RenalWEB Home Page
Last Updated 07/17/16

Hemodialysis Info

Initially, the diagnosis of end-stage renal disease (ESRD) and the prospect of relying on dialysis treatments for survival are almost always devastating and overwhelming for an individual and their family. However, once people have had time to accept and to begin to deal with the necessary life changes, dialysis-related educational resources are a necessity for attaining a sense of control in one's life.  Gradually increasing feelings of confidence and empowerment replace the initial confusion and despair when educational resources are readily available.

The Internet has a wealth of information available for dialysis patients with a few clicks of a mouse. Information resources range from basic explanations in layman's terms of dialysis procedures and technology to search engines for browsing through the 11 million articles in the National Library of Medicine's MEDLINE database.  If you take a little time to become familiar with using PubMed, you can research the latest medical information on any topic of your choice.

In an effort to make finding information easier, RenalWEB has organized many of these resources into groupings that we hope you will find useful. You will find eighteen categories listed to the left of this paragraph. With over 200 links, even the seasoned veterans will find new and interesting information. For articles, ideas, and sources to answer some of the questions you may have on how to make life with dialysis more comfortable and fulfilling, please visit RenalWEB's A Full and Comfortable Life page.

This listing will be continuously updated as more resources become available on the Internet. Please contact us to suggest web-based resources that you have found useful. If you find this information useful and would like to share it with others, print this flyer and distribute it in your dialysis facility.

Warning:  Changes should never be made in a patient's treatment or care based solely on the information found here.  Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made.  All medical and therapeutic decisions must come from a qualified health care provider.  Read RenalWEB's Legal Disclaimer before proceeding.


  NEWS AND LATEST ARTICLES
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Effect of Treatment Education Based on the Roy Adaptation Model on Adjustment of Hemodialysis Patients - Abstract from Clinical Nurse Specialist. - July/August 2016

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Planning Dialysis Care: You Might Be "Surprised" - Free, Full-Text Article from American Journal of Kidney Diseases - July 2016

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Patient Acceptability of the Yorkshire Dialysis Decision Aid (YoDDA) Booklet: A Prospective Non-Randomized Comparison Study Across 6 Predialysis Services - Free, full-text, Open Access article from Peritoneal Dialysis International. - July 24, 2016

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AKF Webinar: Staying Employed with Kidney Disease - American Kidney Fund event - July 19, 2016

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Patients To Lead National Research Priorities for Kidney Disease - Press release from the National Kidney Foundation. - July 12, 2016

Editor's note: It would be far better to have patients take the lead in creating financial incentives to improve chronic kidney disease care.

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Educational Interventions for CKD Patients - Posting from the AJKD blog. - July 12, 2016

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Effectiveness of a Multicomponent Quality Improvement Strategy to Improve Achievement of Diabetes Care Goals: A Randomized, Controlled Trial - Online First abstract from Annals of Internal Medicine. - July 12, 2016

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New Diabetes Screening Recommendation Misses More Than Half of High-Risk Patients - July 12, 2016

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House Ways and Means Committee Approves ESRD Legislation - News release from Kidney Care Partners. H.R.5659 - ESRD Choice Act of 2016. - July 11, 2016
Editor's note: Among patient groups, only Dialysis Patient Citizens lobbied for this legislation. It would be interesting to know who paid for the "Patient Ambassadors" to appear in Washington.

In the grand scheme of things, who benefits most from this "sick-patient model" legislation?

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Opinion Piece from Dr. Frank Maddux Appears in The Hill - Copy of opinion piece from the Renal Care Partners web site. - July 11, 2016

Editor's note: I simply do not understand how Franklin Maddux can sleep at night.

He ends his article by stating "As a nephrologist and chair of the nation's largest advocacy organization for quality kidney care...".

This is a field of medicine in which nearly all nephrologists would avoid for themselves the treatment regimens that over 85% of their patients receive. As a patient advocate, will he ever be able to state this out loud or in print?

This legislation continues the "sick-patient model" of dialysis care that nephrologists themselves would avoid. It funnels more Medicare money to Fresenius Medical Care — which will likely funnel more patients into more treatment regimens that no nephrologist would accept for themselves.

"If the treatment of chronic uremia cannot fully rehabilitate the patient, the treatment is inadequate." — B. Scribner.

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The Largest Dialysis Providers in 2016 - Article from Nephrology News and Issues - July 11, 2016

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Evaluation of the Quality of Care of a Hemodialysis Public-Private Partnership Program for Patients with End-Stage Renal Disease - Free, Full-Text, Open Access Article from BMC Nephrology - July 11, 2016

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KCP Applauds Legislation to Expand Medicare Coverage Options for Dialysis Patients - Press release from Kidney Care Partners. Text of the bill (HR 5659) is not available at this time. - July 2016

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CMS Proposes Expanding Diabetes-Prevention Model - July 7, 2016

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Does Medical Marijuana Reduce Need for Other Meds? - Article from HealthDay. - July 6, 2016

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Pharmacist-Led Chronic Disease Management: A Systematic Review of Effectiveness and Harms Compared With Usual Care - Abstract from Annals of Internal Medicine. - July 5, 2016

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Stemming the Escalating Cost of Prescription Drugs: A Position Paper of the American College of Physicians - Free, full-text, position paper from Annals of Internal Medicine. - July 5, 2016

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ChoosingDialysis Web Site Opens - "Empowering patients on choices for renal replacement therapy" - June, 2016

Editor's note: Was this designed by Fresenius and DaVita? It steers patients into the two most profitable treatment regimens for their existing infrastructure: in-center dialysis and at-home peritoneal dialysis.

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Dangerous and Deadly Drug Combinations - (Registration required, but free.) 12-slide presentation from Medscape. - June 30, 2016

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Short How-To Recipe Videos Launch for Kidney Disease and Dialysis Patients - June 30, 2016

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Infographic: Beat the Heat! Stay Hydrated without Overdoing Fluids - June 29, 2016

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Patient Satisfaction Must Start with Nursing Satisfaction - Posting from the KevinMD blog. - June 28, 2016

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655,000 Patient Records Reportedly for Sale on the Dark Web after Ransom Demand - Article from Healthcare IT News. - June 28, 2016

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The NoNo Sleeve: RNs Take up Arms to Avert Errors (with AV Fistulas) - Article from Nurse.com. - June 27, 2016

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Variation in Patients' Awareness of CKD according to How They Are Asked - CJASN Express Abstract - June 23, 2016

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New Baxter Study Demonstrates Perceived Value of Telemedicine to Increase Access to Care and Reduce Hospitalizations - Press release. Article from PLOS ONE. - June 23, 2016

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Best Hospitals for Pediatric Nephrology - Annual feature from U.S. News & World Report. - June 2016

The top three are:

  1. Boston Children's Hospital
  2. Cincinnati Children's Hospital Medical Center
  3. Texas Children's Hospitals
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2016 Dialysis Facility Compare Star Ratings Refresh - 32-slide (pdf) presentation and transcript - June 22, 2016

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Patient Perspectives on the Choice of Dialysis Modality: Results From the Empowering Patients on Choices for Renal Replacement Therapy (EPOCH-RRT) Study - Article in Press abstract from American Journal of Kidney Diseases. - June 21, 2016

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The 50 Most Active Kidney Transplant Centers in 2015 - Data from the Organ Procurement and Transplant Network (OPTN) via NN&I. - June 20, 2016

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Reps. Young, Blumenauer Introduce HR. 5506, the Dialysis PATIENT (Patient Access to Integrated-Care, Empowerment, Nephrologists, and Treatment) Demonstration Act - News release from Congressman Todd Young of Indiana (text of the bill is available at this time.) - June 17, 2016

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Unwitting Victims or Informed Medical Consumers? How are Dialysis Patients Viewed by Their Nurses and Staff? - Posting from the KidneyViews blog. - June 16, 2016

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Kidney Care Partners Encouraged by Congressional Interest in Care Coordination Models for Patients with Kidney Failure - Press release from Kidney Care Partners - June 24, 2016

Editor's note: The for-profit providers will likely capture more dollars from their sick-patient model of care. They have completely failed patients in terms of a well-patient model of care, patient employment, and rehabilitation.

When will they publish their employment and rehabilitation statistics?

blue ball The Newsroom of the National Kidney Foundation web site
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Latest Dialysis News Stories from  Yahoo   Continually Updated!
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Latest Transplant News Stories from Yahoo  Continually Updated!
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  ESSENTIAL INFORMATION
blue ball Patient Rights and Responsibilities - from the Kidney School web site
blue ball Patient Rights - 1-page pdf from the Northwest Renal Network
A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland
One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site.
End Stage Renal Disease Network Program 2013 Summary Annual Report - 53-page pdf
Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) - USRDS Presentations & Posters, 2015 Researcher's Guide and the 2015 USRDS annual report- from the United States Renal Data System (USRDS) web site

AAKP Patient Plan©: Four phase education plan from the American Association of Kidney Patients (AAKP) web site

blue ball A-Z Patient Education Library from the Northwest Renal Network’s Patient Education and Orientation Learning and Action Network (LAN) 
Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site
The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site
End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish)
blue ball Video on Failing Kidneys and Different Treatment Options - Posting from the Precious Bodily Fluids blog. 
Financial Help for Treatment of Kidney Failure from the NKUDIC web site
Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site
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Dialysis Saves Lives is a 6 minute video to educate patients about dialysis from Fresenius Medical Care and the National Kidney Foundation (NKF) - May 2011
The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Living with Kidney Disease DVD - from Kidney Research UK web site
Book: Help, I Need Dialysis! How to have a good future with kidney disease by Dori Schatell, MS and Dr. John Agar © 2012
How to Have a Good Future with Kidney Disease a Life Options CKD Patient Education Toolkit - 2011
The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Kidney Diseases Dictionary from the NIDDK web site
Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired).
Medicare Basics - from the Medicare.gov
Medicare for Children with Chronic Kidney Disease from the Medicare web site
The Medicare-Medicaid Relationship (pdf format requires Adobe Acrobat reader) from the Medicare web site
CMS Center for Medicare & Medicaid Innovation from the Medicare web site
Your Medicare Rights and Protections (pdf format requires Adobe Acrobat reader) from the Medicare web site
Medicare-Approved Drug Discount Cards
    Medicare Plan Finder
    Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader)
    Making It Easier At the Pharmacy Counter
Medicare Telehealth Services from the Medicare web site
Health Information Frequently Asked Questions from NIDDK web site
Complaint Process for Medicare Beneficiaries from the Office of Inspector General
Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book
Family Reunion Health Guide (pdf) resource from the National Kidney Disease Education Program.
Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site
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  GENERAL RESOURCES
E-Kidney - The online newsletter of the National Kidney Foundation (NKF)
Kidney Beginnings: A Patient's Guide - brochure from the American Association of Kidney Patients (AAKP) web site
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Current Issue of At Home with AAKP an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP)
The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site
AAKP Public Policy from the American Association of Kidney Patients (AAKP)
aakpRenalife a magazine for dialysis patients from the American Association of Kidney Patients (AAKP)
A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999
Adherence Toolkit - Resources from The Renal Network, Inc.
Alternative Remedies from the Kidney School web site
blue ball Anemia - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
blue ball Bone and Mineral Metabolism - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
Books and pamphlets available from The Renal Network (ESRD Networks 9/10)
CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site
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new ChoosingDialysis - "Empowering patients on choices for renal replacement therapy" 

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Chronic Kidney Disease patient page from the Journal of the American Medical Association. - May 24/31, 2016

Clinical Trials: Kidney Disease from the Center Watch web site
Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure
Diabetes HealthSense provides easy access to resources to help you live well and meet your goals—whether you have diabetes or are at risk for the disease.rom the National Diabetes Education Program web site
The Diabetes Quiz web site
blue ball Diabetic Kidney Disease - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
"Dialysis Answers” Fact Sheets - educational resources from Life Options web site
Dialysis Facility Compare feature from Medicare
Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated!
DPC Education Center - dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers, and developing favorable public policy solutions.
Dialysis, the Flu, and You from Home Dialysis Central web site

Dialysis Options Video from the Medical Education Institute's Lets Talk About... LifeOptions page

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Dialysis - You Have Options (pdf) from Northwest Renal Network web site

Emergency Preparedness Resource from ESRD Network #4

Engaging Patients in Care Design - from Hospital & Health Networks

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Essentials of Chronic Kidney Disease - KidneyTalk podcast from Renal Support Network. - October 6, 2015

Self Management UK is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives.
Family Reunion Health Guide (pdf) from the National Kidney Disease Education Program web site
Free Online Patient Education Resource for Kidney Diseases Available in 20 Languages from Kidneyeducation.com
Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site
Health Library from the Renal Support Network (RSN) web site
Health, United States from the Centers for Disease Control (CDC)
Heart Health, Blood Pressure, and Fluids from the Kidney School web site

Help! I Need Dialysis! -- E-book by Dori Schatell, John Agar

High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site
Hospital Compare from the U.S. Department of Health & Human Services web site
How to protect yourself in the hospital from Home Dialysis Central web site

How To Use the Data.Medicare.Gov Websites - recorded webinar from the Centers for Medicare & Medicaid Services (CMS)

How to Weather Winter Storms from Fresenius Medical Care
I Have Diabetes - from the National Diabetes Education Program web site
Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Keeping Kidney Patients Safe web site
KEY - Kidney Education and You - free kidney education classes from the DaVita web site
The Kidneys and Kidney Disease (pdf) from Kidney Health New Zealand
Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site
Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site
Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK)
Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules and Audio Books
KidneyTalk from the Renal Support Network web site

Knowledge is Power Kits from the Heartland Kidney Network - February 2013
My Kidney Kit - My Clinic Plan (pdf)
My Kidney Kit - Introduction
My Kidney Kit - My Treatment
My Kidney Kit - My Plan
My Kidney Kit - My Network
My Kidney Kit - My Information
My Kidney Kit - My Life
My Kidney Kit - My Choices

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Know Your Treatment Options - Graphic from the National Renal Administrators Association.

A Leadership Resource for Patient and Family Engagement Strategies - from the Hospitals in Pursuit of Excellence web site
Live & Give Newsletter - latest bi-annual update helping educate and motivate people living with chronic kidney disease from Renal Support Network
Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site
Medical Nutrition Therapy Services from Medicare.gov
Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site
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My Life, My Dialysis Choice - KidneyTalk podcast from Renal Support Network

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National Institute of Diabetes and Digestive Diseases (NIDDK) Publications in English and Spanish

  • Chronic Kidney Disease and Medicines (Brochure) (EnglishSpanish)
  • Is My Child At Risk for Kidney Disease? (EnglishSpanish)
  • What I need to know about Kidney Failure and How It's Treated (EnglishSpanish)
National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site
NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications.
PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference.
The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care
NIDDK Publications On-line from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

Pair Up Health Fact Sheets - September 2011
Diabetes and Your Kidneys
High Blood Pressure and Your Kidneys

Patient & Family Council information from the National Kidney Foundation (NKF)

Type 2 Diabetes Patient Resources - Trusted online resources from Medpage Today.

Preventive Services Educational Resource Web Guide from the Centers for Medicare & Medicaid Services web site
Publications from the Kidney Foundation of Canada web site
Quackwatch - A Guide to Health Fraud, Quackery, and Intelligent Decisions.
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Understanding Kidney Disease (Four free book chapters) - resource from ISN Education- January 2016

Understanding Your Kidneys - 8-page (pdf) issue of Kidney Health. - August 2010
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What I Have Learned And How It Can Help - book by dialysis patient Elliott B. Brown

What is Chronic Kidney Disease? from the Nephron Information Center web site
Working with Your Healthcare Team - from the Kidney School web site
Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site
Your Kidneys and How They Work from NIDDK web site
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  HEMODIALYSIS INFORMATION
Latest Scientific Journal Articles on Hemodialysis Adequacy
Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader)
Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Hemodialysis Dose and Adequacy from the NKUDIC web site
blue ball Hemodialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.

A Patient Guide to Machine Alarms - from the Northwest Renal Network.

Find a home dialysis center in your area from the Home Dialysis Central web site

Live healthier, better, longer with more frequent home hemodialysis an educational booklet that outlines the documented benefits and risks of home and more frequent home hemodialysis therapy from the NxStage web site

Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated!
Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated!
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  PERITONEAL DIALYSIS INFORMATION
Latest Scientific Journal Articles on Peritoneal Dialysis Adequacy
Adequate Peritoneal Dialysis Therapy Topic Page from RenalWEB Continually Updated!
Fact Sheets from ANNA: Peritoneal Dialysis and Pediatric ESRD: Peritoneal Dialysis (pdf format requires Adobe Acrobat reader)
Hernias and peritoneal dialysis: What you need to know - from the Home Dialysis Central web site
How you look on PD: Coping with body image changes - from the Home Dialysis Central web site
International Society for Peritoneal Dialysis Training Plans (pdf), and Peritoneal Dialysis Training Video
blue ball Peritoneal Dialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
Peritoneal Dialysis (PD) Catheter Placement: What to Expect - from Home Dialysis Central web site
Peritoneal Dialysis Dose and Adequacy from the NKUDIC web site
Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site
Saying yes to PD: separating myth from fact - page down to view article from Home Dialysis Central web site
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  VASCULAR ACCESS INFORMATION
Latest Scientific Journal Articles on Vascular Access
Fistula First web page from the ESRD Network Coordinating Center web site
Dialysis Access from the VascularWeb web site

Patient Pocket Guide: 6 Tips to Prevent Dialysis Infections - Download file from the Centers for Disease Control and Prevention. - October 2013

Let's Talk About Fistulas - 3 minute video from the Fistula First Breakthrough Iniiative (web site)

Video: Dialysis Patients Speak: a Conversation about the Importance of AV Fistulas - 12-minute video on YouTube produced in 2005 for the ESRD Network of New England. - December 13, 2012

Frequently Asked Questions about the ArterioVenous Fistula from the Northwest Renal Network web site

Helping the Patient Make Healthy Fistula Choices - educational Web-EX Series from The Renal Network.

Understanding Your Hemodialysis Access Options from the American Association of Kidney Patients (AAKP) web site
Just the Facts: Vascular Access and Información esencial: Acceso vascular (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Lifeline for a Lifetime – Your Vascular Access from the ESRD Network Coordinating Center (NCC) web site

Protect Your Access – It's Your Lifeline! from the Northwest Renal Network web site

Caring For & Developing Your New Fistula from the Northwest Renal Network web site
Vascular Access for Hemodialysis from the NKUDIC web site
Videos in Clinical Medicine: Placement of an Arterial Line from The New England Journal of Medicine (NEJM)
How Do I Look?: Taking the fear out of AV Fistula Placement - (pdf) from The Renal Network web site
3 Ps for Vascular Access Success - (pdf) Handbook from The Renal Network, Inc. - November 2010
Keeping Your Access Uncovered from the Northwest Renal Network
Blood Pump Speed and Your Dialysis Fistula - Article from Home Dialysis Central. - March 2010.

Self-Cannulation - Video via Renal Fellow Network web site

RenalWEB's Vascular Access Internet Resources Page Continually Updated!
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  TRANSPLANT & BIOTECHNOLOGY
Latest Scientific Journal Articles on Kidney Transplantation
2013 OPTN/SRTR Annual Report from the Scientific Registry of Transplant Recipients web site
Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader)
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Brochure Addresses Patients' Questions about Transplant Candidate Kidney Evaluation and Listing - PDF Resource from the United Network for Organ Sharing.

Financial Assistance for Living Donors web site
How the Transplant Waiting List Works - Article from KidneyTimes
KidneyLink - created by maintained by the PKD Foundation

Kidney Transplantation - Podcasts from The Renal Support Network

Living Kidney Donor Search Tools and Tips web site
National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site

Organ Donation Toolbox - from the Organ Donation and Transplantation Alliance web site

blue ball Renal Transplantation - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
TransWeb (All about transplantation and donation)
US Government web site on organ donation
Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site
blue ball Transplant Living from the United Network for Organ Sharing (UNOS) web site
Working with your Healthcare Team; Overcoming Barriers to Transplant (EnglishSpanish) from the End Stage Renal Disease Network of New York web site
Kidney Transplantation Topic Page from RenalWEB Continually Updated!
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  DIET
Latest Scientific Journal Articles on Nutrition
Chronic Kidney Disease: Nutrition Basics - Free, Full-text Article from Journal of Renal Nutrition - July 2011
Cookbooks for CKD Patients—2009 Update
DaVita Diet Helper from the DaVita web site

Delicious! - AAKP recipe cookbook

Diet Information from the Kidney Patient's Guide (UK site) web site
Eat Right To Feel Right On Hemodialysis from the NKUDIC web site
blue ball Fluid and Electrolytes - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
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Food Safety for Transplant Recipients - from the U.S. Food and Drug Administration

Home-Delivered Meal Options for Chronic Kidney Disease Patients full-text article from Journal of Renal Nutrition - September 2012

Kidney Community Kitchen from the Kidney Foundation of Canada Helps Dialysis Patients with Complex Burden of Diet Planning

Kidney-Friendly Frozen Meal Tips and Suggestions “In A Pinch” full-text article from Journal of Renal Nutrition - September 2012

Mom's Meals - home meal delivery for many with stage 5 kidney disease

Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Nutrition and Fluids for People on Dialysis from the Kidney School web site
Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient)
RenalWEB's Well Nourished Patient - Internet Resources Continually Updated!
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new Short How-To Recipe Videos Launch for Kidney Disease and Dialysis Patients - from DaVita Kidney Care

Smoothie Recipe Book for Renal and Heart Health by Victoria L Hulett JD (Author), Jennifer L Waybright RN (Contributor)

Spice it up! - Renal recipe web site from Canada. Spice it up! booklets are available in English and French, but they are not for sale. They are distributed by renal dietitians to dialysis patients (free of charge).

Truly Tasty - Renal cookbook from Ireland
Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site
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  K/DOQI™ -  Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" )

K/ DOQI Main Page on the National Kidney Foundation web site

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  PUBMED SEARCHES (National Library of Medicine's MEDLINE Database)
PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed.
hemodialysis Continually Updated!
adequacy AND hemodialysis Continually Updated!
peritoneal dialysis Continually Updated!
vascular access AND dialysis Continually Updated!
exercise and dialysis Continually Updated!
renal transplantation AND dialysis Continually Updated!
MEDLINE / Pubmed Information from the National Library of Medicine
Also consider using Yahoo to locate web sites and web pages on any topic of your choice.


  DISCUSSION FORUMS
Care-Partners for Home Dialysis discussion page
Dialysis Nursing Discussion Forum on RenalWEB
HealCam - from MedGadget.
I Hate Dialysis discussion page
Living Donors Online Message Board discussion page
Nephkids - a cyber-support group for Parents of Children with Kidney Disease
Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient)
Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten)
Vascular Access Discussion Forum on RenalWEB
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  ORGANIZATIONS AND GOVERNMENT AGENCIES
Alliance for Home Dialysis web site

American Association of Kidney Patients (AAKP) web site

American Diabetes Association (ADA) web site

American Kidney Fund (AKF) web site

B.Braun Avitum web site

BestHealth web site

Caregiver Action Network (CAN) web site

CaregiverStress web site
Coalition for Supportive Care of Kidney Patients web site
Congressional Kidney Caucus web site
DaVita Patient Citizens from the DaVita web site
Dialysis/Transplant Patient web sites
The Disabled Living Foundation web site
The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site
European Kidney Patients' Federation web site (UK version)
Everyday Choices for A Healthier LIFE web site

Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks

iHealthRecord web site is a no cost, secure and confidential interactive record that lets you keep all your health information organized, accurate and in one place.
HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs
Home Dialysis Central web site
Home Dialyzors United web site
Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD) web site

Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid

Kidney & Urology Foundation of America (KUFA) web site
Kidney Community Emergency Response web site

The Kidney Foundation of Canada web site

KidneysDoThat.org web site
blue ball

KIDNEYNATION, a Community United to Fund the Fight Against Kidney Disease

Kidney Smart web site from DaVita

Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential"

Living Kidney Donor Network web site
Living Kidney Donor Search web site

Lupus Foundation of America web site

MedWish web site for donating medical supplies
National Center for Complementary and Alternative Medicine (CAM) web site
National Foundation for Transplants web site

National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site

National Institute of Health NIHSeniorHealth.gov web site

National Kidney Federation (UK site) web site

National Kidney Foundation (US site) web site

National Kidney Registry web site

National Kidney and Urologic Diseases Information Clearinghouse web site

National Patient Safety Agency web site (UK organization)
Patient Access Network Foundation web site - medication assistance

Patient Advocate Foundation (PAF) web site

Polycystic Kidney Research Foundation web site

Renal Support Network (RSN) web site

Restless Legs Syndrome Foundation web site

Stop Medicare Fraud.gov web site

Transplant Living web site

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  PRODUCTS
Dialysis Arm Bands — Protect your access from GEM ideas LLC
Emergency Medical Emblems from Medic Alert
Emergency Medical Bracelets from The ID Band Company
Quick Release Tourniquet from AZReam
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  STATISTICS
Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS)
Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site
US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2020 Objectives
statehealthfacts.org - your source for state health data
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  UPCOMING EVENTS
National Kidney Foundation (NKF) Health Screening Schedule
Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261
Renal Support Network (RSN) Renal Events Calendar
Complimentary Audio Conferences - Audio conferences from the HealthWell Foundation® web site
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  YOUR WORDS
Fifteen dialysis cartoons by Lori James-Hartwell
Your Words feature on RenalWEB
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  RELATED WEB PAGES & TOPICS
A Full and Comfortable Life Topic Page from RenalWEB Continually Updated!
Dialysis and AAMI Standards - a book of standards and recommended practices for dialysis that can be ordered from the Association for the Advancement of Medical Instrumentation (AAMI)
National Guideline Clearinghouse - evidence-based clinical practice guidelines
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  INPUT / SUGGESTIONS
E-mail to RenalWEB on the Patient Education Resources Page
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