RenalWEB Home Page
Last Updated 05/22/16

Hemodialysis Info

Initially, the diagnosis of end-stage renal disease (ESRD) and the prospect of relying on dialysis treatments for survival are almost always devastating and overwhelming for an individual and their family. However, once people have had time to accept and to begin to deal with the necessary life changes, dialysis-related educational resources are a necessity for attaining a sense of control in one's life.  Gradually increasing feelings of confidence and empowerment replace the initial confusion and despair when educational resources are readily available.

The Internet has a wealth of information available for dialysis patients with a few clicks of a mouse. Information resources range from basic explanations in layman's terms of dialysis procedures and technology to search engines for browsing through the 11 million articles in the National Library of Medicine's MEDLINE database.  If you take a little time to become familiar with using PubMed, you can research the latest medical information on any topic of your choice.

In an effort to make finding information easier, RenalWEB has organized many of these resources into groupings that we hope you will find useful. You will find eighteen categories listed to the left of this paragraph. With over 200 links, even the seasoned veterans will find new and interesting information. For articles, ideas, and sources to answer some of the questions you may have on how to make life with dialysis more comfortable and fulfilling, please visit RenalWEB's A Full and Comfortable Life page.

This listing will be continuously updated as more resources become available on the Internet. Please contact us to suggest web-based resources that you have found useful. If you find this information useful and would like to share it with others, print this flyer and distribute it in your dialysis facility.

Warning:  Changes should never be made in a patient's treatment or care based solely on the information found here.  Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made.  All medical and therapeutic decisions must come from a qualified health care provider.  Read RenalWEB's Legal Disclaimer before proceeding.


  NEWS AND LATEST ARTICLES
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Kidney Charity (Dialysis Patients Citizens) Files Civil Rights Complaint Against Idaho Blue Cross For Rejecting Qualified Health Plans (QHP) Payments - Headline only from the pay-for-view web site InsideHealthPolicy.com.  - May 19, 2016

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Patient and Other Stakeholder Engagement in Patient-Centered Outcomes Research Institute Funded Studies of Patients with Kidney Diseases - CJASN Express abstract. - May 19, 2016
Editor's note: Perhaps more patients would participate in research that is based on a well-patient model.

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How Do Patients Experience a Kidney Biopsy - Early View abstract from Journal of Renal Care. - May 19, 2016

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The New Era of Informed Consent — Getting to a Reasonable-Patient Standard Through Shared Decision Making - Article from the Journal of the American Medical Association.  - May 17, 2016
"Informed consent discussions are often devoid of details about the material risks, benefits, and alternatives that are critical to meaningful patient decision making."

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Living with Moderate to Severe Renal Failure from the Perspective of Patients - Free, full-text, Open Access article from BMC Nephrology. - May 16, 2016
Conclusions: This study offers important new insights into an expanding group of patients having moderate-to-severe chronic kidney disease. Healthcare professionals should acknowledge their problems instead of ignoring or rejecting them and they should support patients in finding a way to deal with them. The assumptions of Personalised Care Planning could be used to support patients.

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Your Patient Should Get a Health Coach. Here's Why - Posting from the KevinMD blog. - May 15, 2016

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Patient Perspectives and Health Disparities - Posting from the AJKD Blog - May 14, 2016

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Do Patient Reported Measures of Symptoms and Health Status Predict Mortality in Hemodialysis? An Assessment of POS-S Renal and EQ-5D - Early View abstract from Hemodialysis International. - May 14, 2016

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Mortality Rates and Walking Ability Transition after Lower Limb Major Amputation in Hemodialysis Patients - Articles in Press Abstract from Journal of Vascular Surgery - May 14, 2016

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Thomas Parker, M.D. Retires After 18 Years With Renal Ventures Management, LLC - Press release. - May 12, 2016
Editor's note: In August of 2015, Renal Ventures Management announced that it would be acquired by DaVita HealthCare Partners for $415 million. Estimating that Renal Ventures Management had 2500 patients at that time, the per-patient price was $166,000.

According to the United States Renal Data System (USRDS), DaVita is the worst place for dialysis patients to receive care in terms of mortality and hospitalizations (see Tables 10.2 and 10.4 in Chapter 10 of the 2015 USRDS report). DaVita also led the list of U.S. companies that settled fraud allegations with the U.S. government in 2015 ($800 million).

Who pays top dollar for dialysis facility acquisitions? Junk-bond-financed for-profit corporations.

Are dialysis patients aware that they are being sold for profit like commodities?

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Smartphone-based System May Improve Health of Patients with Chronic Diseases - Press release and CJASN Express abstract from the American Society of Nephrology. - May 12, 2016

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Eversense 90-day Continuous Glucose Monitor CE Marked in Europe - May 11, 2016

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Patient's Perceptions of Chronic Kidney Disease and Their Association with Psychosocial and Clinical Outcomes: a Narrative Review - Free, full-text, Advance Access article from Clinical Kidney Journal. - May 10, 2016

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Study Examines Use of Telemedicine among Rural Medicare Beneficiaries - Press release and research letter extract from the Journal of the American Medical Association. - May 10, 2016

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Study: Medicare Part D Boosts Medication Adherence, Reduces Blood Pressure Risk - Press release from North Carolina State University. - May 9, 2016

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1.3 Million Seniors with Severely Impaired Vision Report Falling in 2014 - May 6, 2016

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Drug Combination Could Help Reduce Risk of Death in Type 2 Diabetes - May 5, 2016

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Hospital Discharge: It's One Of The Most Dangerous Periods For Patients - Article from Kaiser Health News. - May 2, 2016

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Tele-Nephrology - AJKD Blog Coverage of NKF 2016 Spring Clinical Meetings - May 1, 2016

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Missed Dialysis Sessions Linked to High Temperature, Heavy Rain - Renal & Urology News Coverage of NKF Spring Clinical Meetings - May 1, 2016

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Analysis Shows Dialysis Center Five Star Rating Success Stories Not Tied to Quality of Care - Article from Nephrology News & Issues. - April 29, 2016
  #1)  Luck !!!

“There is no patient input to the quality ratings being used by Medicare for dialysis centers. Quality ratings that at least partially consider patient satisfaction with their dialysis treatments might produce very different rankings,” Stephens said.

Editor's note:
Is this outstanding medicine or what?

How many more millions of dollars and precious time must we waste trying to create a quality measurement system that uses biochemical markers that do not matter to patients — or uses measures that can be "manufactured" through manipulation and/or cheating?

The best example of excellence in dialysis care is a long-time employed ESRD patient. Unfortunately, CMS, U.S. nephrologists, and the large for-profit dialysis providers have ignored this outcome for decades. They have instead focused on biochemical markers, which has led to few improvements in the patients' quality of life or technological innovations over the last 40 years.

While DaVita and Fresenius have recently announced programs to support employment, there is little to them beyond "turfing" patients to government agencies that have no dialysis expertise. It seems to be a new version of the intern's way to avoid addressing patients' needs. Remember "buff and turf" from The House of God?

What if Fresenius and DaVita employed dialysis patients and also paid their health insurance premiums? Extending the Medicare Secondary Payer (MSP) period for employed patients would then drive tremendous changes in this field of for-profit medicine.

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Speaker Paul Ryan Calls For End To Health Law’s Premium-Cost Protections For People Who Are ill - News summary from Kaiser Health News. - April 28, 2016

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CMS Adds New Quality Measures to Nursing Home Compare - April 27, 2016

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Patient Education and Peritoneal Dialysis Modality Selection: A Systematic Review and Meta-analysis - Article in Press abstract from American Journal of Kidney Diseases. - April 26, 2016

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Long Term Outcomes of Diabetic Hemodialysis Patients with Critical Limb Ischemia and Foot Ulcer - Article in Press abstract from Diabetes Research and Clinical Practice. - April 26, 2016

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Efficacy and Safety of Saxagliptin, a Dipeptidyl Peptidase-4 Inhibitor, in Hemodialysis Patients with Diabetic Nephropathy: a Randomized Open Label Prospective Trial - Free, full-text, Open Access Article in Press from Diabetes Research and Clinical Practice. - April 25, 2016

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The New Era of Informed Consent — Getting to a Reasonable-Patient Standard Through Shared Decision Making - Free, full-text, Online First viewpoint article from the Journal of the American Medical Association. - April 21, 2016

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Medicare Delays Plans For New Star Ratings On Hospitals After Congressional Pressure - Article from Kaiser Health News. - April 20, 2016

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Nursing Homes: Publicly Funded Care Delivered in For-Profit Facilities Is Inferior to Care Delivered in Public or Nonprofit Facilities - Press release and full-text article from PLOS Medicine. - April 19, 2016
Editor's note: The Hippocratic Oath vs. medical materialism. The U.S. experiment in balancing medical decisions and profit motives does have its most spectacular failures.

It appears that our society's most vulnerable patients (in nursing homes and dialysis clinics) are also the most susceptible to medical decisions that favor corporate owners over patient well-being. The weakest get used.

In U.S. dialysis care, the Peer Group and the American Society of Nephrology continue to be blind to the impact of financial incentives/structures on U.S. dialysis care. Has any other field of medicine made so little progress in the last 40 years? Does any other field of medicine have so many physicians admitting that they would choose better treatment regimens for themselves than they provide for vast majority of their patients?

Why has the largest non-profit dialysis provider (DCI) delivered better mortality and hospitalization outcomes than the largest for-profit, junk-bond-financed, dialysis providers for 13 years?  Most U.S. nephrologists advocate for whom?

Our system is out of balance and, in many ways, self-defeating. Denial of the harmful effects of profit motives — and the legal implications of acknowledging the thousands of avoidable patient deaths — prevents any meaningful changes from occurring. As a result, most dialysis patients will continue to be shepherded into more harmful, for-profit, treatment regimens.

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Diagnosis and Management of Diabetes: Synopsis of the 2016 American Diabetes Association Standards of Medical Care in Diabetes - Free, full-text, clinical guidelines from Annals of Internal Medicine. - April 19, 2016

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Double Advantage of Potential New Diabetes Treatment - April 19, 2016

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Caregiver Word Reading Literacy and Health Outcomes among Children Treated in a Pediatric Nephrology Practice - Free, full-text, Advance Access article from Clinical Kidney Journal. - April 18, 2016

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Here's Why You Can't Believe "Top Hospitals" Lists - Posting from the KevinMD Blog. - April 14, 2016

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Physicians and Patients Must Retake Control of How Health Care Is Delivered - Posting from the KevinMD blog. - April 13, 2016

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Fresenius Medical Care North America's Dialysis Division Is Now Fresenius Kidney Care - Press release. - April 13, 2016
From the Fresenius Kidney Care web site:

"Want to stay at your job or find a new one? Go for it. There are laws that protect your rights as a worker, like the Americans with Disabilities Act, the Family and Medical Leave Act, the Ticket to Work and Work Incentives Improvements Act and Social Security Work Incentive Programs."

Editor's note: Other than "assisting" a patient in choosing a dialysis modality (which may or may not be available locally), there seems to be little being done for patients regarding employment and rehabilitation.

Until these for-profit corporations have a financial incentive -- rather than disincentives -- to increase patient employment and rehabilitation, these "thrive" programs will consist of little more than throwing information and hyperlinks at patients and saying, "Go for it."

For working-age patients, this remains largely self-defeating and far from holistic dialysis care. Due to decades of paternalistic care and ineffective patient advocacy, the large for-profit corporations have neither the infrastructure, the technology, the professional expertise, nor the needed patient feedback mechanisms to drive significant improvements in employment and rehabilitation rates. Ratios of patients-to-social workers (and nurses) are far too high for any meaningful change to occur. As Dr. Scribner said, "If the treatment of chronic uremia cannot fully rehabilitate the patient, the treatment is inadequate."

Without financial incentives for these corporations, only the patients with a strong will to overcome enormous obstacles -- essentially on their own -- will thrive. Almost all other patients will default to short-time, in-center, daytime treatments, and enslavement to a life called dialysis.

This situation will only truly change when these profit-focused companies can tell working-age patients, "It is financially advantageous for our company that you remain employed and/or get rehabilitated." Physicians and patients must fight for the holistic care that was the norm in dialysis care 45 years ago.

Fresenius and DaVita should employ dialysis patients. Then they would gain the expertise needed to truly help working-age patients.

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Most of the Care You're Receiving Isn't Patient Centered. Here's Why - Posting from the KevinMD Blog - April 12, 2016

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Avalere: Biosimilars Cost Seniors More Than Brand Biologics In Medicare Part D - News item from Morning Consult. - April 12, 2016

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Kidney Stone Patients Hospitalized on the Weekend May Get Delayed Treatment - April 11, 2016

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Association Between the Centers for Medicare and Medicaid Services Hospital Star Rating and Patient Outcomes - Free, full-text, Online First research letter from JAMA Internal Medicine. - April 10, 2016
Editor's note: DaVita publicizes the fact that they have the highest number of 5-star rated clinics, but according to the latest USRDS report, DaVita clinics have the worst mortality and hospitalization data.

Cheating has been rampant in the U.S. dialysis industry in the reporting of "quality" data to the government. As a result, we have decades of largely useless data.

blue ball The Newsroom of the National Kidney Foundation web site
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Latest Dialysis News Stories from  Yahoo   Continually Updated!
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Latest Transplant News Stories from Yahoo  Continually Updated!
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  ESSENTIAL INFORMATION
blue ball Patient Rights and Responsibilities - from the Kidney School web site
blue ball Patient Rights - 1-page pdf from the Northwest Renal Network
A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland
One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site.
End Stage Renal Disease Network Program 2013 Summary Annual Report - 53-page pdf
Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) -USRDS Presentations & Posters, 2014 Researcher's Guide and the 2015 USRDS annual report - from the United States Renal Data System (USRDS) web site

AAKP Patient Plan©: Four phase education plan from the American Association of Kidney Patients (AAKP) web site

blue ball A-Z Patient Education Library from the Northwest Renal Network’s Patient Education and Orientation Learning and Action Network (LAN) 
Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site
The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site
End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish)
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Financial Help for Treatment of Kidney Failure from the NKUDIC web site
Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site
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Dialysis Saves Lives is a 6 minute video to educate patients about dialysis from Fresenius Medical Care and the National Kidney Foundation (NKF) - May 2011
The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Living with Kidney Disease DVD - from Kidney Research UK web site
Book: Help, I Need Dialysis! How to have a good future with kidney disease by Dori Schatell, MS and Dr. John Agar © 2012
How to Have a Good Future with Kidney Disease a Life Options CKD Patient Education Toolkit - 2011
The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Kidney Diseases Dictionary from the NIDDK web site
Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired).
Medicare Basics - from the Medicare.gov
Medicare for Children with Chronic Kidney Disease from the Medicare web site
The Medicare-Medicaid Relationship (pdf format requires Adobe Acrobat reader) from the Medicare web site
CMS Center for Medicare & Medicaid Innovation from the Medicare web site
Your Medicare Rights and Protections (pdf format requires Adobe Acrobat reader) from the Medicare web site
Medicare-Approved Drug Discount Cards
    Medicare Plan Finder
    Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader)
    Making It Easier At the Pharmacy Counter
Medicare Telehealth Services from the Medicare web site
Health Information Frequently Asked Questions from NIDDK web site
Complaint Process for Medicare Beneficiaries from the Office of Inspector General
Intensive Intervention With The Non-Compliant Patient+ (requires Microsoft Word™) from the End Stage Renal Disease Network 14 web site
Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book
Family Reunion Health Guide (pdf) resource from the National Kidney Disease Education Program.
Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site
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  GENERAL RESOURCES
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E-Kidney - The online newsletter of the National Kidney Foundation (NKF)
Kidney Beginnings: A Patient's Guide - brochure from the American Association of Kidney Patients (AAKP) web site
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Current Issue of At Home with AAKP an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP)
The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site
AAKP Public Policy from the American Association of Kidney Patients (AAKP)
aakpRenalife a magazine for dialysis patients from the American Association of Kidney Patients (AAKP)
A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999
Adherence Toolkit - Resources from The Renal Network, Inc.
Alternative Remedies from the Kidney School web site
blue ball Anemia - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
blue ball Bone and Mineral Metabolism - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
Books and pamphlets available from The Renal Network (ESRD Networks 9/10)
CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site
Clinical Trials: Kidney Disease from the Center Watch web site
Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure
Diabetes HealthSense provides easy access to resources to help you live well and meet your goals—whether you have diabetes or are at risk for the disease.rom the National Diabetes Education Program web site
The Diabetes Quiz web site
blue ball Diabetic Kidney Disease - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
"Dialysis Answers” Fact Sheets - educational resources from Life Options web site
Dialysis Facility Compare feature from Medicare
Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated!
DPC Education Center - dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers, and developing favorable public policy solutions.
Dialysis, the Flu, and You from Home Dialysis Central web site

Dialysis Options Video from the Medical Education Institute's Lets Talk About... LifeOptions page

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Dialysis - You Have Options (pdf) from Northwest Renal Network web site

Emergency Preparedness Resource from ESRD Network #4

Engaging Patients in Care Design - from Hospital & Health Networks

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Essentials of Chronic Kidney Disease - KidneyTalk podcast from Renal Support Network. - October 6, 2015

Self Management UK is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives.
Family Reunion Health Guide (pdf) from the National Kidney Disease Education Program web site
Free Online Patient Education Resource for Kidney Diseases Available in 20 Languages from Kidneyeducation.com
Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site
Health Library from the Renal Support Network (RSN) web site
Health, United States from the Centers for Disease Control (CDC)
Heart Health, Blood Pressure, and Fluids from the Kidney School web site

Help! I Need Dialysis! -- E-book by Dori Schatell, John Agar

High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site
Hospital Compare from the U.S. Department of Health & Human Services web site
How to protect yourself in the hospital from Home Dialysis Central web site

How To Use the Data.Medicare.Gov Websites - recorded webinar from the Centers for Medicare & Medicaid Services (CMS)

How to Weather Winter Storms from Fresenius Medical Care
I Have Diabetes - from the National Diabetes Education Program web site
Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Keeping Kidney Patients Safe web site
KEY - Kidney Education and You - free kidney education classes from the DaVita web site
The Kidneys and Kidney Disease (pdf) from Kidney Health New Zealand
Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site
Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site
Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK)
Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules and Audio Books
KidneyTalk from the Renal Support Network web site

Knowledge is Power Kits from the Heartland Kidney Network - February 2013
My Kidney Kit - My Clinic Plan (pdf)
My Kidney Kit - Introduction
My Kidney Kit - My Treatment
My Kidney Kit - My Plan
My Kidney Kit - My Network
My Kidney Kit - My Information
My Kidney Kit - My Life
My Kidney Kit - My Choices

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Know Your Treatment Options - Graphic from the National Renal Administrators Association.

A Leadership Resource for Patient and Family Engagement Strategies - from the Hospitals in Pursuit of Excellence web site
Live & Give Newsletter - latest bi-annual update helping educate and motivate people living with chronic kidney disease from Renal Support Network
Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site
Medical Nutrition Therapy Services from Medicare.gov
Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site
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My Life, My Dialysis Choice - KidneyTalk podcast from Renal Support Network

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National Institute of Diabetes and Digestive Diseases (NIDDK) Publications in English and Spanish

  • Chronic Kidney Disease and Medicines (Brochure) (EnglishSpanish)
  • Is My Child At Risk for Kidney Disease? (EnglishSpanish)
  • What I need to know about Kidney Failure and How It's Treated (EnglishSpanish)
National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site
NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications.
PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference.
The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care
NIDDK Publications On-line from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

Pair Up Health Fact Sheets - September 2011
Diabetes and Your Kidneys
High Blood Pressure and Your Kidneys

Patient & Family Council information from the National Kidney Foundation (NKF)

Type 2 Diabetes Patient Resources - Trusted online resources from Medpage Today.

Preventive Services Educational Resource Web Guide from the Centers for Medicare & Medicaid Services web site
Publications from the Kidney Foundation of Canada web site
Quackwatch - A Guide to Health Fraud, Quackery, and Intelligent Decisions.
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Understanding Kidney Disease (Four free book chapters) - resource from ISN Education- January 2016

Understanding Your Kidneys - 8-page (pdf) issue of Kidney Health. - August 2010
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What I Have Learned And How It Can Help - book by dialysis patient Elliott B. Brown

What is Chronic Kidney Disease? from the Nephron Information Center web site
Working with Your Healthcare Team - from the Kidney School web site
Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site
Your Kidneys and How They Work from NIDDK web site
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  HEMODIALYSIS INFORMATION
Latest Scientific Journal Articles on Hemodialysis Adequacy
Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader)
Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Hemodialysis Dose and Adequacy from the NKUDIC web site
blue ball Hemodialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.

A Patient Guide to Machine Alarms - from the Northwest Renal Network.

Find a home dialysis center in your area from the Home Dialysis Central web site

Live healthier, better, longer with more frequent home hemodialysis an educational booklet that outlines the documented benefits and risks of home and more frequent home hemodialysis therapy from the NxStage web site

Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated!
Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated!
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  PERITONEAL DIALYSIS INFORMATION
Latest Scientific Journal Articles on Peritoneal Dialysis Adequacy
Adequate Peritoneal Dialysis Therapy Topic Page from RenalWEB Continually Updated!
Fact Sheets from ANNA: Peritoneal Dialysis and Pediatric ESRD: Peritoneal Dialysis (pdf format requires Adobe Acrobat reader)
Hernias and peritoneal dialysis: What you need to know - from the Home Dialysis Central web site
How you look on PD: Coping with body image changes - from the Home Dialysis Central web site
International Society for Peritoneal Dialysis Training Plans (pdf), and Peritoneal Dialysis Training Video
blue ball Peritoneal Dialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
Peritoneal Dialysis (PD) Catheter Placement: What to Expect - from Home Dialysis Central web site
Peritoneal Dialysis Dose and Adequacy from the NKUDIC web site
Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site
Saying yes to PD: separating myth from fact - page down to view article from Home Dialysis Central web site
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  VASCULAR ACCESS INFORMATION
Latest Scientific Journal Articles on Vascular Access
Fistula First web page from the ESRD Network Coordinating Center web site
Dialysis Access from the VascularWeb web site

Patient Pocket Guide: 6 Tips to Prevent Dialysis Infections - Download file from the Centers for Disease Control and Prevention. - October 2013

Let's Talk About Fistulas - 3 minute video from the Fistula First Breakthrough Iniiative (web site)

Video: Dialysis Patients Speak: a Conversation about the Importance of AV Fistulas - 12-minute video on YouTube produced in 2005 for the ESRD Network of New England. - December 13, 2012

Frequently Asked Questions about the ArterioVenous Fistula from the Northwest Renal Network web site

Helping the Patient Make Healthy Fistula Choices - educational Web-EX Series from The Renal Network.

Understanding Your Hemodialysis Access Options from the American Association of Kidney Patients (AAKP) web site
Just the Facts: Vascular Access and Información esencial: Acceso vascular (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Lifeline for a Lifetime – Your Vascular Access from the ESRD Network Coordinating Center (NCC) web site

Protect Your Access – It's Your Lifeline! from the Northwest Renal Network web site

Caring For & Developing Your New Fistula from the Northwest Renal Network web site
Vascular Access for Hemodialysis from the NKUDIC web site
Videos in Clinical Medicine: Placement of an Arterial Line from The New England Journal of Medicine (NEJM)
How Do I Look?: Taking the fear out of AV Fistula Placement - (pdf) from The Renal Network web site
3 Ps for Vascular Access Success - (pdf) Handbook from The Renal Network, Inc. - November 2010
Keeping Your Access Uncovered from the Northwest Renal Network
Blood Pump Speed and Your Dialysis Fistula - Article from Home Dialysis Central. - March 2010.

Self-Cannulation - Video via Renal Fellow Network web site

RenalWEB's Vascular Access Internet Resources Page Continually Updated!
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  TRANSPLANT & BIOTECHNOLOGY
Latest Scientific Journal Articles on Kidney Transplantation
2013 OPTN/SRTR Annual Report from the Scientific Registry of Transplant Recipients web site
Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader)
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Brochure Addresses Patients' Questions about Transplant Candidate Kidney Evaluation and Listing - PDF Resource from the United Network for Organ Sharing.

Financial Assistance for Living Donors web site
How the Transplant Waiting List Works - Article from KidneyTimes
KidneyLink - created by maintained by the PKD Foundation

Kidney Transplantation - Podcasts from The Renal Support Network

Living Kidney Donor Search Tools and Tips web site
National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site

Organ Donation Toolbox - from the Organ Donation and Transplantation Alliance web site

blue ball Renal Transplantation - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
TransWeb (All about transplantation and donation)
US Government web site on organ donation
Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site
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Working with your Healthcare Team; Overcoming Barriers to Transplant (EnglishSpanish) from the End Stage Renal Disease Network of New York web site
Kidney Transplantation Topic Page from RenalWEB Continually Updated!
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  DIET
Latest Scientific Journal Articles on Nutrition
Chronic Kidney Disease: Nutrition Basics - Free, Full-text Article from Journal of Renal Nutrition - July 2011
Cookbooks for CKD Patients—2009 Update
DaVita Diet Helper from the DaVita web site

Delicious! - AAKP recipe cookbook

Diet Information from the Kidney Patient's Guide (UK site) web site
Eat Right To Feel Right On Hemodialysis from the NKUDIC web site
blue ball Fluid and Electrolytes - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
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Food Safety for Transplant Recipients - from the U.S. Food and Drug Administration

Home-Delivered Meal Options for Chronic Kidney Disease Patients full-text article from Journal of Renal Nutrition - September 2012

Kidney Community Kitchen from the Kidney Foundation of Canada Helps Dialysis Patients with Complex Burden of Diet Planning

Kidney-Friendly Frozen Meal Tips and Suggestions “In A Pinch” full-text article from Journal of Renal Nutrition - September 2012
Kidney Kitchen from the National Kidney Foundation web site

Mom's Meals - home meal delivery for many with stage 5 kidney disease

My Food Coach from the National Kidney Foundation web site
Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Nutrition and Fluids for People on Dialysis from the Kidney School web site
Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient)
RenalWEB's Well Nourished Patient - Internet Resources Continually Updated!
Smoothie Recipe Book for Renal and Heart Health by Victoria L Hulett JD (Author), Jennifer L Waybright RN (Contributor)

Spice it up! - Renal recipe web site from Canada. Spice it up! booklets are available in English and French, but they are not for sale. They are distributed by renal dietitians to dialysis patients (free of charge).

Truly Tasty - Renal cookbook from Ireland
Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site
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  K/DOQI™ -  Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" )

K/ DOQI Main Page on the National Kidney Foundation web site

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  PUBMED SEARCHES (National Library of Medicine's MEDLINE Database)
PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed.
hemodialysis Continually Updated!
adequacy AND hemodialysis Continually Updated!
peritoneal dialysis Continually Updated!
vascular access AND dialysis Continually Updated!
exercise and dialysis Continually Updated!
renal transplantation AND dialysis Continually Updated!
MEDLINE / Pubmed Information from the National Library of Medicine
Also consider using Yahoo to locate web sites and web pages on any topic of your choice.


  DISCUSSION FORUMS
Care-Partners for Home Dialysis discussion page
Dialysis Nursing Discussion Forum on RenalWEB
HealCam - from MedGadget.
I Hate Dialysis discussion page
Living Donors Online Message Board discussion page
Nephkids - a cyber-support group for Parents of Children with Kidney Disease
Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient)
Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten)
Vascular Access Discussion Forum on RenalWEB
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  ORGANIZATIONS AND GOVERNMENT AGENCIES
Alliance for Home Dialysis web site

American Association of Kidney Patients (AAKP) web site

American Diabetes Association (ADA) web site

American Kidney Fund (AKF) web site

B.Braun Avitum web site

BestHealth web site

Caregiver Action Network (CAN) web site

CaregiverStress web site
Coalition for Supportive Care of Kidney Patients web site
Congressional Kidney Caucus web site
DaVita Patient Citizens from the DaVita web site
Dialysis/Transplant Patient web sites
The Disabled Living Foundation web site
The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site
European Kidney Patients' Federation web site (UK version)
Everyday Choices for A Healthier LIFE web site

Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks

iHealthRecord web site is a no cost, secure and confidential interactive record that lets you keep all your health information organized, accurate and in one place.
HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs
Home Dialysis Central web site
Home Dialyzors United web site
Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD) web site

Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid

Kidney & Urology Foundation of America (KUFA) web site
Kidney Community Emergency Response web site

The Kidney Foundation of Canada web site

KidneysDoThat.org web site+
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KIDNEYNATION, a Community United to Fund the Fight Against Kidney Disease

Kidney Smart web site from DaVita

Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential"

Living Kidney Donor Network web site
Living Kidney Donor Search web site

Lupus Foundation of America web site

MedWish web site for donating medical supplies
National Center for Complementary and Alternative Medicine (CAM) web site
National Foundation for Transplants web site

National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site

National Institute of Health NIHSeniorHealth.gov web site

National Kidney Federation (UK site) web site

National Kidney Foundation (US site) web site

National Kidney Registry web site

National Kidney and Urologic Diseases Information Clearinghouse web site

National Patient Safety Agency web site (UK organization)
Patient Access Network Foundation web site - medication assistance

Patient Advocate Foundation (PAF) web site

Polycystic Kidney Research Foundation web site

Renal Support Network (RSN) web site

Restless Legs Syndrome Foundation web site

Stop Medicare Fraud.gov web site

Transplant Living web site

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  PRODUCTS
Dialysis Arm Bands — Protect your access from GEM ideas LLC
Emergency Medical Emblems from Medic Alert
Emergency Medical Bracelets from The ID Band Company
Customized Silicone Wristbands+ from First Class Wristbands
Quick Release Tourniquet from AZReam
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  STATISTICS
Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS)
Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site
US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2020 Objectives
statehealthfacts.org - your source for state health data
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  UPCOMING EVENTS
National Kidney Foundation (NKF) Health Screening Schedule
Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261
Renal Support Network (RSN) Renal Events Calendar
Complimentary Audio Conferences - Audio conferences from the HealthWell Foundation® web site
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  YOUR WORDS
Fifteen dialysis cartoons by Lori James-Hartwell
Your Words feature on RenalWEB
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  RELATED WEB PAGES & TOPICS
A Full and Comfortable Life Topic Page from RenalWEB Continually Updated!
Dialysis and AAMI Standards - a book of standards and recommended practices for dialysis that can be ordered from the Association for the Advancement of Medical Instrumentation (AAMI)
National Guideline Clearinghouse - evidence-based clinical practice guidelines
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  INPUT / SUGGESTIONS
E-mail to RenalWEB on the Patient Education Resources Page
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Except where noted, no information within the RenalWEB web site can be copied, duplicated, or reproduced in any form without the express written consent of RenalWEB.