RenalWEB Home Page
Last Updated 02/21/10

Hemodialysis Info

Initially, the diagnosis of end-stage renal disease (ESRD) and the prospect of relying on dialysis treatments for survival are almost always devastating and overwhelming for an individual and their family. However, once people have had time to accept and to begin to deal with the necessary life changes, dialysis-related educational resources are a necessity for attaining a sense of control in one's life.  Gradually increasing feelings of confidence and empowerment replace the initial confusion and despair when educational resources are readily available.

The Internet has a wealth of information available for dialysis patients with a few clicks of a mouse. Information resources range from basic explanations in layman's terms of dialysis procedures and technology to search engines for browsing through the 11 million articles in the National Library of Medicine's MEDLINE database.  If you take a little time to become familiar with using PubMed, you can research the latest medical information on any topic of your choice.

In an effort to make finding information easier, RenalWEB has organized many of these resources into groupings that we hope you will find useful. You will find eighteen categories listed to the left of this paragraph. With over 200 links, even the seasoned veterans will find new and interesting information. For articles, ideas, and sources to answer some of the questions you may have on how to make life with dialysis more comfortable and fulfilling, please visit RenalWEB's A Full and Comfortable Life page.

This listing will be continuously updated as more resources become available on the Internet. Please contact us to suggest web-based resources that you have found useful. If you find this information useful and would like to share it with others, print this flyer and distribute it in your dialysis facility.

Warning:  Changes should never be made in a patient's treatment or care based solely on the information found here.  Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made.  All medical and therapeutic decisions must come from a qualified health care provider.  Read RenalWEB's Legal Disclaimer before proceeding.

  NEWS AND LATEST ARTICLES
Placebo Effect Broader Than Thought: Study - Article from AFP. - February 19, 2010
Editor's Note: I would like to see the end of the “nocebo” effect — the power of negative beliefs. The defeatist attitude towards renal rehabilitation by nephrologists, providers, CMS, and professional and patient organizations in ESRD care is the nocebo effect at its worst. It is, in my opinion, a significant contributor to the widespread depression seen in ESRD care.

Renal rehabilitation is not even a topic at the two major professional conferences next month, ADC and RPA. Why are we satisfied providing healthcare that disables and debilitates hundreds of thousands of patients?
Physical Exercise in Patients with Severe Kidney Disease - Full-text article from Nephron Clinical Practice. - February 19, 2010
The Views of Patients and Carers in Treatment Decision Making for Chronic Kidney Disease: Systematic Review and Thematic Synthesis of Qualitative Studies - Free, full-text article from British Medical Journal. - February 19, 2010
"The experiences of other patients greatly influenced the decision making of patients and care (givers)."
First Quincy Medical Group Patient Finds Success Using Nocturnal Home Dialysis - Article from the Herald-Whig (MA). - February 16, 2010
"Schmidt has done every kind of dialysis, and she's on a list awaiting for a kidney transplant. But after a month on nocturnal home hemodialysis, Schmidt's lab results confirmed what she already felt -- that the machine works for her almost as well as a normal kidney."
Nurse-Patient Communication While Perfroming Home Dialysis: The Patients' Perceptions - Abstract from Journal of Renal Care. - February 15, 2010
Helping Patients Make the Best Decision about Kidney Transplants - Article from Washington University in St. Louis. - February 12, 2010
Big Snow Brings Big Problems For Dialysis Patients - Report from NPR. Related article from The News Journal (Delaware). - February 11, 2010
Being Bored Could Be Bad for Your Health - Article from AP. - February 10, 2010
The Right Start Program: Do You Remember How You Felt When You Started Dialysis? - KidneyTalk! podcast from Renal Support Network. - February 9, 2010
Reappraisal of the Impact of Race on Survival in Patients on Dialysis - Article in press abstract from The American Journal of Kidney Disease. - February 8, 2010

The Doctor Will Never See You Again - Article from The Wall Street Journal. - February 8, 2010
Editor's note: The article concludes with the well-known case that went to a U.S. Court of Appeals concerning Dr. John Bower, a Mississippi nephrologist. Related links from The Renal Network, Inc.:
More than half of Americans use Internet for health - Article from Reuters. - February 2, 2010
As Use of Herbal Remedies Soars, Patients Taking These and Cardiovascular Medications May be at Heightened Risk of Dangerous, Potentially Life-Threatening Interactions - Article from the Mayo Clinic. - February 1, 2010
World Kidney Day 2010: Diabetic Kidney Disease—Act Now or Pay Later - Article from American Journal of Kidney Disease. - February 2010
New guidance on data sharing will minimize risks to patient privacy - Article from British Medical Journal. - January 28, 2010
Severe complications of diabetes higher in depressed patients - Article from University of Washington. - January 27, 2010
Better Overall Diabetes Care Lowers Nephropathy Risk - Article from Medpage Today. - January 25, 2010
Nipro Medical Corporation Issues a Voluntary Recall of All GlucoPro Insulin Syringes - News release from the FDA. - January 21, 2010
Participatory medicine: A high-tech alliance with patients - Article from AMED News. - January 18, 2010

PPS Comments to Medicare show the way forward: higher dialysis doses for better health - Blog entry from DSEN. - January 14, 2010
READ THESE PATIENT COMMENTS!!
Bill's comments:
"Story, after story of being cured of the symptoms of too little dialysis. All of the symptoms that people mistakenly attribute to dialysis, are reported cured. And not one of these commentators talk of urea."
"There are over 90 times as many people on conventional incenter dialysis as are on frequent home hemo, yet I can think of very few who, by any stretch, wrote to endorse their care. Only those at home, dialyzing more frequently, were moved to do so. They know the truth, their stories tell of a better way."

Become an Empowered Health Care Consumer and Protect Yourself - Podcast from Kidney Talk. - January 13, 2010

Kidney Research Institute finishes first year with funding success - Blog entry from DSEN. - January 11, 2010

Specialist care and improved long-term survival of dialysis patients - Advance access abstract from NDT. - January 08, 2010
"Your Treatment, Your Choice:" MIPPA Patient Education Program - Resource from the National Kidney Foundation, designed to satisfy Medicare's requirements for reimbursement of the MIPPA Kidney Education Benefit. - January 2010
Assessment of Adherence to Cinacalcet by Prescription Refill Rates in Hemodialysis Patients - Abstract from Hemodialysis International. - January 2010

The cookbook series Spice it up! - Renal recipe web site from Canada. Spice it up! booklets are available in English and French, but they are not for sale. They are distributed by renal dietitians to dialysis patients (free of charge). - January 2010
Audio Samples from Fistula First
• Patients: Listen to your AV Fistula
• Professionals: Listen for the Bruit (near bottom of page)
2009 Researcher's Guide to the USRDS Database - Resource from the United States Renal Data System. - 2009
ASN 2009 USRDS: Presentations, Talks, and Posters - 17 links to data presented at the 2009 ASN Annual Meeting. - 2009
The Newsroom of the National Kidney Foundation web site
Latest Dialysis News Stories from  Yahoo   Continually Updated!
Latest Transplant News Stories from Yahoo  Continually Updated!
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  ESSENTIAL INFORMATION
Patient Rights and Responsibilities - from the Kidney School web site
A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland
The history of dialysis - Life, death and a “washing machine” from the DaVita web site
One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site.
ESRD Clinical Performance Measures (CPM) Project from the Centers for Medicare & Medicaid Services (CMS) web site.
Summary Report of the End Stage Renal Disease (ESRD) Networks’ Annual Reports 2005
Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) - USRDS 2009 Annual Data Report
AAKP Patient Plan©: Four phase education plan from the American Association of Kidney Patients (AAKP) web site
Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site
The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site
End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish)
Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site 
The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Living with Kidney Disease DVD - from Kidney Research UK web site
The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Kidney Dialysis Dictionary from the ESRD Network 11  web site
Kidney Diseases Dictionary from the NIDDK  web site
The Drug Monitor - essential clinical pharmacology / pharmacy information
Know Your Treatment Options, visit Kidney Directions from Baxter Healthcare
Preparing for Emergencies: A Guide for People on Dialysis (pdf format requires Adobe Acrobat reader)
Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired).
Medicare Basics: A Guide for Families and Friends of People with Medicare - 24-page (pdf format requires Adobe Acrobat reader) file from the Centers for Medicare & Medicaid Services (CMS) - August 2006
Medicare for Children with Chronic Kidney Disease from the Medicare web site
Brochure from CMS: The Medicare-Medicaid Relationship (pdf format requires Adobe Acrobat reader) from the Medicare web site
Medicare & You (pdf format requires Adobe Acrobat reader) from the Northwest Renal Network web site
Your Medicare Rights and Protections (pdf format requires Adobe Acrobat reader) from the Medicare web site
Reaching America's Communities: Medicare Multilanguage Publications (pdf format requires Adobe Acrobat reader) from the Medicare web site
Medicare-Approved Drug Discount Cards
    Welcome to the Medicare Prescription Drug Plan Finder
    Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader)
    Facts You Need to Know About Medicare-Approved Drug Discount Cards
    Find and Compare Plans
    Compare Medicare Prescription Drug Plans: A Step-by-Step Guide for Using the Medicare Drug Plan Finder (pdf format requires Adobe Acrobat Reader)
    The Medicare Replacement Drug Demonstration Pamplet (pdf format requires Adobe Acrobat Reader)
    Making It Easier At the Pharmacy Counter
    Getting Drugs After Your Transition Period (pdf format requires Adobe Acrobat Reader)
Medicare Telehealth Services from the Medicare web site
Financial Help for Treatment of Kidney Failure from NIDDK web site
Complaint Process for Medicare Beneficiaries from the Office of Inspector General
Intensive Intervention With The Non-Compliant Patient (requires Microsoft Word™) from the End Stage Renal Disease Network 14 web site
Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book
Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site
FOOTCARE: for Patients with Diabetes - - - simple steps can save feet (requires Adobe Acrobat reader) from the Northwest Renal Network # 16 web site
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  GENERAL RESOURCES
E-Kidney - The online newsletter of the National Kidney Foundation (NKF)
Current Issue of AAKP Public Policy Briefing an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP)
Current Issue of Kidney Beginnings: The Electronic Newsletter an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP)
Current Issue of Renal Flash an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP)
Kidney Beginnings: The Magazine - from the American Association of Kidney Patients (AAKP) web site
Kidney Beginnings: Live - from the American Association of Kidney Patients (AAKP) web site
Latest Issue of Renal Express - an electronic newsletter produced and distributed by the American Society of Nephrology (ASN)
Kidney Beginnings: A Patient's Guide - brochure from the American Association of Kidney Patients (AAKP) web site
aakpRENALIFE - from the American Association of Kidney Patients (AAKP) web site
Current Issue of At Home with AAKP an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP)
The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site
A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999
Adherence Toolkit - Resources from The Renal Network, Inc.
Alternative Remedies from the Kidney School web site
Are You Ready emergency information from the Missouri Department of Health and Senior Services web site
ASN 2006 NAS Presentations & Posters from the Chronic Disease Research Group web site
BenefitsCheckUpRx - this fast, free, and confidential service will help you or someone you love find public and private programs to save the most money on prescription drugs - from the Access to Benefits Coalition web site
Books and pamphlets available from The Renal Network (ESRD Networks 9/10)
CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site
Clinical Trials: Kidney Disease from the Center Watch web site
Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure
Diabetes & Me - from the CDC's National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP) web site
The Diabetes Quiz web site
"Dialysis Answers” Fact Sheets - educational resources from Life Options web site
Dialysis Facility Compare feature from Medicare
Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated!
Dialysis, the Flu, and You from Home Dialysis Central web site
What is Chronic Kidney Disease? from the Nephron Information Center web site
Emergency Preparedness Resource (pdf format requires Adobe Acrobat Reader)  from ESRD Network #4
ESRD Briefing Book for State and Federal Policy Makers (pdf format requires Adobe Acrobat Reader) from the ANNA web site
Expert Patients Programme is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives.
Family Reunion Health Guide from the National Kidney Disease Education Program web site
Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site
Google Health puts you in charge of your health information.
Guidelines for Care of ESRD Patients (pdf format requires Adobe Acrobat Reader) - from the End Stage Renal Disease Network 4 web site
Health, United States from the Centers for Disease Control (CDC)
Heart Health, Blood Pressure, and Fluids from the Kidney School web site
High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site
Hospital Compare from the U.S. Department of Health & Human Services web site
How to protect yourself in the hospital from Home Dialysis Central web site
How to Weather Winter Storms from Fresenius Medical Care
Identifying Kidney Failure web cast from the Kidney & Urology Foundation of America (KUFA) web site
InteliHealth  is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare)
Interactive Tutorial on Kidney Failure from the Patient Education Institute web site
Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Keeping Kidney Patients Safe web site
KEY - Kidney Education and You - free kidney education classes from the DaVita web site
Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site
Kidney Drug Coverage web site developed by the Kidney Medicare Drugs Awareness and Education Initiative to provide timely, consistent, reliable, and up-to-date information about Medicare and Medicare Prescription Drug Coverage (Part D), specifically for kidney patients.
Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site
Kidney Health Podcast Series from the American Kidney Fund (AKF) web site
Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK)
Kidney Patient HealthLine - free, one-hour conference call designed to educate kidney patients on a variety of topics affecting them and their families, from the American Association of Kidney Patients
Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules
KidneyTalk from the Renal Support Network web site
Kidney Times web site from the Renal Support Network (RSN)
Living Longer, Living Better - A Heart-Healthy Wellness Program for Patients on Dialysis from the National Kidney Foundation (NKF) web site
Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site
Managing your Life with Kidney Failure from the National Kidney Foundation web site
Medical Nutrition Therapy Services from the Centers for Medicare & Medicaid Services web site
Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site
My Health - from the American Association of Kidney Patients (AAKP) web site
A National Conversation - Friends and Family First Toolkit - 15 page pdf packet on Medicare Prescription Drug Coverage from the Centers for Medicare & Medicaid Services (CMS) web site
National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site
PatientLinx - free newsletter containing the day’s articles from a variety of lay and medical sources
PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference.
PEPP Program (Patients Educating Patients and Professionals) from the Renal Support Network
The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care
NIDDK Publications On-line from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)
Parents' Corner from the National Kidney Foundation web site
Patient & Family Council information including the People Like Us™ video series from the National Kidney Foundation (NKF)
Preventive Services Educational Resource Web Guide and Staying Healthy Medicare's Preventive Services from the Centers for Medicare & Medicaid Services web site
Progress and Priorities: Renal Disease Research Plan (pdf format requires Adobe Acrobat reader) from the National Institute of Diabetes and Digestive and Kidney Disease (NIDDK) web site
Publications from the Kidney Foundation of Canada web site
Quackwatch  - A Guide to Health Fraud, Quackery, and Intelligent Decisions.
Seymour Jones and the Temple of Chronic Kidney Disease - 5-Minute educational/entertainment film from Renal Support Network
Spanish Resource Guide - list of resources in Spanish from the American Nephrology Nurses Association (ANNA)
Take Six Steps that Count to Fight Kidney Disease - article from the American Kidney Fund - April 2008
Ten Facts about African-Americans and Kidney Disease from the NKF web site
Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site
Your Kidneys and How They Work from NIDDK web site
UltraCare-Dialysis.com is a resource for treatment options and lifestyle advice for living with kidney disease from Fresenius Medical Care
Working with Your Healthcare Team - (pdf format requires Adobe Acrobat Reader) from the Kidney School web site
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  HEMODIALYSIS INFORMATION
Latest Scientific Journal Articles on Hemodialysis - list compiled by RenalWEB's Journal Watch
Hemodialysis Dialysis Advisory Information from the American Association of Kidney Patients (AAKP) web site
Understanding Your Hemodialysis Options and Conozca Sus Opciones De Hemodialysis (pdf format requires Adobe Acrobat Reader) from the American Association of Kidney Patients (AAKP) web site
Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader)
Hemodialysis: A Life Saver for Kidney Disease web cast from the Kidney & Urology Foundation of America (KUFA) web site
Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site
The Multidimensional Characteristics of Symptoms Reported by Patients on Hemodialysis from the Journal of the American Nephrology Nurses' Association
A Patient Guide to Machine Alarms (pdf format requires Adobe Acrobat Reader) from the Northwest Renal Network web site
Dialysis disequilibrium syndrome from the Western Queen's Dialysis web site
Hemodialysis Dose and Adequacy from the NKUDIC web site
Kidney Directions from Baxter Healthcare
Find a home dialysis center in your area from the Home Dialysis Central web site
Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated!
Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated!
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  PERITONEAL DIALYSIS INFORMATION
Latest Scientific Journal Articles on Peritoneal Dialysis - list compiled by RenalWEB's Journal Watch
Peritoneal Dialysis Advisory Information from the American Association of Kidney Patients (AAKP) web site
Fact Sheets from ANNA: Peritoneal Dialysis and Pediatric ESRD: Peritoneal Dialysis (pdf format requires Adobe Acrobat reader)
Understanding Your Peritoneal Dialysis Options and Entendiendo Sus Opciones De Dialisis Peritoneal (pdf format requires Adobe Acrobat Reader) from the American Association of Kidney Patients (AAKP) web site
Peritoneal Dialysis (PD) Catheter Placement: What to Expect - from Home Dialysis Central web site
Peritoneal Dialysis Dose and Adequacy from the NKUDIC web site
Peritoneal Dialysis: A Treatment for Kidney Disease web cast from the Kidney & Urology Foundation of America (KUFA) web site
Saying yes to PD: separating myth from fact - page down to view article from Home Dialysis Central web site
International Society for Peritoneal Dialysis  Treatment Guidelines,  Training Plans (pdf), Peritoneal Dialysis Training Video, and  QA Protocols
Adequate Peritoneal Dialysis Therapy Topic Page from RenalWEB Continually Updated!
Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site
Hernias and peritoneal dialysis: What you need to know - from the Home Dialysis Central web site
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  VASCULAR ACCESS INFORMATION
Latest Scientific Journal Articles on Vascular Access - list compiled by RenalWEB's Journal Watch
Fistula First web site and Patient Section
Vascular Access Patient Education "Electronic Notebook" (pdf format which requires Adobe Acrobat reader) from the ESRD Network # 14 web site
Frequently Asked Questions about the ArterioVenous Fistula (pdf) and Fístula Arteria Venosa En Español (pdf) from the Northwest Renal Network web site
Vascular Access: Before During & After - education tool from Network 8 web site
Patient Education on Arterio-Venous Fistulas from the ESRD Network of Texas, Inc. web site

Helping the Patient Make Healthy Fistula Choices - educational Web-EX Series from The Renal Network.
What's your ACCESS-ability? and ¿Que es Su Acceso-Abilidad? (pdf) from the Northwest Renal Network web site
Understanding Your Hemodialysis Access Options from the American Association of Kidney Patients (AAKP) web site
Just the Facts: Vascular Access and Información esencial: Acceso vascular (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Protect Your Access – It’s Your Lifeline! (pdf format requires Adobe Acrobat Reader) from the Northwest Renal Network web site
Caring For & Developing Your New Fistula (pdf) from the Northwest Renal Network web site
Vascular Access for Hemodialysis from the NKUDIC web site
ESRD National Vascular Access Improvement Initiative (NVAII) - Fistula First Project from the ESRD Network of Texas, Inc web site
Videos in Clinical Medicine: Placement of an Arterial Line from The New England Journal of Medicine (NEJM)
How Do I Look?: Taking the fear out of AV Fistula Placement - (pdf) from The Renal Network web site
Your Role in AV Fistula Cannulation - (pdf) from the Northwest Renal Network - December 2008
Keeping Your Access Uncovered - (2-page pdf) from the Northwest Renal Network
RenalWEB's Vascular Access Internet Resources Page Continually Updated!
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  TRANSPLANT & BIOTECHNOLOGY
Latest Scientific Journal Articles on Kidney Transplantation - list compiled by RenalWEB's Journal Watch
Current issue of Kidney Transplant Today an electronic newsletter produced and distributed by the American Association of Kidney Patients (AAKP)
2008 OPTN/SRTR Annual Report from the USTransplant.org web site
Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader)
25 Facts About Organ Donation and Transplantation from the National Kidney Foundation web site
National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site
Patient Questions About Transplantation: A Resource Guide - Article from Nephrology Nursing Journal. - July/August 2009
TransWeb (All about transplantation and donation)
US Government web site on  organ donation
Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site
Patient Resources Available Online from the United Network for Organ Sharing (UNOS) web site
Kidney Transplantation Topic Page from RenalWEB Continually Updated!
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  DIET
Latest Scientific Journal Articles on Renal Nutrition - list compiled by RenalWEB's Journal Watch
aakpDelicious! from the American Association of Kidney Patients (AAKP) web site
AAKP Diet Tips and Bits from the American Association of Kidney Patients (AAKP) web site
Brilliant Eats Cookbook from PKD Foundation web site
Cookbooks for CKD Patients—2009 Update
DaVita Diet Helper from the DaVita web site
Diet Information from the Kidney Patient's Guide (UK site) web site
Eat Right To Feel Right On Hemodialysis from the NKUDIC web site
Eating Healthy From the Start: Kid and Kidney-Friendly Nutrition Tips (pdf) resource from the ESRD Network #15 web site
Kidney Kitchen from the National Kidney Foundation web site
Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Nutrition and Fluids for People on Dialysis from the Kidney School web site
Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site
Recipes for Living Well from the American Kidney Fund web site
Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient)
RenalWEB's Well Nourished Patient - Internet Resources Continually Updated!

Spice it up! - Renal recipe web site from Canada. Spice it up! booklets are available in English and French, but they are not for sale. They are distributed by renal dietitians to dialysis patients (free of charge).

Understanding High Phosporus and Your Treatment Options (pdf format requires Adobe Acrobat reader) from the American Association of Kidney Patients (AAKP)
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  K/DOQI™ -  Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" )

K/DOQI Main Page on the National Kidney Foundation web site
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  PUBMED SEARCHES (National Library of Medicine's MEDLINE Database)
PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed.
hemodialysis Continually Updated!
adequacy AND hemodialysis Continually Updated!
peritoneal dialysis Continually Updated!
vascular access AND dialysis Continually Updated!
exercise and dialysis Continually Updated!
renal transplantation AND dialysis Continually Updated!
MEDLINE / Pubmed Information from the National Library of Medicine
Also consider using Yahoo to locate web sites and web pages on any topic of your choice.

  DISCUSSION FORUMS
Dialysis Nursing Discussion Forum on RenalWEB
DIALYSIS_SUPPORT - from Yahoo Groups - end-stage renal disease (ESRD) support and educational forum
Nephkids - a cyber-support group for Parents of Children with Kidney Disease
Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient)
Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten)
Vascular Access Discussion Forum on RenalWEB
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  ORGANIZATIONS AND GOVERNMENT AGENCIES

American Association of Kidney Patients (AAKP) web site

American Diabetes Association (ADA) web site

American Kidney Fund (AKF) web site

Association of Dialysis Advocates web sites

BestTreatments web site
DaVita Patient Citizens from the DaVita web site
Dialysis/Transplant Patient web sites
The Disabled Living Foundation web site
The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site
European Kidney Patients' Federation web site (UK version)
Everyday Choices for A Healthier LIFE web site

Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks
iHealthRecord web site is a no cost, secure and confidential interactive record that lets you keep all your health information organized, accurate and in one place.
HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs
InteliHealth  is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare)
Kidney & Urology Foundation of America (KUFA) web site

The Kidney Foundation of Canada web site

Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential"

Lupus Foundation of America web site
National Center for Complementary and Alternative Medicine (CAM) web site

National Family Caregivers Association (NFCA) web site

National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site
National Institute of Health NIHSeniorHealth.gov web site

National Kidney Federation (UK site) web site

National Kidney Foundation (US site) web site

National Kidney and Urologic Diseases Information Clearinghouse web site
National Patient Safety Agency web site (UK organization)

Polycystic Kidney Research Foundation web site

Renal Health web site

Renal Support Network (RSN) web site

Restless Legs Syndrome Foundation web site

Roche Transplantation web site

Stop Medicare Fraud.gov web site

Transplant Living web site
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  PRODUCTS
Professional Teaching Tools for Professionals from the Health Teaching.com specializes in visual and descriptive educational tools
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  STATISTICS
National Surveillance of Dialysis-Associated Diseases in the United States, 2002 (pdf format requires Adobe Acrobat reader) - from The Centers for Disease Control and Prevention (CDC)
NIDDK Identifies Risks, Measures Burden of Kidney and Urologic Diseases from the National Kidney and Urologic Diseases Information Clearinghouse web site
Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS)
Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site
Prevalence of Chronic Kidney Disease and Associated Risk Factors --- United States, 1999--2004 from Morbidity and Mortality Weekly Report - March 2, 2007
Racial Differences in Trends of End-Stage Renal Disease, by Primary Diagnosis --- United States, 1994--2004 from Morbidity and Mortality Weekly Report - March 23, 2007
US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2010 Objectives
statehealthfacts.org - your source for state health data
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  UPCOMING EVENTS
September 2-4, 2010 - 2010 American Association of Kidney Patients (AAKP) 37th Annual Convention, Tampa Marriott Waterside Hotel & Marina, Tampa, FL - convention page, (800) 749-2257, fax (813) 636-8122, e-mail
National Kidney Foundation (NKF) Health Screening Schedule
Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261
Renal Support Network (RSN) Renal Events Calendar
Kidney Beginnings: Live Schedule presented by the American Association of Kidney Patients (AAKP) - AAKP web site, (800) 749-2257, fax (813) 5639-8122, e-mail
How the HealthWell Foundation Helps Patients Afford Therapies They Need - 2009-2010 audio conferences from the HealthWell Foundation® web site
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  YOUR WORDS
Fifteen dialysis cartoons by Lori James-Hartwell
Your Words feature on RenalWEB
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  RELATED WEB PAGES & TOPICS
A Full and Comfortable Life Topic Page from RenalWEB Continually Updated!
Dialysis and AAMI Standards - a book of standards and recommended practices for dialysis that can be ordered from the Association for the Advancement of Medical Instrumentation (AAMI)
National Guideline Clearinghouse - evidence-based clinical practice guidelines
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  INPUT / SUGGESTIONS
E-mail to RenalWEB on the Patient Education Resources Page
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