf format requires Adobe Acrobat reader) from the National Institute of Diabetes and Digestive and Kidney Disease (NIDDK) web site
Publications from the Kidney Foundation of Canada web site
Quackwatch  - A Guide to Health Fraud, Quackery, and Intelligent Decisions.
Spanish Resource Guide - list of resources in Spanish from the American Nephrology Nurses Association (ANNA)
Take Six Steps that Count to Fight Kidney Disease - article from the American Kidney Fund - April 2008
Ten Facts about African-Americans and Kidney Disease from the NKF web site
Understanding Your Kidneys - 8-page (pdf) issue of Kidney Health. - August 2010
What is Chronic Kidney Disease? from the Nephron Information Center web site
Working with Your Healthcare Team - from the Kidney School web site
Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site
Your Kidneys and How They Work from NIDDK web site
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  HEMODIALYSIS INFORMATION
Latest Scientific Journal Articles on Hemodialysis Adequacy
Hemodialysis Dialysis Advisory Information from the American Association of Kidney Patients (AAKP) web site
Understanding Your Hemodialysis Options from the American Association of Kidney Patients (AAKP) web site
Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader)
Hemodialysis: A Life Saver for Kidney Disease web cast from the Kidney & Urology Foundation of America (KUFA) web site
Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site
A Patient Guide to Machine Alarms (pdf format requires Adobe Acrobat Reader) from the Northwest Renal Network web site
Dialysis disequilibrium syndrome from the Western Queen's Dialysis web site
Hemodialysis Dose and Adequacy from the NKUDIC web site

A Patient Guide to Machine Alarms - 1-page pdf from the Northwest Renal Network.

Kidney Directions from Baxter Healthcare
Find a home dialysis center in your area from the Home Dialysis Central web site
Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated!
Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated!
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  PERITONEAL DIALYSIS INFORMATION
Latest Scientific Journal Articles on Peritoneal Dialysis Adequacy
Peritoneal Dialysis Advisory Information from the American Association of Kidney Patients (AAKP) web site
Fact Sheets from ANNA: Peritoneal Dialysis and Pediatric ESRD: Peritoneal Dialysis (pdf format requires Adobe Acrobat reader)
Peritoneal Dialysis (PD) Catheter Placement: What to Expect - from Home Dialysis Central web site
Peritoneal Dialysis Dose and Adequacy from the NKUDIC web site
Peritoneal Dialysis: A Treatment for Kidney Disease web cast from the Kidney & Urology Foundation of America (KUFA) web site
Saying yes to PD: separating myth from fact - page down to view article from Home Dialysis Central web site
International Society for Peritoneal Dialysis  Treatment Guidelines,  Training Plans (pdf), Peritoneal Dialysis Training Video, and  QA Protocols
Adequate Peritoneal Dialysis Therapy Topic Page from RenalWEB Continually Updated!
Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site
Hernias and peritoneal dialysis: What you need to know - from the Home Dialysis Central web site
How you look on PD: Coping with body image changes - from the Home Dialysis Central web site
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  VASCULAR ACCESS INFORMATION
Latest Scientific Journal Articles on Vascular Access
Fistula First web site and Patient Section
Fistula First: Patient Educational Materials from the Fistula First web site
Let's Talk About Fistulas - 3 minute video from the Fistula First Breakthrough Iniiative (web site)

Video: Dialysis Patients Speak: a Conversation about the Importance of AV Fistulas - 12-minute video on YouTube produced in 2005 for the ESRD Network of New England. - December 13, 2012
Vascular Access Patient Education "Electronic Notebook" (pdf format which requires Adobe Acrobat reader) from the ESRD Network # 14 web site
Frequently Asked Questions about the ArterioVenous Fistula (pdf) and Fístula Arteria Venosa En Español (pdf) from the Northwest Renal Network web site
Patient Education on Arterio-Venous Fistulas from the ESRD Network of Texas, Inc. web site

Helping the Patient Make Healthy Fistula Choices - educational Web-EX Series from The Renal Network.
Understanding Your Hemodialysis Access Options from the American Association of Kidney Patients (AAKP) web site
Just the Facts: Vascular Access and Información esencial: Acceso vascular (pdf format requires Adobe Acrobat Reader) from the Life Options web site

Poster: Protect Your Access – It's Your Lifeline! 1-page pdf from the Northwest Renal Network web site
Caring For & Developing Your New Fistula (pdf) from the Northwest Renal Network web site
Vascular Access for Hemodialysis from the NKUDIC web site
ESRD National Vascular Access Improvement Initiative (NVAII) - Fistula First Project from the ESRD Network of Texas, Inc web site
Videos in Clinical Medicine: Placement of an Arterial Line from The New England Journal of Medicine (NEJM)
How Do I Look?: Taking the fear out of AV Fistula Placement - (pdf) from The Renal Network web site
3 Ps for Vascular Access Success - Handbook from The Renal Network, Inc. and slides - November 2010
Keeping Your Access Uncovered - (2-page pdf) from the Northwest Renal Network
Blood Pump Speed and Your Dialysis Fistula - Article from Home Dialysis Central. - March 2010.
RenalWEB's Vascular Access Internet Resources Page Continually Updated!
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  TRANSPLANT & BIOTECHNOLOGY
Latest Scientific Journal Articles on Kidney Transplantation
2011 OPTN/SRTR Annual Report from the Scientific Registry of Transplant Recipients web site
Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader)
How the Transplant Waiting List Works - Article from KidneyTimes. - April 2011
KidneyLink - created by maintained by the PKD Foundation

Kidney Transplantation - Podcasts from The Renal Support Network
Kidney Transplant Guide - step-by-step information and tools to help you and your family work with your doctor.
National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site
TransWeb (All about transplantation and donation)
US Government web site on  organ donation
Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site
Medicare Solutions - All you need to know about being an organ donor - powered by HealthPlanOne
Patient Resources Available Online from the United Network for Organ Sharing (UNOS) web site
Kidney Transplantation Topic Page from RenalWEB Continually Updated!
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  DIET
Latest Scientific Journal Articles on Nutrition
Brilliant Eats Cookbook from PKD Foundation web site
Chronic Kidney Disease: Nutrition Basics - Free, Full-text Article from Journal of Renal Nutrition - July 2011
Cookbooks for CKD Patients—2009 Update
DaVita Diet Helper from the DaVita web site

Delicious! - AAKP recipe cookbook
Diet Information from the Kidney Patient's Guide (UK site) web site
Eat Right To Feel Right On Hemodialysis from the NKUDIC web site
Eating Healthy From the Start: Kid and Kidney-Friendly Nutrition Tips (pdf) resource from the ESRD Network #15 web site
Home-Delivered Meal Options for Chronic Kidney Disease Patients full-text article from Journal of Renal Nutrition - September 2012

Kidney Community Kitchen from the Kidney Foundation of Canada Helps Dialysis Patients with Complex Burden of Diet Planning
Kidney-Friendly Frozen Meal Tips and Suggestions “In A Pinch” full-text article from Journal of Renal Nutrition - September 2012
Kidney Kitchen from the National Kidney Foundation web site

Mom's Meals - home meal delivery for many with stage 5 kidney disease
Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Nutrition and Fluids for People on Dialysis from the Kidney School web site
Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site
Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient)
RenalWEB's Well Nourished Patient - Internet Resources Continually Updated!

Spice it up! - Renal recipe web site from Canada. Spice it up! booklets are available in English and French, but they are not for sale. They are distributed by renal dietitians to dialysis patients (free of charge).

Truly Tasty+ - Renal cookbook from Ireland
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  K/DOQI™ -  Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" )

K/DOQI Main Page on the National Kidney Foundation web site
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  PUBMED SEARCHES (National Library of Medicine's MEDLINE Database)
PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed.
hemodialysis Continually Updated!
adequacy AND hemodialysis Continually Updated!
peritoneal dialysis Continually Updated!
vascular access AND dialysis Continually Updated!
exercise and dialysis Continually Updated!
renal transplantation AND dialysis Continually Updated!
MEDLINE / Pubmed Information from the National Library of Medicine
Also consider using Yahoo to locate web sites and web pages on any topic of your choice.

  DISCUSSION FORUMS
Dialysis Nursing Discussion Forum on RenalWEB
DIALYSIS_SUPPORT - from Yahoo Groups - end-stage renal disease (ESRD) support and educational forum
HealCam - from MedGadget.
Nephkids - a cyber-support group for Parents of Children with Kidney Disease
Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient)
Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten)
Vascular Access Discussion Forum on RenalWEB
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  ORGANIZATIONS AND GOVERNMENT AGENCIES

American Association of Kidney Patients (AAKP) web site

American Diabetes Association (ADA) web site

American Kidney Fund (AKF) web site

B.Braun Avitum web site

BestHealth web site

Caregiver Action Network (CAN) web site
Coalition for Supportive Care of Kidney Patients web site
Congressional Kidney Caucus web site
DaVita Patient Citizens from the DaVita web site
Dialysis/Transplant Patient web sites
The Disabled Living Foundation web site
The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site
European Kidney Patients' Federation web site (UK version)
Everyday Choices for A Healthier LIFE web site

Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks
iHealthRecord web site is a no cost, secure and confidential interactive record that lets you keep all your health information organized, accurate and in one place.
HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs
Home Dialysis Central web site
Home Dialyzors United web site
Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD) web site

Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid
InteliHealth  is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare)
Kidney & Urology Foundation of America (KUFA) web site

The Kidney Foundation of Canada web site
KidneysDoThat.org web site

Kidney Smart web site from DaVita

Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential"

Lupus Foundation of America web site
National Center for Complementary and Alternative Medicine (CAM) web site

National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site
National Institute of Health NIHSeniorHealth.gov web site

National Kidney Federation (UK site) web site

National Kidney Foundation (US site) web site

National Kidney and Urologic Diseases Information Clearinghouse web site
National Patient Safety Agency web site (UK organization)

Patient Advocate Foundation (PAF) web site

Polycystic Kidney Research Foundation web site

Renal Health web site

Renal Support Network (RSN) web site

Restless Legs Syndrome Foundation web site

Roche Transplantation web site

Stop Medicare Fraud.gov web site

Transplant Living web site
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  PRODUCTS
 
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  STATISTICS
Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS)
Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site
US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2020 Objectives
statehealthfacts.org - your source for state health data
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  UPCOMING EVENTS
National Kidney Foundation (NKF) Health Screening Schedule
Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261
Renal Support Network (RSN) Renal Events Calendar
Complimentary Audio Conferences - 2013 audio conferences from the HealthWell Foundation® web site
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  YOUR WORDS
Fifteen dialysis cartoons by Lori James-Hartwell
Your Words feature on RenalWEB
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  RELATED WEB PAGES & TOPICS
A Full and Comfortable Life Topic Page from RenalWEB Continually Updated!
Dialysis and AAMI Standards - a book of standards and recommended practices for dialysis that can be ordered from the Association for the Advancement of Medical Instrumentation (AAMI)
National Guideline Clearinghouse - evidence-based clinical practice guidelines
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  INPUT / SUGGESTIONS
E-mail to RenalWEB on the Patient Education Resources Page
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