| RenalWEB Home Page | Last
Updated 4/21/19
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Warning: Changes should never be made in a patient's treatment or care based solely on the information found here. Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made. All medical and therapeutic decisions must come from a qualified health care provider. Read RenalWEB's Legal Disclaimer before proceeding.
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Connection between Patient Engagement and Outcomes Comes into Focus - Article from Healio (registration required). - April 2019 |
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8 Things to Watch for If You, or a Family Member, Is Hospitalized -
Posting from the KevinMD blog. - April 18, 2019 |
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Kidney Patients And The GW School Of Medicine And Health Sciences Host Inaugural Global Summit Focused On Innovations in Kidney Care -
Press release from George Washington University. - April 17, 2019 |
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Most Diabetes Phone Apps Lack Education, Support Functions - Article from HealthDay. - April 17, 2019 |
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Patient and Clinician Perspectives on Electronic Patient-Reported Outcome Measures in the Management of Advanced CKD: A Qualitative Study - Article in Press abstract from American Journal of Kidney Diseases. - April 16, 2019 |
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Hackers' Favorite Target Is Now Health Care, Report Finds -
Article from Nashville Public Radio. - April 16, 2019 |
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Improving the Patient Protection and Affordable Care Act's Insurance Coverage Provisions: A Position Paper From the American College of Physicians -
Free, full-text, Latest Article from Annals of Internal Medicine. - April 16, 2019 |
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Free, New Online Articles from the Journal of the American Medical Association - April 15, 2019 |
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Dialysis Initiation, Modality Choice, Access, and Prescription: Conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference - Free, Open Access, Article in Press from Kidney International. - April 12, 2019 |
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92% of Mount Sinai Patients Engage When Prescribed an App - Article from Healthcare IT News. - April 12, 2019 |
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Dialysis 101 for Home Hemodialysis (HD) -
Posting from the KidneyViews blog. - April 11, 2019 |
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Sanofi To Cut U.S. Insulin Costs for Some Patients to $99 per Month -
Article from Reuters. - April 10, 2019 |
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Drive for Dialysis -
National Kidney Foundation program. Recent tweet about collaboration with Microsoft. - April 8, 2019 |
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CMS Finalizes Policies to Bring Innovative Telehealth Benefit to Medicare Advantage -
Press release from CMS. - April 5, 2019 |
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Contract Year 2020 Medicare Advantage and Part D Flexibility Final Rule (CMS-4185-F) - Fact sheet from CMS. - April 5, 2019 |
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Democratic Proposals to Overhaul Healthcare: a 2020 Primer -
Article from The Hill. - April 4, 2019 |
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Amazon Alexa is Now HIPAA-Compliant. Tech Giant Says Health Data Can Now Be Accessed Securely -
Article from STAT. - April 4, 2019 |
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The Implications of "Medicare for All" for US Hospitals - Free, full-text, New Online viewpoint article from the Journal of the American Medical Association. - April 4, 2019 |
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Continuous Subcutaneous Insulin Infusion Versus Multiple Daily Injection Regimens in Children and Young People at Diagnosis of Type I Diabetes: Pragmatic Randomized Controlled Trial and Economic Evaluation -
Free, full-text article, patient perspective and author perspective from The BMJ. - April 3, 2019 |
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Use of a Decision Aid for Patients Considering Peritoneal Dialysis and In-Center Hemodialysis: A Randomized Controlled Trial -
Free, full-text, Article in Press from American Journal of Kidney Diseases. - April 3, 2019 |
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Articles from Medical Economics -- April 3, 2019 |
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CIGNA Says It Will Cap Insulin Costs at $25 a Month for Some Patients -
Articles from MassDevice and The Hill. - April 3, 2019 |
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Patient-Reported Advantages and Disadvantages of Peritoneal Dialysis: Results from the PDOPPS -
Free, Open Access article from BMC Nephrology. - April 2, 2019 |
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AMA Backs UnitedHealth's Billing Codes For Social Determinants Of Health - Article from Forbes. - April 2, 2019 |
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CMS Approves Utah Work Requirements Just Two Days After Court Ruled Them Illegal For Kentucky, Arkansas -
News summary from Kaiser Health News. - April 1, 2019 |
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CMS Finalizes Medicare Advantage and Part D Payment and Policy Updates to Maximize Competition and Coverage -
CMS press release. - April 1, 2019 |
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Medicare Advantage Networks Are Broad and Getting Broader -
Press release from Boston University School of Medicine. - April 1, 2019 |
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CMS Rule Gives Medicare Advantage Plans an Edge over Traditional Medicare -
Article from Healthcare Finance. - April 1, 2019 |
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Nearly 10% of Adults with Advanced CKD Reported Not Having Health Insurance -
Article from the CDC's Chronic Kidney Disease Surveillance System. - March 2019 |
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Do Smartphone Apps Help Kidney Disease Patients Manage Their Disease? - Press release and free, full-text, Published Ahead of Print CJASN articles the American Society of Nephrology - March 2019 |
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Dialysis Centers Get Angry at Patients When They Say They Want a Transfer!! - Posting from the Dialysis Discussion Uncensored Facebook page. - March 31, 2019 |
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AAKP HealthLine on Pediatric Dialysis -
Notice of webinars from the American Association of Kidney Patients from the Northwest Renal Network. - March 28, 2019 |
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Implementing a Tailored Education Program: Renal Transplant Recipients' Experiences - Early View abstract from Journal of Renal Care. - March 28, 2019 |
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Analysis: Why Should Americans Be Grateful For $137 Insulin? Germans Get It For $55 -
Article from Kaiser Health News. - March 27, 2019 |
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Working on Dialysis - KidneyTalk podcast from Renal Support Network. - March 25, 2019 |
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MEETINGS Global Innovations in Patient-Centered Kidney Care International Summit
- May 21-23 in Washington, DC. Conference web page and agenda (2-page pdf). - March 25, 2019 |
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NephMadness 2019: Patient Perspective on Volume Management in Dialysis -
Posting from the AJKD blog. - March 22, 2019 |
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Mayo Clinic Minute: When Your Kidneys Fail -
Video and article. - March 22, 2019 |
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Novo Nordisk Submits Diabetes Pill for U.S Approval -
Article from Reuters. - March 20, 2019 |
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Survey: About 1 in 10 US Adults Rationing Medicine in Effort to Lower Costs -
Article from The Hill. - March 19, 2019 |
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Canada to Create National Drug Agency to Help Cut Cost of Medicines -
Article from Reuters. - March 19, 2019 |
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Apple Touts Results from Massive AF-Detection Apple Watch Study -
Article from MassDevice and STAT. - March 16, 2019 |
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2019 - Health Insurance 101: Options for People with ESRD -
Posting from the KidneyViews blog. - March 14, 2019 |
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How NKF and the Patient Centered Outcomes Research Institute (PCORI) Are Changing the Face of Kidney Disease Research -
Press release from the National Kidney Foundation. - March 14, 2019 |
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CMS Updates Drug Dashboards with Prescription Drug Pricing and Spending Data -
Press release. - March 14, 2019 |
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Kidney Disease Patients Deserve Better, and So Do Their Doctors - Posting from the KevinMD blog. - March 14, 2019 |
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How Much Difference Will Eli Lilly's Half-Price Insulin Make? -
Article from Kaiser Health News. - March 12, 2019 |
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How Does Losing Medicaid Help You Get a Job? -
Article from The Nation. - March 7, 2019 |
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What is a Preemptive Kidney Transplant? - KidneyTalk podcast from Renal Support Network. - March 6, 2019 |
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The Newsroomof the National Kidney Foundation web site |
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Latest Dialysis News Stories from Yahoo Continually Updated! |
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Latest Transplant News Stories from Yahoo Continually Updated! |
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| ESSENTIAL INFORMATION |
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Patient Rights and Responsibilities - from the Kidney School web site | |
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Patient Rights - 1-page pdf from the Northwest Renal Network | |
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A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland | |
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One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site. | |
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Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) - USRDS Presentations & Posters, 2018 Researcher's Guide and the 2018 USRDS annual report- from the United States Renal Data System (USRDS) web site | |
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AAKP Patient Plan©: Four phase education plan from the American Association of Kidney Patients (AAKP) web site |
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A-Z Patient Education Library from the Northwest Renal Network’s Patient Education and Orientation Learning and Action Network (LAN) | |
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Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site | |
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The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site | |
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End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish) | |
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Financial Help for Treatment of Kidney Failure from the NKUDIC web site | |
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Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site | |
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Treatment Options from Baxter Healthcare | |
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Dialysis Saves Lives is a 6 minute video to educate patients about dialysis from Fresenius Medical Care and the National Kidney Foundation (NKF) - May 2011 | |
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The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site | |
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The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site | |
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Living with Kidney Disease DVD - from Kidney Research UK web site | |
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Book: Help, I Need Dialysis! How to have a good future with kidney disease by Dori Schatell, MS and Dr. John Agar © 2012 | |
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How to Have a Good Future with Kidney Disease a Life Options CKD Patient Education Toolkit - 2011 | |
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The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site | |
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Kidney Diseases Dictionary from the NIDDK web site | |
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Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired). | |
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Medicare Basics - from the Medicare.gov | |
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Medicare for Children with Chronic Kidney Disease from the Medicare web site | |
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The Medicare-Medicaid Relationship (pdf formatrequires Adobe Acrobat reader) from the Medicare web site | |
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CMS Center for Medicare & Medicaid Innovation from the Medicare web site | |
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Your Medicare Rights and Protections (pdf formatrequires Adobe Acrobat reader) from the Medicare web site | |
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Medicare-Approved Drug Discount Cards | |
| Medicare Plan Finder | ||
| Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader) | ||
| Making It Easier At the Pharmacy Counter | ||
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Medicare Telehealth Services from the Medicare web site | |
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Health Information Frequently Asked Questions from NIDDK web site | |
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Complaint Process for Medicare Beneficiaries from the Office of Inspector General | |
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Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book | |
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Family Reunion Health Guide (pdf) resource from the National Kidney Disease Education Program. | |
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Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site | |
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| GENERAL RESOURCES |
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E-Kidney - The online newsletter of the National Kidney Foundation (NKF) |
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Kidney Beginnings: A Patient's Guide - 62 page book from the American Association of Kidney Patients (AAKP) web site |
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Nutrition Counter from the American Association of Kidney Patients (AAKP) web site |
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The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site |
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AAKP Public Policy from the American Association of Kidney Patients (AAKP) |
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aakpRenalife a magazine for dialysis patients from the American Association of Kidney Patients (AAKP) |
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A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999 |
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Adherence Toolkit - Resources from The Renal Network, Inc. |
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Alternative Remedies from the Kidney School web site |
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Anemia - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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Bone and Mineral Metabolism - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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Books and pamphlets available from The Renal Network (ESRD Networks 9/10) |
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CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site |
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ChoosingDialysis - "Empowering patients on choices for renal replacement therapy" |
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Chronic Kidney Disease patient page from the Journal of the American Medical Association. - May 24/31, 2016 |
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CKD Central - explore the collection of resources on chronic kidney disease from the American Kidney Fund |
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Clinical Trials: Kidney Disease from the Center Watch web site |
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Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure |
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DaVita Medical Insights Podcasts from the DaVita web site |
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Diabetes HealthSense provides easy access to resources to help you live well and meet your goals—whether you have diabetes or are at risk for the disease.rom the National Diabetes Education Program web site |
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The Diabetes Quiz web site |
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Diabetic Kidney Disease - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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"Dialysis Answers” Fact Sheets - educational resources from Life Options web site |
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Dialysis Facility Compare and the feature from Medicare |
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Dialysis Patient Grievance Toolkit - Toolkit from the Medical Advisory Council (MAC) of the National Forum of ESRD Networks. - 2017 |
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Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated! |
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DPC Education Center - dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers, and developing favorable public policy solutions. |
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Dialysis, the Flu, and You from Home Dialysis Central web site |
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Dialysis
Options Video from the Medical Education Institute's Lets
Talk About... LifeOptions page |
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Dialysis - You Have Options (pdf) from Northwest Renal
Network web site |
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Emergency Preparedness Resource from ESRD Network #4 |
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Engaging Patients in Care Design - from Hospital & Health Networks |
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Essentials of Chronic Kidney Disease - KidneyTalk podcast from Renal Support Network. - October 6, 2015 |
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Estimate Medicare Costs and the feature from Medicare |
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Family Reunion Health Guide (pdf) from the National Kidney Disease Education Program web site |
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5-Diamond Patient Safety web site and the 2014-2015 5-Diamond Data Book |
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Free Continuing Education — Management of Hepatitis C in Late Stage CKD Patients: WHO, How, and When to Treat? - Resource from the National Kidney Foundation. - August 2017 |
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Free Online Patient Education Resource for Kidney Diseases Available in 20 Languages from Kidneyeducation.com |
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4 Steps to Mange Your Diabetes for Life from the Centers for Disease Control (CDC) |
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Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site |
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The Greatest Potassium Lecture Ever — Parts 1, 2 and 3 - Lectures from Oakland University William Beaumont School of Medicine by Joel Topf, MD via the Precious Bodily Fluids blog. - August 2016 |
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Guide to Dialysis and Kidney Disease - from the National Council for Aging Care |
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Health Library from the Renal Support Network (RSN) web site |
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Health, United States from the Centers for Disease Control (CDC) |
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Heart Health, Blood Pressure, and Fluids from the Kidney School web site |
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Help!
I Need Dialysis! -- E-book by Dori Schatell, John Agar |
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High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site |
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Hospital Compare from the U.S. Department of Health & Human Services web site |
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How to protect yourself in the hospital from Home Dialysis Central web site |
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I Have Diabetes - from the National Diabetes Education Program web site |
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Improving Outcomes through Patient Engagement from the Heartland Kidney Network |
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infoKID Web Site (UK) - providing information for parents and carers about kidney conditions in babies, children and young people. |
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Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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The Kidneys and Kidney Disease (pdf) from Kidney Health New Zealand |
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Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site |
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Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site |
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Kidney Health Tracker mobile app to empower kidney disease patient self-care from Arbor Research . The app is now available free of charge on both the Apple Store for use with iOS mobile devices and on Google Play for Android devices. |
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Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK) |
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Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules and Audio Books |
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KidneyTalk from the Renal Support Network web site |
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A Leadership Resource for Patient and Family Engagement Strategies - from the Hospitals in Pursuit of Excellence web site |
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Live & Give Newsletter - latest bi-annual update helping educate and motivate people living with chronic kidney disease from Renal Support Network |
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Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site |
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Mayo Clinic Q and A: Understanding chronic kidney disease from the Mayo Clinic web site |
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Medical Nutrition Therapy Services from Medicare.gov |
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Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site |
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National Institute of Diabetes and Digestive Diseases (NIDDK) Publications in English and Spanish |
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National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site |
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NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications. |
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PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference. |
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Planning to Return Home After Surgery - Free, Full-Text Article from the Journal of the American Medical Association - August 30, 2016 |
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The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care |
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Pair Up Health Fact Sheets - September 2011 |
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Patient & Family Council information from the National Kidney Foundation (NKF) |
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Preventive Services Educational Resource Web Guide from the Centers for Medicare & Medicaid Services web site |
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Publications from the Kidney Foundation of Canada web site |
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Quackwatch - A Guide to Health Fraud, Quackery, and Intelligent Decisions. |
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Self Management UK is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives. |
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Sharing Haemodialysis Care Website (UK) -
The Shared Haemodialysis Care vision is for people who receive dialysis at centres to have the opportunity and information to participate in aspects of their treatment and thereby improve their experience and their outcomes. |
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30-minute YouTube Video: Dialysis A Historical Perspective -
Produced by Travenol in 1982 and narrated by George Schreiner. |
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TravelDialysisReview web site |
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Understanding Kidney Disease (Four free book chapters) - resource from ISN Education- January 2016 |
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Understanding Your Kidneys - 8-page (pdf) issue of Kidney Health. - August 2010 |
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Video: A Home Hemodialysis Treatment Step-by-Step - 43-minute YouTube video by Tami Ramsey, a nurse who does home hemodialysis herself. |
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What I Have Learned And How It Can Help - book by dialysis patient Elliott B. Brown |
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What is Chronic Kidney Disease? from the Nephron Information Center web site |
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Working with Your Healthcare Team - from the Kidney School web site |
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Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site |
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Your Kidneys and How They Work from NIDDK web site |
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| HEMODIALYSIS INFORMATION |
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Latest Scientific Journal Articles on Hemodialysis Adequacy |
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Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader) |
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Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Hemodialysis Dose and Adequacy from the NKUDIC web site |
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Hemodialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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A Patient Guide to Machine Alarms - from the Northwest Renal Network. |
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Find a home dialysis center in your area from the Home Dialysis Central web site |
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Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated! |
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Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated! |
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| PERITONEAL DIALYSIS INFORMATION |
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Latest Scientific Journal Articles on Peritoneal Dialysis Adequacy |
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Adequate Peritoneal Dialysis Therapy Topic Page from RenalWEB Continually Updated! |
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Fact Sheets from ANNA: Peritoneal Dialysis and Pediatric ESRD: Peritoneal Dialysis (pdf format requires Adobe Acrobat reader) |
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Hernias and peritoneal dialysis: What you need to know - from the Home Dialysis Central web site |
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How you look on PD: Coping with body image changes - from the Home Dialysis Central web site |
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International Society for Peritoneal Dialysis Training Plans (pdf), and Peritoneal Dialysis Training Video |
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"Let's Talk about Peritoneal Dialysis" - from the Renal Fellow Network web site |
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Peritoneal Dialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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Peritoneal Dialysis (PD) Catheter Placement: What to Expect - from Home Dialysis Central web site |
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Peritoneal Dialysis Dose and Adequacy from the NKUDIC web site |
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Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site |
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Saying yes to PD: separating myth from fact - page down to view article from Home Dialysis Central web site |
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| VASCULAR ACCESS INFORMATION |
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Latest Scientific Journal Articles on Vascular Access |
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Fistula First web page from the ESRD Network Coordinating Center web site |
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Dialysis Access from the VascularWeb web site |
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Patient
Pocket Guide: 6 Tips to Prevent Dialysis Infections - Download file
from the Centers for Disease Control and Prevention. - October 2013 |
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Let's Talk About Fistulas - 13 minute video - short educational film for the ESRD Network of New England |
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Video:
Dialysis Patients Speak: a Conversation about the Importance of AV Fistulas - 12-minute video on YouTube produced in 2005 for the ESRD Network of
New England. - December 13, 2012 |
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Frequently Asked Questions about the ArterioVenous Fistula from the Northwest Renal Network web site |
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Helping the Patient Make Healthy Fistula Choices - educational Web-EX Series from The Renal Network. |
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Understanding Your Hemodialysis Access Options from the American Association of Kidney Patients (AAKP) web site |
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Just the Facts: Vascular Access and Información esencial: Acceso vascular (pdf format requires Adobe Acrobat Reader) from the Life Options web site |
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Lifeline for a Lifetime – Your Vascular Access from the ESRD Network Coordinating Center (NCC) web site |
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Protect
Your Access – It's Your Lifeline! from the Northwest
Renal Network web site |
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Caring For & Developing Your New Fistula from the Northwest Renal Network web site |
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Save Your Vein - 2-minute video from Kidney Care UK. |
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Vascular Access for Hemodialysis from the NKUDIC web site |
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Videos in Clinical Medicine: Placement of an Arterial Line from The New England Journal of Medicine (NEJM) |
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How Do I Look?: Taking the fear out of AV Fistula Placement - (pdf) from The Renal Network web site |
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3 Ps for Vascular Access Success - (pdf) Handbook from The Renal Network, Inc. - November 2010 |
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Keeping Your Access Uncovered from the Northwest Renal Network |
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Blood Pump Speed and Your Dialysis Fistula - Article from Home Dialysis Central. - March 2010. |
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Self-Cannulation - Video via Renal Fellow Network web
site |
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Want To Learn about Hemodialysis Access? Here's "Hemodialysis Access 101"! -
Posting from the Renal Fellow Network blog. - August 28, 2018 |
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RenalWEB's Vascular Access Internet Resources Page Continually Updated! |
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| TRANSPLANT & BIOTECHNOLOGY |
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Latest Scientific Journal Articles on Kidney Transplantation |
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2013 OPTN/SRTR Annual Report from the Scientific Registry of Transplant Recipients web site |
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Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader) |
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Brochure Addresses Patients' Questions about Transplant Candidate Kidney Evaluation and Listing - PDF Resource from the United Network for Organ Sharing. |
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Financial Assistance for Living Donors web site |
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How the Transplant Waiting List Works - Article from KidneyTimes |
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Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match - A young, hopeful doctor's memoir (book) --an unforgettable love story and an informative journey into the world of medicine and kidney transplantation that ultimately asks: What does it mean to let go of something that you love, even if it is life itself? |
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Kidney Transplantation - Podcasts from The Renal Support Network |
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Kidney Transplantation: The Patient’s Guide - KidneyTalk podcast from Renal Support Network. - August 15, 2018 |
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Living Kidney Donor Search Tools and Tips web site |
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National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site |
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Organ Donation Toolbox - from the Organ Donation and Transplantation Alliance web site |
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Renal Transplantation - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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TransWeb (All about transplantation and donation) |
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US Government web site on organ donation |
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Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site |
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Transplant Living from the United Network for Organ Sharing (UNOS) web site |
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Kidney Transplantation Topic Page from RenalWEB Continually Updated! |
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| DIET |
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Latest Scientific Journal Articles on Nutrition |
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Chronic Kidney Disease: Nutrition Basics - Free, Full-text Article from Journal of Renal Nutrition - July 2011 |
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Cookbooks for CKD Patients—2009 Update |
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DaVita Diet Helper from the DaVita web site |
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Delicious! - AAKP recipe cookbook |
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Diet Information from the Kidney Patient's Guide (UK site) web site |
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Eat Right To Feel Right On Hemodialysis from the NKUDIC web site |
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Fluid and Electrolytes - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners. |
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Food
Safety for Transplant Recipients -
from the U.S. Food and Drug Administration |
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Home-Delivered Meal Options for Chronic Kidney Disease Patients full-text article from Journal of Renal Nutrition - September 2012 |
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Kidney Community Kitchen from the Kidney Foundation of Canada Helps Dialysis Patients with Complex
Burden of Diet Planning |
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Kidney-Friendly Frozen Meal Tips and Suggestions “In A Pinch” full-text article from Journal of Renal Nutrition - September 2012 |
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Kidney-Friendly Protein Choices from Journal of Renal Nutrition - Novembr 2017 |
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Kidney Smart Food Shopping - YouTube video (1 of 3) from Dialysis Clinics Inc. |
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Mom's
Meals - home meal delivery for many with stage 5 kidney disease |
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Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition |
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Nutrition Counter from the American Association of Kidney Patients (AAKP) web site |
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Nutrition and Fluids for People on Dialysis from the Kidney School web site |
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Patient-Friendly Renal Nutrition Guide from the Alport Syndrome Foundation - (9-page pdf) Alport Syndrome Foundation web site. |
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Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient) |
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RenalWEB's Well Nourished Patient - Internet Resources Continually Updated! |
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Short How-To Recipe Videos Launch for Kidney Disease and Dialysis Patients - from DaVita Kidney Care |
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Smoothie Recipe Book for Renal and Heart Health by Victoria L Hulett JD (Author), Jennifer L Waybright RN (Contributor) |
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Spice it up! - Renal recipe web
site from Canada. Spice it up! booklets are available in English and French,
but they are not for sale. They are distributed by renal dietitians to
dialysis patients (free of charge). |
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Truly Tasty - Renal cookbook from Ireland |
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Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site |
|
|
| K/DOQI™ - Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" ) |
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K/ DOQI Main Page on the National Kidney Foundation web site |
|
|
| PUBMED SEARCHES (National Library of Medicine's MEDLINE Database) |
|
PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed. |
|
hemodialysis Continually Updated! |
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adequacy AND hemodialysis Continually Updated! |
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peritoneal dialysis Continually Updated! |
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vascular access AND dialysis Continually Updated! |
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exercise and dialysis Continually Updated! |
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renal transplantation AND dialysis Continually Updated! |
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MEDLINE / Pubmed Information from the National Library of Medicine |
|
Also consider using Yahoo to locate web sites and web pages on any topic of your choice. |
|
|
| DISCUSSION FORUMS |
|
Care-Partners for Home Dialysis discussion page |
|
Dialysis Nursing Discussion Forum on RenalWEB |
|
HealCam - from MedGadget. |
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I Hate Dialysis discussion page |
|
Living Donors Online Message Board discussion page |
|
Nephkids - a cyber-support group for Parents of Children with Kidney Disease |
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Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient) |
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Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten) |
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Vascular Access Discussion Forum on RenalWEB |
|
|
| ORGANIZATIONS AND GOVERNMENT AGENCIES |
|
Alliance for Home Dialysis web site |
|
American Association of Kidney Patients (AAKP) web site |
|
American Diabetes Association (ADA) web site |
|
American Kidney Fund (AKF) web site |
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B.Braun Avitum web site |
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BestHealth web site |
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Caregiver Action Network (CAN) web site |
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CaregiverStress web site |
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Coalition for Supportive Care of Kidney Patients web site |
|
DaVita Health Solutions web site |
|
DaVita Patient Citizens from the DaVita web site |
|
Dialysis/Transplant Patient web sites |
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The Disabled Living Foundation web site |
|
The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site |
|
European Kidney Patients' Federation web site (UK version) |
|
Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks |
|
HealthUnlocked web site - Ask questions. Get answers. Connect with others like you. |
|
HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs |
|
Home Dialysis Central web site |
|
Home Dialyzors United web site |
|
infoKID Web Site (UK) - Providing information for parents and carers about kidney conditions in babies, children and young people. |
|
Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid |
|
Kidney & Urology Foundation of America (KUFA) web site |
|
Kidney Community Emergency Response web site |
|
The Kidney Foundation of Canada web site |
|
KidneysDoThat.org web site |
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KIDNEYNATION, a Community United to Fund the Fight Against Kidney Disease |
|
Kidney
Smart web site from DaVita |
|
Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential" |
|
Living Kidney Donor Network web site |
|
Living Kidney Donor Search web site |
|
Lupus Foundation of America web site |
|
MedWish web site for donating medical supplies |
|
National Center for Complementary and Alternative Medicine (CAM) web site |
|
National Foundation for Transplants web site |
|
National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site |
|
National Institute of Health (NIH) web
site |
|
National Institute on Aging (NIH) web
site |
|
|
|
National Kidney Federation (UK site) web site |
|
National Kidney Foundation (US site) web site |
|
National Kidney Registry web site |
|
National Kidney and Urologic Diseases Information Clearinghouse web site |
|
National Patient Safety Agency web site (UK organization) |
|
Patient Access Network Foundation web site - medication assistance |
|
Patient Advocate Foundation (PAF) web site |
|
Polycystic Kidney Research Foundation web site |
|
Renal Support Network (RSN) web site |
|
Restless Legs Syndrome Foundation web site |
|
Transplant Living web site |
|
|
| PRODUCTS |
|
Dialysis Arm Bands — Protect your access from GEM ideas LLC |
|
Emergency Medical Emblems from Medic Alert |
|
Emergency Medical Bracelets from The ID Band Company |
|
|
| STATISTICS |
|
Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS) |
|
Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site |
|
US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2020 Objectives |
|
statehealthfacts.org - your source for state health data |
|
|
| UPCOMING EVENTS |
|
National Kidney Foundation (NKF) Health Screening Schedule |
|
Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261 |
|
Renal Support Network (RSN) Renal Events Calendar |
|
|
| YOUR WORDS |
|
Fifteen dialysis cartoons by Lori James-Hartwell |
|
Your Words feature on RenalWEB |
|
|
| RELATED WEB PAGES & TOPICS |
|
A Full and Comfortable Life Topic Page from RenalWEB Continually Updated! |
|
|
| INPUT / SUGGESTIONS |
|
E-mail to RenalWEB on the Patient Education Resources Page |
Except where noted, no information within the RenalWEB web site can be copied, duplicated, or reproduced in any form without the express written consent of RenalWEB.
