RenalWEB Topic - Dialysis Patient Educational Resources

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Last Updated 05/20/18

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Initially, the diagnosis of end-stage renal disease (ESRD) and the prospect of relying on dialysis treatments for survival are almost always devastating and overwhelming for an individual and their family. However, once people have had time to accept and to begin to deal with the necessary life changes, dialysis-related educational resources are a necessity for attaining a sense of control in one's life. Gradually increasing feelings of confidence and empowerment replace the initial confusion and despair when educational resources are readily available.

The Internet has a wealth of information available for dialysis patients with a few clicks of a mouse. Information resources range from basic explanations in layman's terms of dialysis procedures and technology to search engines for browsing through the 11 million articles in the National Library of Medicine's MEDLINE database. If you take a little time to become familiar with using PubMed, you can research the latest medical information on any topic of your choice.

In an effort to make finding information easier, RenalWEB has organized many of these resources into groupings that we hope you will find useful. You will find eighteen categories listed to the left of this paragraph. With over 200 links, even the seasoned veterans will find new and interesting information. For articles, ideas, and sources to answer some of the questions you may have on how to make life with dialysis more comfortable and fulfilling, please visit RenalWEB's A Full and Comfortable Life page.

This listing will be continuously updated as more resources become available on the Internet. Please contact us to suggest web-based resources that you have found useful. If you find this information useful and would like to share it with others, print this flyer and distribute it in your dialysis facility.

Warning: Changes should never be made in a patient's treatment or care based solely on the information found here. Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made. All medical and therapeutic decisions must come from a qualified health care provider. Read RenalWEB's Legal Disclaimer before proceeding.

NEWS AND LATEST ARTICLES

	Hurricane Preparedness Newsletter - (6-page pdf) Special edition from the Florida ESRD Network. - May 2018
	Results from UCLA SONG Working Groups in English and Spanish - Tweets from @song_initiative. The SONG initiative is an international initiative that aims to establish core outcomes in chronic kidney disease that are important to patients, caregivers, and health professionals. - May 17, 2018 Editor's note: The choices that were offered do not include the most inclusive desired outcome: to live as normal a life as possible. These choices remind me of the Henry Ford quote, “If I had asked people what they wanted, they would have said faster horses.” Without a goal of "normalcy," systems of care will never be holistic and will only invite more life-disrupting interventions. A goal of normalcy also encourages the continuous development of technological innovations. Dialysis patient employment will always be the best example of holistic dialysis care and will always drive both micro and macro innovations.
	Effectiveness of Text Message Based, Diabetes Self Management Support Program - Free, full-text article from The BMJ. - May 17, 2018
	An Incomplete Prescription — President Trump's Plan to Address High Drug Prices - Free, full-text, New Online viewpoint article from the Journal of the American Medical Association. - May 17, 2018
	Paying the Price for Insulin - Opinion piece from STAT. - May 17, 2018
	Members of the KHI Patient and Family Partnership Council Meet with HHS Secretary Azar - Tweet from @HHSIDEALab. News brief from Kidney News Online. Blog post by Bruce D. Greenstein, HHS Chief Technology Officer. Photo of KHI Patient and Family Partnership Council members. - May 16, 2018
	American Kidney Fund Launches Comprehensive New Kidney Disease Education Portal - May 16, 2018
	Azar Says Admin 'Does Not Believe in' Medicare Drug Price Negotiations - News brief from Healthcare DIVE. - May 16, 2018
	New Medicare Perk: Diabetes Prevention - Article from HealthDay. - May 15, 2018
	CMS Unveils Enhanced “Drug Dashboards” to Increase Transparency on Drug Prices - CMS press release. Article from HealthLeaders Media. - May 15, 2018
	National Kidney Foundation Statement on American Patients First: The Trump Administration Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs - Press release. - May 14, 2018
	Patients Who Skip Medications Cost Healthcare $300 Billion Annually - Article from Healthcare Finance. - May 14, 2018
	7 Mistakes That Can Boost Your Blood Pressure Reading - Article from HealthDay. - May 11, 2018
	Alcohol and Tobacco Are by Far the Biggest Threat to Human Welfare of All Addictive Drugs - Press release from Society for the Study of Addiction. - May 11, 2018
	Why to NOT Ask “Have You Thought About Home Dialysis?” - Posting from the KidneyViews blog. - May 10, 2018
	Trump to Drop Call for Medicare to Negotiate Lower Drug Prices - Article from The New York Times. - May 10, 2018
	Study: More Medicare Drug Plan Enrollees Hitting Out-of-Pocket Limit - News brief from American Hospital Association. - May 10, 2018
	Former CMS Administrator's New Firm Will Focus On Getting Health Care To Low-Income, High-Need Populations - News summary from Kaiser Health News. - May 9, 2018
	Penn Experts Call for Safeguards If Medicaid Work Requirement Policies Prevail - Press release from the University of Pennsylvania School of Medicine. - May 9, 2018
	Games and Greed Delay the Market Entry of Money-Saving Biosimilars - Article from STAT. - May 9, 2018
	Financial Strain Has Major Impact on Patients' Health Care Decisions - Press release from UT Southwestern Medical Center. - May 8, 2018
	DaVita Endorses International Initiative Aimed at Helping Give Patients a Voice in Kidney Care Trials and Research - Press release. - May 8, 2018 Editor's note: Will patients finally become "teammates" at DaVita?
	The Role of Telehealth in the Medical Response to Disasters - Free, full-text, New Online viewpoint article from JAMA Internal Medicine. - May 7, 2018
	Federal Officials Say No-Go To Lifetime Limits on Medicaid - Article from Kaiser Health News. - May 7, 2018
	Virtual Doctor Visits Are Getting More Popular, But Questions Remain about Who Pays - Article from The Washington Post. - May 6, 2018
	Free, Full-Text, New Online Viewpoint Articles from the Journal of the American Medical Association - May 3, 2018 Value-Based Pricing and Patient Access for Specialty Drugs The Importance of Oral Health in Comprehensive Health Care
	Paying for Value: Lessons from the Medicare Hospice Benefit - Posting from the Health Affairs Blog. - May 2, 2018
	Blood Glucose Readings Made Possible Via Smartphone - Article from The JAMA Forum. - May 1, 2018
	Survey: 4 Million Working-Age Adults Have Lost Health Coverage Since 2016 - News brief from the American Hospital Association. - May 1, 2018
	Trump Officials Abruptly Pull Back from Decision on Medicaid Lifetime Limits - Article from The Hill. - May 1, 2018
	Five Healthy Habits May Add More Than a Decade to Life - Press release from the American Heart Association. - April 30, 2018
	Article and News Summary from Kaiser Health News. - April 27 - 30, 2018 How A Drug Company Under Pressure For High Prices Ratchets Up Political Activity These Charities Are Meant To Help Patients Pay For Drugs. But Critics Say They're Just A Marketing Arm Of Pharma
	DaVita Continues to Improve Patient Care, Leads in Five-Star Quality Ratings - Press release. - April 27, 2018
	ASN and US Department of Health and Human Services Sign Memorandum of Understanding (MOU) To Launch Kidney Innovation Accelerator - Press release from the American Society of Nephrology. Press release from Kidney Care Partners. Article from HealthLeaders Media. KidneyX web site, Twitter @KidneyX and Twitter #KidneyX. - April 26, 2018
	Kidney Care Partners Spotlights Important Quality Gains in Dialysis Care - Press release. - April 26, 2018 "KCP believes that the Five-Star Program does not provide the full picture of the high-quality care being delivered at the individual facility level, and, therefore, cannot be used reliably by patients or their families to evaluate dialysis facilities. While CMS has made some improvements over time in the methods used to determine the star ratings, the program remains problematic because of outstanding, issues related to methodology, measure validity and actionability of information by dialysis facilities. These systemic flaws can mislead patients and the public."
	VA Delivers Higher Quality Care Than Other Health Providers, Study Finds - Press release from the RAND Corporation. - April 26, 2018
	Time to Get Screened: Medicare Begins Covering Prevention of Type 2 Diabetes in April - Press release from the American Association of Diabetes Educators. - April 26, 2018
	CMS Releases New Medicare Advantage Data Resource - News brief from Healthcare DIVE. - April 26, 2018
	Fresenius Kidney Care Tops Industry in Government Five-Star Quality Ratings - Press release. - April 25, 2018 Editor's note: Is the Five-Star Quality Rating System valid? It relies largely on self-reported data and the honor system. Since its inception, the results of the Five-Star System have not correlated with the mortality and hospitalization results published by the United States Renal Data System (USRDS). Apparently, to resolve the discrepancy, the USRDS has stopped publishing its comparisons of for-profit and non-profit dialysis providers. So what is the Five-Star System actually measuring? June 30, 2017 news item from RenalWEB: "In an accompanying (pay-for-view) CJASN editorial (entitled Infection Monitoring in Dialysis Units: A Plea for "Cleaner" Data), Dana Miskulin, MD (Tufts University School of Medicine) and Ambreen Gul, MD (Dialysis Clinic Inc.) noted that a major problem to the available data is that event reporting is based on an honors system, with dialysis units reporting their own information. "We make a plea to the dialysis community to 'clean up' the data, so that the QIP is fairer for all and to enable the full potential of these data, both for improving care now and for generating new evidence to provide future opportunities to improve care and outcomes, to be realized," they wrote."
	Diabetes Self-Care Courses Can Come With Sticker Shock - Article from The New York Times. - April 25, 2018
	Article from HealthLeaders Media - April 25, 2018 AHIP Sees SCOTUS Ruling as a Win for Generic Drugs Want Medication Compliance? Reward Your Patients
	Dialysis Discussion Uncensored: Keeping the Conversation Going - KidneyTalk podcast from Renal Support Network. - April 25, 2018
	CMS Proposes Changes to Empower Patients and Reduce Administrative Burden - Press release and fact sheet from CMS. - April 24, 2018 Editor's note: There are mentions of dialysis scattered throughout the proposed rule (1883-page pdf).
	The US Is Entering a Golden Age of Corporate Medicine - Article from The Guardian. - April 22, 2018 "But whatever the purported efficiencies of vertical integration may be, these deals should be seen as part of a larger corporate transformation that is remaking American healthcare – for the worse. "Consider corporate medicine's track record. Dialysis is dominated by corporations – the two largest are DaVita and Fresenius – that do a comparatively poor job keeping their patients alive. A 2011 study in Health Services Research found that for-profit chains had 13% higher risk of mortality than not-for-profits. DaVita, meanwhile, has paid out hundreds of millions in recent years to settle claims including Medicare fraud and overuse of a potentially harmful medication." "But whatever their financial future, the advancing corporatization of American healthcare will fail for a more fundamental reason: cutthroat corporate profiteering and the humane provision of healthcare don't mix." Editor's note: How does US nephrology respond to being named the poster child of bad corporate medicine? They've gone full-ostrich. They eliminated any reporting on the effects of profit/non-profit clinic ownership from the annual United States Renal Data System (USRDS) report. This results in a '3-monkey' approach to medicine and is probably best summed up by Sinclair Lewis.
	New Medicare Perk For Diabetes Prevention Stumbles At Rollout - Article from Kaiser Health News. - April 19, 2018
	Artificial Pancreas Is a Safe and Effective Treatment for Type I Diabetes - Press release and full-text article from The BMJ. - April 18, 2018
	Drug Test Spurs Frank Talk Between Hypertension Patients And Doctors - Article from Kaiser Health News. - April 18, 2018
	Debate over Third-Party Payments for Dialysis Patients Revived in Washington As California Eyes Limits - (Registration required, but free.) Articles from Modern Healthcare and Healthcare Finance. - April 17, 2018
	Developing and Pilot Testing a Shared Decision-Making Intervention for Dialysis Choice - First Published Abstract from Journal of Renal Care. - April 17, 2018 "After the intervention, 80% of the patients chose dialysis at home..."
	People Who Use Medical Marijuana More Likely to Use and Misuse Prescription Drugs - Press release from Journal of Addiction Medicine. - April 17, 2018
	Putting Patients at the Center of Kidney Disease Research - Guest blog post from the Patient-Centered Outcomes Research Institute (PCORI). - March 23, 2018
	Save Your Vein - 2-minute video from Kidney Care UK. - March 5, 2018
	The Newsroomof the National Kidney Foundation web site
	Latest Dialysis News Stories from Yahoo Continually Updated!
	Latest Transplant News Stories from Yahoo Continually Updated!
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ESSENTIAL INFORMATION

	Patient Rights and Responsibilities - from the Kidney School web site
	Patient Rights - 1-page pdf from the Northwest Renal Network
	A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland
	One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site.
	Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) - USRDS Presentations & Posters, 2016 Researcher's Guide and the 2017 USRDS annual report- from the United States Renal Data System (USRDS) web site
	AAKP Patient Plan©: Four phase education plan from the American Association of Kidney Patients (AAKP) web site Diagnosis To Treatment Choice Getting Help and Starting Dialysis Stabilization Ongoing Treatment
	A-Z Patient Education Library from the Northwest Renal Network’s Patient Education and Orientation Learning and Action Network (LAN)
	Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site
	The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site
	End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish)
	Financial Help for Treatment of Kidney Failure from the NKUDIC web site
	Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site
	Treatment Options from Baxter Healthcare
	Dialysis Saves Lives is a 6 minute video to educate patients about dialysis from Fresenius Medical Care and the National Kidney Foundation (NKF) - May 2011
	The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
	The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site
	Living with Kidney Disease DVD - from Kidney Research UK web site
	Book: Help, I Need Dialysis! How to have a good future with kidney disease by Dori Schatell, MS and Dr. John Agar © 2012
	How to Have a Good Future with Kidney Disease a Life Options CKD Patient Education Toolkit - 2011
	The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
	Kidney Diseases Dictionary from the NIDDK web site
	Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired).
	Medicare Basics - from the Medicare.gov
	Medicare for Children with Chronic Kidney Disease from the Medicare web site
	The Medicare-Medicaid Relationship (pdf formatrequires Adobe Acrobat reader) from the Medicare web site
	CMS Center for Medicare & Medicaid Innovation from the Medicare web site
	Your Medicare Rights and Protections (pdf formatrequires Adobe Acrobat reader) from the Medicare web site
	Medicare-Approved Drug Discount Cards
		Medicare Plan Finder
		Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader)
		Making It Easier At the Pharmacy Counter
	Medicare Telehealth Services from the Medicare web site
	Health Information Frequently Asked Questions from NIDDK web site
	Complaint Process for Medicare Beneficiaries from the Office of Inspector General
	Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book
	Family Reunion Health Guide (pdf) resource from the National Kidney Disease Education Program.

	Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site
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GENERAL RESOURCES

	E-Kidney - The online newsletter of the National Kidney Foundation (NKF)
	Kidney Beginnings: A Patient's Guide - 62 page book from the American Association of Kidney Patients (AAKP) web site
	Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
	The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site
	AAKP Public Policy from the American Association of Kidney Patients (AAKP)
	aakpRenalife a magazine for dialysis patients from the American Association of Kidney Patients (AAKP)
	A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999
	Adherence Toolkit - Resources from The Renal Network, Inc.
	Alternative Remedies from the Kidney School web site
	American Kidney Fund's (AKF) Spanish-Language Website
	Anemia - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
	Bone and Mineral Metabolism - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
	Books and pamphlets available from The Renal Network (ESRD Networks 9/10)
	CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site
	ChoosingDialysis - "Empowering patients on choices for renal replacement therapy"
	Chronic Kidney Disease patient page from the Journal of the American Medical Association. - May 24/31, 2016
	CKD Central - explore the collection of resources on chronic kidney disease from the American Kidney Fund
	Clinical Implications of Renal Physiology - Free IBook from the Renal Fellow Network - October 2016
	Clinical Trials: Kidney Disease from the Center Watch web site
	Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure
	DaVita Medical Insights Podcasts from the DaVita web site
	Diabetes HealthSense provides easy access to resources to help you live well and meet your goals—whether you have diabetes or are at risk for the disease.rom the National Diabetes Education Program web site
	The Diabetes Quiz web site
	Diabetic Kidney Disease - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
	"Dialysis Answers” Fact Sheets - educational resources from Life Options web site
	Dialysis Facility Compare and the feature from Medicare
	Dialysis Patient Grievance Toolkit - Toolkit from the Medical Advisory Council (MAC) of the National Forum of ESRD Networks. - 2017
	Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated!
	DPC Education Center - dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers, and developing favorable public policy solutions.
	Dialysis, the Flu, and You from Home Dialysis Central web site
	Dialysis Options Video from the Medical Education Institute's Lets Talk About... LifeOptions page
	Dialysis - You Have Options (pdf) from Northwest Renal Network web site
	Emergency Preparedness Resource from ESRD Network #4
	Engaging Patients in Care Design - from Hospital & Health Networks
	Essentials of Chronic Kidney Disease - KidneyTalk podcast from Renal Support Network. - October 6, 2015
	Family Reunion Health Guide (pdf) from the National Kidney Disease Education Program web site
	5-Diamond Patient Safety web site+ and the 2014-2015 5-Diamond Data Book+
	Free Continuing Education — Management of Hepatitis C in Late Stage CKD Patients: WHO, How, and When to Treat? - Resource from the National Kidney Foundation. - August 2017
	Free Online Patient Education Resource for Kidney Diseases Available in 20 Languages from Kidneyeducation.com
	4 Steps to Mange Your Diabetes for Life from the Centers for Disease Control (CDC)
	Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site
	The Greatest Potassium Lecture Ever — Parts 1, 2 and 3 - Lectures from Oakland University William Beaumont School of Medicine by Joel Topf, MD via the Precious Bodily Fluids blog. - August 2016
	Health Library from the Renal Support Network (RSN) web site
	Health, United States from the Centers for Disease Control (CDC)
	Heart Health, Blood Pressure, and Fluids from the Kidney School web site
	Help! I Need Dialysis! -- E-book by Dori Schatell, John Agar
	High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site
	Hospital Compare from the U.S. Department of Health & Human Services web site
	How to protect yourself in the hospital from Home Dialysis Central web site
	How to Weather Winter Storms from Fresenius Medical Care
	I Have Diabetes - from the National Diabetes Education Program web site
	infoKID Web Site (UK) - providing information for parents and carers about kidney conditions in babies, children and young people.
	Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site
	Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site
	Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site
	Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site
	Keeping Kidney Patients Safe web site+
	KEY - Kidney Education and You - free kidney education classes from the DaVita web site
	The Kidneys and Kidney Disease (pdf) from Kidney Health New Zealand
	Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site
	Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site
	Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK)
	Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules and Audio Books
	KidneyTalk from the Renal Support Network web site
	Patient Engagement in 2017 from the Heartland Kidney Network
	A Leadership Resource for Patient and Family Engagement Strategies - from the Hospitals in Pursuit of Excellence web site
	Live & Give Newsletter - latest bi-annual update helping educate and motivate people living with chronic kidney disease from Renal Support Network
	Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site
	Mayo Clinic Q and A: Understanding chronic kidney disease from the Mayo Clinic web site
	Medical Nutrition Therapy Services from Medicare.gov
	Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site
	National Institute of Diabetes and Digestive Diseases (NIDDK) Publications in English and Spanish Chronic Kidney Disease and Medicines (Brochure) (English \| Spanish) Is My Child At Risk for Kidney Disease? (English \| Spanish) What I need to know about Kidney Failure and How It's Treated (English \| Spanish)
	National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site
	NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications.
	Pathophysiology of Renal Disease - Free IBook from the Renal Fellow Network - October 2016
	PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference.
	Planning to Return Home After Surgery - Free, Full-Text Article from the Journal of the American Medical Association - August 30, 2016
	The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care
	Pair Up Health Fact Sheets - September 2011 • Diabetes and Your Kidneys • High Blood Pressure and Your Kidneys
	Patient & Family Council information from the National Kidney Foundation (NKF)
	Preventive Services Educational Resource Web Guide from the Centers for Medicare & Medicaid Services web site
	Publications from the Kidney Foundation of Canada web site
	Quackwatch - A Guide to Health Fraud, Quackery, and Intelligent Decisions.
	Self Management UK is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives.
	TravelDialysisReview web site
	Type 2 Diabetes Patient Resources - Trusted online resources from Medpage Today.
	Understanding Kidney Disease (Four free book chapters) - resource from ISN Education- January 2016
	Understanding Your Kidneys - 8-page (pdf) issue of Kidney Health. - August 2010
	Video: A Home Hemodialysis Treatment Step-by-Step - 43-minute YouTube video by Tami Ramsey, a nurse who does home hemodialysis herself.
	What I Have Learned And How It Can Help - book by dialysis patient Elliott B. Brown
	What is Chronic Kidney Disease? from the Nephron Information Center web site
	Working with Your Healthcare Team - from the Kidney School web site
	Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site
	Your Kidneys and How They Work from NIDDK web site
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HEMODIALYSIS INFORMATION

	Latest Scientific Journal Articles on Hemodialysis Adequacy
	Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader)
	Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site
	Hemodialysis Dose and Adequacy from the NKUDIC web site
	Hemodialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
	A Patient Guide to Machine Alarms - from the Northwest Renal Network.
	Find a home dialysis center in your area from the Home Dialysis Central web site
	Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated!
	Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated!
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PERITONEAL DIALYSIS INFORMATION

	Latest Scientific Journal Articles on Peritoneal Dialysis Adequacy
	Adequate Peritoneal Dialysis Therapy Topic Page from RenalWEB Continually Updated!
	Fact Sheets from ANNA: Peritoneal Dialysis and Pediatric ESRD: Peritoneal Dialysis (pdf format requires Adobe Acrobat reader)
	Hernias and peritoneal dialysis: What you need to know - from the Home Dialysis Central web site
	How you look on PD: Coping with body image changes - from the Home Dialysis Central web site
	International Society for Peritoneal Dialysis Training Plans (pdf), and Peritoneal Dialysis Training Video
	Peritoneal Dialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
	Peritoneal Dialysis (PD) Catheter Placement: What to Expect - from Home Dialysis Central web site
	Peritoneal Dialysis Dose and Adequacy from the NKUDIC web site
	Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site
	Saying yes to PD: separating myth from fact - page down to view article from Home Dialysis Central web site
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VASCULAR ACCESS INFORMATION

	Latest Scientific Journal Articles on Vascular Access
	Fistula First web page from the ESRD Network Coordinating Center web site
	Dialysis Access from the VascularWeb web site
	Patient Pocket Guide: 6 Tips to Prevent Dialysis Infections - Download file from the Centers for Disease Control and Prevention. - October 2013
	Let's Talk About Fistulas - 13 minute video - short educational film for the ESRD Network of New England
	Video: Dialysis Patients Speak: a Conversation about the Importance of AV Fistulas - 12-minute video on YouTube produced in 2005 for the ESRD Network of New England. - December 13, 2012
	Frequently Asked Questions about the ArterioVenous Fistula from the Northwest Renal Network web site
	Helping the Patient Make Healthy Fistula Choices - educational Web-EX Series from The Renal Network.
	Understanding Your Hemodialysis Access Options from the American Association of Kidney Patients (AAKP) web site
	Just the Facts: Vascular Access and Información esencial: Acceso vascular (pdf format requires Adobe Acrobat Reader) from the Life Options web site
	Lifeline for a Lifetime – Your Vascular Access from the ESRD Network Coordinating Center (NCC) web site
	Protect Your Access – It's Your Lifeline! from the Northwest Renal Network web site
	Caring For & Developing Your New Fistula from the Northwest Renal Network web site
	Save Your Vein - 2-minute video from Kidney Care UK.
	Vascular Access for Hemodialysis from the NKUDIC web site
	Videos in Clinical Medicine: Placement of an Arterial Line from The New England Journal of Medicine (NEJM)
	How Do I Look?: Taking the fear out of AV Fistula Placement - (pdf) from The Renal Network web site
	3 Ps for Vascular Access Success - (pdf) Handbook from The Renal Network, Inc. - November 2010
	Keeping Your Access Uncovered from the Northwest Renal Network
	Blood Pump Speed and Your Dialysis Fistula - Article from Home Dialysis Central. - March 2010.
	Self-Cannulation - Video via Renal Fellow Network web site
	RenalWEB's Vascular Access Internet Resources Page Continually Updated!
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TRANSPLANT & BIOTECHNOLOGY

	Latest Scientific Journal Articles on Kidney Transplantation
	2013 OPTN/SRTR Annual Report from the Scientific Registry of Transplant Recipients web site
	Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader)
	Brochure Addresses Patients' Questions about Transplant Candidate Kidney Evaluation and Listing - PDF Resource from the United Network for Organ Sharing.
	Financial Assistance for Living Donors web site
	How the Transplant Waiting List Works+ - Article from KidneyTimes
	Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match - A young, hopeful doctor's memoir (book) --an unforgettable love story and an informative journey into the world of medicine and kidney transplantation that ultimately asks: What does it mean to let go of something that you love, even if it is life itself?
	KidneyLink - created by maintained by the PKD Foundation
	Kidney Transplantation - Podcasts from The Renal Support Network
	Living Kidney Donor Search Tools and Tips web site
	National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site
	Organ Donation Toolbox - from the Organ Donation and Transplantation Alliance web site
	Renal Transplantation - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
	TransWeb (All about transplantation and donation)
	US Government web site on organ donation
	Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site
	Transplant Living from the United Network for Organ Sharing (UNOS) web site
	Kidney Transplantation Topic Page from RenalWEB Continually Updated!
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DIET

	Latest Scientific Journal Articles on Nutrition
	Chronic Kidney Disease: Nutrition Basics - Free, Full-text Article from Journal of Renal Nutrition - July 2011
	Cookbooks for CKD Patients—2009 Update
	DaVita Diet Helper from the DaVita web site
	Delicious! - AAKP recipe cookbook
	Diet Information from the Kidney Patient's Guide (UK site) web site
	Eat Right To Feel Right On Hemodialysis from the NKUDIC web site
	Fluid and Electrolytes - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
	Food Safety for Transplant Recipients - from the U.S. Food and Drug Administration
	Home-Delivered Meal Options for Chronic Kidney Disease Patients full-text article from Journal of Renal Nutrition - September 2012
	Kidney Community Kitchen from the Kidney Foundation of Canada Helps Dialysis Patients with Complex Burden of Diet Planning
	Kidney-Friendly Frozen Meal Tips and Suggestions “In A Pinch” full-text article from Journal of Renal Nutrition - September 2012
	Kidney-Friendly Protein Choices from Journal of Renal Nutrition - Novembr 2017
	Kidney Smart Food Shopping - YouTube video (1 of 3) from Dialysis Clinics Inc.
	Mom's Meals - home meal delivery for many with stage 5 kidney disease
	Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition
	Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
	Nutrition and Fluids for People on Dialysis from the Kidney School web site
	Patient-Friendly Renal Nutrition Guide from the Alport Syndrome Foundation - (9-page pdf) Alport Syndrome Foundation web site.
	Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient)
	RenalWEB's Well Nourished Patient - Internet Resources Continually Updated!
	Short How-To Recipe Videos Launch for Kidney Disease and Dialysis Patients - from DaVita Kidney Care
	Smoothie Recipe Book for Renal and Heart Health by Victoria L Hulett JD (Author), Jennifer L Waybright RN (Contributor)
	Spice it up! - Renal recipe web site from Canada. Spice it up! booklets are available in English and French, but they are not for sale. They are distributed by renal dietitians to dialysis patients (free of charge).
	Truly Tasty - Renal cookbook from Ireland
	Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site
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K/DOQI™ - Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" )

K/ DOQI Main Page on the National Kidney Foundation web site

Guidelines and Resources by Topic

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PUBMED SEARCHES (National Library of Medicine's MEDLINE Database)

	PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed.
	hemodialysis Continually Updated!
	adequacy AND hemodialysis Continually Updated!
	peritoneal dialysis Continually Updated!
	vascular access AND dialysis Continually Updated!
	exercise and dialysis Continually Updated!
	renal transplantation AND dialysis Continually Updated!
	MEDLINE / Pubmed Information from the National Library of Medicine
	Also consider using Yahoo to locate web sites and web pages on any topic of your choice.
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DISCUSSION FORUMS

	Care-Partners for Home Dialysis discussion page
	Dialysis Nursing Discussion Forum on RenalWEB
	HealCam - from MedGadget.
	I Hate Dialysis discussion page
	Living Donors Online Message Board discussion page
	Nephkids - a cyber-support group for Parents of Children with Kidney Disease
	Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient)
	Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten)
	Vascular Access Discussion Forum on RenalWEB
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ORGANIZATIONS AND GOVERNMENT AGENCIES

	Alliance for Home Dialysis web site
	American Association of Kidney Patients (AAKP) web site
	American Diabetes Association (ADA) web site
	American Kidney Fund (AKF) web site
	B.Braun Avitum web site
	BestHealth web site
	Caregiver Action Network (CAN) web site
	CaregiverStress web site
	Coalition for Supportive Care of Kidney Patients web site
	DaVita Health Solutions web site
	DaVita Patient Citizens from the DaVita web site
	Dialysis/Transplant Patient web sites
	The Disabled Living Foundation web site
	The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site
	European Kidney Patients' Federation web site (UK version)
	Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks
	HealthUnlocked web site - Ask questions. Get answers. Connect with others like you.
	HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs
	Home Dialysis Central web site
	Home Dialyzors United web site
	Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD) web site
	infoKID Web Site (UK) - Providing information for parents and carers about kidney conditions in babies, children and young people.
	Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid
	Kidney & Urology Foundation of America (KUFA) web site
	Kidney Community Emergency Response web site
	The Kidney Foundation of Canada web site
	KidneysDoThat.org web site
	KIDNEYNATION, a Community United to Fund the Fight Against Kidney Disease
	Kidney Smart web site from DaVita
	Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential"
	Living Kidney Donor Network web site
	Living Kidney Donor Search web site
	Lupus Foundation of America web site
	MedWish web site for donating medical supplies
	National Center for Complementary and Alternative Medicine (CAM) web site
	National Foundation for Transplants web site
	National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site
	National Institute of Health NIHSeniorHealth.gov web site
	National Kidney Federation (UK site) web site
	National Kidney Foundation (US site) web site
	National Kidney Registry web site
	National Kidney and Urologic Diseases Information Clearinghouse web site
	National Patient Safety Agency web site (UK organization)
	Patient Access Network Foundation web site - medication assistance
	Patient Advocate Foundation (PAF) web site
	Polycystic Kidney Research Foundation web site
	Renal Support Network (RSN) web site
	Restless Legs Syndrome Foundation web site
	Transplant Living web site
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PRODUCTS

	Dialysis Arm Bands — Protect your access from GEM ideas LLC
	Emergency Medical Emblems from Medic Alert
	Emergency Medical Bracelets from The ID Band Company
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STATISTICS

	Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS)
	Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site
	US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2020 Objectives
	statehealthfacts.org - your source for state health data
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UPCOMING EVENTS

	National Kidney Foundation (NKF) Health Screening Schedule
	Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261
	Renal Support Network (RSN) Renal Events Calendar
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YOUR WORDS

	Fifteen dialysis cartoons by Lori James-Hartwell
	Your Words feature on RenalWEB
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RELATED WEB PAGES & TOPICS

	A Full and Comfortable Life Topic Page from RenalWEB Continually Updated!
	Dialysis and AAMI Standards - a book of standards and recommended practices for dialysis that can be ordered from the Association for the Advancement of Medical Instrumentation (AAMI)
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INPUT / SUGGESTIONS

	E-mail to RenalWEB on the Patient Education Resources Page
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