RenalWEB Home Page
Last Updated 6/16/19

Hemodialysis Info

Initially, the diagnosis of end-stage renal disease (ESRD) and the prospect of relying on dialysis treatments for survival are almost always devastating and overwhelming for an individual and their family. However, once people have had time to accept and to begin to deal with the necessary life changes, dialysis-related educational resources are a necessity for attaining a sense of control in one's life.  Gradually increasing feelings of confidence and empowerment replace the initial confusion and despair when educational resources are readily available.

The Internet has a wealth of information available for dialysis patients with a few clicks of a mouse. Information resources range from basic explanations in layman's terms of dialysis procedures and technology to search engines for browsing through the 11 million articles in the National Library of Medicine's MEDLINE database.  If you take a little time to become familiar with using PubMed, you can research the latest medical information on any topic of your choice.

In an effort to make finding information easier, RenalWEB has organized many of these resources into groupings that we hope you will find useful. You will find eighteen categories listed to the left of this paragraph. With over 200 links, even the seasoned veterans will find new and interesting information. For articles, ideas, and sources to answer some of the questions you may have on how to make life with dialysis more comfortable and fulfilling, please visit RenalWEB's A Full and Comfortable Life page.

This listing will be continuously updated as more resources become available on the Internet. Please contact us to suggest web-based resources that you have found useful. If you find this information useful and would like to share it with others, print this flyer and distribute it in your dialysis facility.

Warning:  Changes should never be made in a patient's treatment or care based solely on the information found here.  Every patient has unique healthcare concerns and considerations and all these factors must all be taken into account before any changes can be safely made.  All medical and therapeutic decisions must come from a qualified health care provider.  Read RenalWEB's Legal Disclaimer before proceeding.


  NEWS AND LATEST ARTICLES
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NKF Unveils Kidney Pathways, a Curated Kidney Health Education Curriculum - Press release from the National Kidney Foundation. - June 14, 2019

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Clinical Trials and Research Priorities in Dialysis Patients: Time for a New Approach? - Press release from ERA-EDTA. Accepted Article abstract from NDT. - June 13, 2019

" A recent systematic review of hemodialysis RCTs found that, among 10,713 outcome measures, the most common were surrogates such as phosphate, dialysis adequacy, anemia, inflammatory markers, and calcium. Patient-centered outcomes such as mortality, cardiovascular disease, and quality of life were reported very infrequently."

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MX3 Diagnostics Unveils Saliva-Based Hydration Testing System - Article from MedGadget. - June 13, 2019

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Uber To Provide Patient Transport for Care Coordination Company Carisk - News brief from Healthcare DIVE. - June 13, 2019

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Articles from Medscape Nephrology (registration required) - June 11, 2019

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Baxter Launches Telehealth Service for Home Dialysis Treatments - June 11, 2019

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Controversial ESRD Third-Party Payer Rule Under OMB Review - Article extract from InsideHealthPolicy.com. - June 10, 2019

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Compare Trulicity (dulaglutide) vs. Farxiga (dapagliflozin) - Chart from Iodine. - 2019

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Articles from Medscape Nephrology (registration required) - June 10, 2019

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Eversense Implantable Glucometer Gets FDA Approval as Alternative to Finger Tests - Article from MedGadget. - June 10, 2019

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Patients Give More '5-Star' Ratings to Hospitals with Fewer Services - Article from Reuters Health. - June 10, 2019

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Tweet: Latebreaking Now at #ADA2019 — Effects of Dapagliflozin on Development and Progression of Kidney Disease in Patients with Type 2 Diabetes: An Analysis from the DECLARE–TIMI 58 Randomised Trial http://bit.ly/2XvFNVu - Tweet from The Lancet Diabetes & Endocrinology. - June 9, 2019

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Press Releases from NIH/National Institute of Diabetes and Digestive and Kidney Diseases - June 9, 2019

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Combination Medication Helps Patients with Type 2 Diabetes Maintain Blood Sugar Goals - Press release from Brigham and Women's Hospital. - June 9, 2019

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Articles from Medscape Nephrology (registration required) - June 7-9, 2019

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FDA Clears First Interoperable Insulin Pump - News brief from NEJM Journal Watch. - June 7, 2019

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CMS Seeks Public Input on Patients over Paperwork Initiative to Further Reduce Administrative, Regulatory Burden to Lower Healthcare Costs - Press release. - June 6, 2019

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How Old Are Your Organs? To Scientists' Surprise, Organs Are a Mix of Young and Old Cells - News release from the Salk Institute. - June 6, 2019

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Diabetic Foot Care - Posting from the Northwest Renal Network. - June 5, 2019

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After Two Years, Diabetes Patients See Gains with Startup's Digital Coaching — and Some Drop-Off - Article from STAT. - June 5, 2019

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CVS To Open 1500 HealthHUB Stores in Next 2 Years - Article from Healthcare DIVE. - June 4, 2019

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For Latinos with Diabetes, New Study Looks at Ways to Improve Medication Adherence - Press release from USC Health Sciences. - June 4, 2019

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Senators Release Names Of Nearly 400 Nursing Homes With ‘Persistent Record Of Poor Care’ That Are Not Publicly Identified - News summary from Kaiser Health News. - June 4, 2019

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New SugarBEAT Needle-Free Continous Glucometer Gets European Green Light - Article from MedGadget. - June 3, 2019

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ASN and Partnership for Medicare Part D Access Prevail in Fight to Preserve Six Protected Classes - Article from Kidney News Online. - June 2019

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Dialysis Facility Compare May 2019 Refresh Q&A - (2-page pdf) CMS ESRD information. - May 2019

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Association between NSAID Use and Mortality Risk in Patients with End-Stage Renal Disease: a Population-Based Cohort Study - Full-text aricle from Clinical Epidemiology. - May 31, 2019

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Patient Experience Scores Are Being Dragged down by Process Problems - Posting from the KevinMD blog. - May 29, 2019
"Focusing on quality and process means that ugly realities must be faced. If done properly, the kickbacks, slackers, HODADs, good ol' boys (and gals), and BTITWWADIs will all be called out. This is scary, uncomfortable, and takes some guts. [Side bar: HODAD is a term I learned from Dr. Marty Makary, and it means "Hands of death and destruction." BTITWWADI (pronounced bitty waddy) stands for: "But this is the way we've always done it."

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Alignment of Patient and Provider Priorities Could Improve Overall Dialysis Experience - Article from Healio. - May 28, 2019

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Reading Clinician Visit Notes Can Improve Patients' Adherence to Medications - Press release from Beth Israel Deaconess Medical Center. - May 28, 2019

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Medicare Spending Higher among Older Adults with Disabilities Who Lack Adequate Support - Press release from Johns Hopkins University Bloomberg School of Public Health. - May 28, 2019

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Medicare Advantage Expands Telehealth Services - Health Agencies Update from the Journal of the American Medical Association. - May 28, 2019

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Company Charges Private Insurance Quadruple for Dialysis - (Registration required, but free.) Article from Medscape Nephrology. - May 24, 2019

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Doctors Can Estimate Patient Adherence by Simply Asking about Medication Routine - Press release from Iowa State University. - May 21, 2019

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Inaugural Global Summit on Innovations in Patient-Centered Kidney Care - Follow along with the summit on social media using #GlobalKidney2019 and @GWSMHS and @KidneyPatients. - May 20, 2019

Editor's note: There is no mention of renal rehabilitation in the program nor the need to disrupt the economics and especially the financial incentives of dialysis care.

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Even the Most Seasoned Patients Are No Match for the Medical Insurance Industrial Complex - Posting from the KevinMD blog. - May 19, 2019

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Association of Hospitalization and Mortality Among Patients Initiating Dialysis With Hemodialysis Facility Ownership and Acquisitions - Free, full-text article and invited commentary from JAMA Network Open. - May 17, 2019

"Conclusions and Relevance: Acquisition of independently owned dialysis facilities by larger dialysis organizations was associated with slower decreases in mortality and hospitalization rates, as nonacquired facilities appeared to experience more rapid improvements in outcomes over time."

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NKF Statement on CMS Final Rule on Protected Drug Class - Press release from the National Kidney Foundation. - May 17, 2019

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Free, Full-Text Articles from Journal of Renal Care - March 28-May 21, 2019

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UK Renal Registry - 21st Annual Report - This year's report (200-page pdf) includes a summary for patients (10-page pdf) and links to The Renal Association's guidelines. - December 31, 2017

blue ball The Newsroomof the National Kidney Foundation web site
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Latest Dialysis News Stories from  Yahoo   Continually Updated!
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Latest Transplant News Stories from Yahoo  Continually Updated!
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  ESSENTIAL INFORMATION
blue ball Patient Rights and Responsibilities - from the Kidney School web site
blue ball Patient Rights - 1-page pdf from the Northwest Renal Network
A brief history of dialysis and transplantation - from EdREN, the web site of the Royal Infirmary of Edinburgh, Scotland
One of the many functions of the 18 ESRD Networks is to monitor patient satisfaction. Find yours at the Forum of ESRD Networks web site.
Renal Data Extraction and Referencing (RenDER) System - new online data querying application accessible through the United States Renal Data System (USRDS) - USRDS Presentations & Posters, 2018 Researcher's Guide and the 2018 USRDS annual report- from the United States Renal Data System (USRDS) web site

AAKP Patient Plan©: Four phase education plan from the American Association of Kidney Patients (AAKP) web site

blue ball A-Z Patient Education Library from the Northwest Renal Network’s Patient Education and Orientation Learning and Action Network (LAN) 
Dialysis (and the Spanish version Diálisis) from the U.S. National Library of Medicine web site
The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site
End-Stage Renal Disease: Choosing a Treatment That's Right for You from the NIDDK web site (in Spanish)
Financial Help for Treatment of Kidney Failure from the NKUDIC web site
Treatment Evaluator: which dialysis treatments suits your lifestyle? from the DaVita web site
blue ball Treatment Options from Baxter Healthcare
Dialysis Saves Lives is a 6 minute video to educate patients about dialysis from Fresenius Medical Care and the National Kidney Foundation (NKF) - May 2011
The Physical Aspects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
The Treatment of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Living with Kidney Disease DVD - from Kidney Research UK web site
Book: Help, I Need Dialysis! How to have a good future with kidney disease by Dori Schatell, MS and Dr. John Agar © 2012
How to Have a Good Future with Kidney Disease a Life Options CKD Patient Education Toolkit - 2011
The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site
Medicare Coverage of Kidney Dialysis and Kidney Transplant Services - from the Medicare web site - This publication is available in large print Spanish. To get your copy, call 1 800 633 -4227 ( TTY/ TDD: 1 877 486 -2048 for the hearing and speech impaired).
Medicare Basics - from the Medicare.gov
Medicare for Children with Chronic Kidney Disease from the Medicare web site
The Medicare-Medicaid Relationship (pdf formatrequires Adobe Acrobat reader) from the Medicare web site
CMS Center for Medicare & Medicaid Innovation from the Medicare web site
Your Medicare Rights and Protections (pdf formatrequires Adobe Acrobat reader) from the Medicare web site
Medicare-Approved Drug Discount Cards
    Medicare Plan Finder
    Medicare Drug Coverage under Medicare Part A, B, and D Tip Sheet (pdf format requires Adobe Acrobat Reader)
    Making It Easier At the Pharmacy Counter
Medicare Telehealth Services from the Medicare web site
Health Information Frequently Asked Questions from NIDDK web site
Complaint Process for Medicare Beneficiaries from the Office of Inspector General
Dialysis Therapy by Allen R., Md. Nissenson (Editor), Richard N., Md. Fine (Editor) - hardcover book
blue ball Talk with Your Family (pdf) resource from the National Kidney Disease Education Program.
Anemia, EPO, kidney failure—and you from the Home Dialysis Central web site
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  GENERAL RESOURCES
E-Kidney - The online newsletter of the National Kidney Foundation (NKF)
Kidney Beginnings: A Patient's Guide - 62 page book from the American Association of Kidney Patients (AAKP) web site
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site
AAKP Public Policy from the American Association of Kidney Patients (AAKP)
aakpRenalife a magazine for dialysis patients from the American Association of Kidney Patients (AAKP)
A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat Reader) from the Life Options Rehabilitation Program web site - July 1999
Adherence Toolkit - Resources from The Renal Network, Inc.
Alternative Remedies from the Kidney School web site
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American Kidney Fund's (AKF) Spanish-Language Website

blue ball Anemia - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
blue ball Bone and Mineral Metabolism - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
Books and pamphlets available from The Renal Network (ESRD Networks 9/10)
CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site
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ChoosingDialysis - "Empowering patients on choices for renal replacement therapy" 

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Chronic Kidney Disease patient page from the Journal of the American Medical Association. - May 24/31, 2016

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CKD Central - explore the collection of resources on chronic kidney disease from the American Kidney Fund

Clinical Trials: Kidney Disease from the Center Watch web site
Clinical Trials seeking patients: Kidney Disease, Chronic and Kidney Failure
blue ball DaVita Medical Insights Podcasts from the DaVita web site
The Diabetes Quiz web site
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new Diabetic Foot Care posting from the Northwest Renal Network

blue ball Diabetic Kidney Disease - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
"Dialysis Answers” Fact Sheets - educational resources from Life Options web site
Dialysis Facility Compare and the feature from Medicare
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Dialysis Patient Grievance Toolkit - Toolkit from the Medical Advisory Council (MAC) of the National Forum of ESRD Networks. - 2017

Dialysis Outcomes and Topics from the RenalWEB web site Continually Updated!
DPC Education Center - dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers, and developing favorable public policy solutions.
Dialysis, the Flu, and You from Home Dialysis Central web site

Dialysis Options Video from the Medical Education Institute's Lets Talk About... LifeOptions page

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Dialysis - You Have Options (pdf) from Northwest Renal Network web site

Emergency Preparedness Resource from ESRD Network #4

Engaging Patients in Care Design - from Hospital & Health Networks

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Essentials of Chronic Kidney Disease - KidneyTalk podcast from Renal Support Network. - October 6, 2015

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Facing Your Biggest Life Challenges - 8 Steps To Recovery

  • Part 1
    • Step 1: Identify Your Crucial Challenges
    • Step 2: Make Sense Of Your Personal Traumas
    • Step 3: Accept What Is
    • Step 4: Learn To Live Consciously
  • Part 2
    • Step 5: Focus On The Here And Now
    • Step 6: Concentrate On Taking Care Of You
    • Step 7: Seek And Share Support
    • Step 8: Discover Your True Self
    • Summary
Family Reunion Health Guide (pdf) from the National Kidney Disease Education Program web site
5-Diamond Patient Safety web site and the 2014-2015 5-Diamond Data Book
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Free Continuing Education — Management of Hepatitis C in Late Stage CKD Patients: WHO, How, and When to Treat? - Resource from the National Kidney Foundation. - August 2017

Free Online Patient Education Resource for Kidney Diseases Available in 20 Languages from Kidneyeducation.com
blue ball 4 Steps to Mange Your Diabetes for Life from the Centers for Disease Control (CDC)
Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site
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The Greatest Potassium Lecture Ever — Parts 1, 2 and 3 - Lectures from Oakland University William Beaumont School of Medicine by Joel Topf, MD via the Precious Bodily Fluids blog. - August 2016

blue ball Guide to Dialysis and Kidney Disease - from the National Council for Aging Care
Health Library from the Renal Support Network (RSN) web site
Health, United States from the Centers for Disease Control (CDC)
Heart Health, Blood Pressure, and Fluids from the Kidney School web site

Help! I Need Dialysis! -- E-book by Dori Schatell, John Agar

High Blood Pressure and Kidney Disease from the Kidney & Urology Foundation of America (KUFA) web site
Hospital Compare from the U.S. Department of Health & Human Services web site
How to protect yourself in the hospital from Home Dialysis Central web site
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Improving Outcomes through Patient Engagement from the Heartland Kidney Network

blue ball infoKID Web Site (UK) - providing information for parents and carers about kidney conditions in babies, children and young people.
Just the Facts: Anemia and Información esencial: Anemia (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Exercise for Life and Información esencial: Ejercicio físico durante toda la vida (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: The Dialysis Machine and Información esencial: El dializador (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Just the Facts: Fluid and Dialysis and Información esencial: Líquido y diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site
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new Kidney Pathways a curated kidney health education curriculum from the National Kidney Foundation web site

The Kidneys and Kidney Disease (pdf) from Kidney Health New Zealand
Kidney Disease and Kidney Failure from the National Institutes of Health (NIH) web site
Kidneys Health from the Kidney & Urology Foundation of America (KUFA) web site
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Kidney Health Tracker mobile app to empower kidney disease patient self-care from Arbor Research . The app is now available free of charge on both the Apple Store for use with iOS mobile devices and on Google Play for Android devices.

Kidney Patient Guide from the National Kidney Federation of the United Kingdom (UK)
Kidney School is an interactive, web-based learning program in 20-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment. Printed Life Options Kidney School Modules and Audio Books
KidneyTalk from the Renal Support Network web site
A Leadership Resource for Patient and Family Engagement Strategies - from the Hospitals in Pursuit of Excellence web site
Live & Give Newsletter - latest bi-annual update helping educate and motivate people living with chronic kidney disease from Renal Support Network
Living with kidney disease DVD clips on NHS Choices - DVD clips from Kidney Research UK web site

Mayo Clinic Minute: When Your Kidneys Fail video and article from the Mayo Clinic web site

blue ball Mayo Clinic Q and A: Understanding chronic kidney disease from the Mayo Clinic web site
Medical Nutrition Therapy Services from Medicare.gov
Monitoring Your Dialysis Water Treatment System (pdf) from the Northwest Renal Network web site
blue ball National Diabetes Education Program provides easy access to resources to help you live well and meet your goals—whether you have diabetes or are at risk for the disease.
National Kidney Disease Education Program (NKDEP) and Acerca de la Enfermedad de los Riñones from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) web site
NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications.
PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference.
Planning to Return Home After Surgery - Free, Full-Text Article from the Journal of the American Medical Association - August 30, 2016
The Price of Access - a book about the nephrologists who created a system of delivering outpatient dialysis care

Pair Up Health Fact Sheets - September 2011
Diabetes and Your Kidneys
High Blood Pressure and Your Kidneys

Patient & Family Council information from the National Kidney Foundation (NKF)
Preventive Services Educational Resource Web Guide from the Centers for Medicare & Medicaid Services web site
Publications from the Kidney Foundation of Canada web site
Quackwatch - A Guide to Health Fraud, Quackery, and Intelligent Decisions.
Self Management UK is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives.
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Sharing Haemodialysis Care Website (UK) - The Shared Haemodialysis Care vision is for people who receive dialysis at centres to have the opportunity and information to participate in aspects of their treatment and thereby improve their experience and their outcomes.

blue ball Social Security Policies Related To Medicare: A Primer from the Home Dialysis Central web site
blue ball Starting Dialysis 4-minute YouTube video from the Ontario Renal Network
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30-minute YouTube Video: Dialysis A Historical Perspective - Produced by Travenol in 1982 and narrated by George Schreiner.

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TravelDialysisReview web site

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Understanding Kidney Disease (Four free book chapters) - resource from ISN Education- January 2016

Understanding Your Kidneys - 8-page (pdf) issue of Kidney Health. - August 2010
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Video: A Home Hemodialysis Treatment Step-by-Step - 43-minute YouTube video by Tami Ramsey, a nurse who does home hemodialysis herself.

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What I Have Learned And How It Can Help - book by dialysis patient Elliott B. Brown

What is a Preemptive Kidney Transplant? - KidneyTalk podcast from Renal Support Network

What is Chronic Kidney Disease? from the Nephron Information Center web site
Working with Your Healthcare Team - from the Kidney School web site
Your Comprehensive Guide to Kidney Disease and Related Conditions (A to Z Guide) from the National Kidney Foundation (NKF) web site
Your Kidneys and How They Work from NIDDK web site
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  HEMODIALYSIS INFORMATION
Latest Scientific Journal Articles on Hemodialysis Adequacy
Fact Sheets from ANNA: Hemodialysis and Pediatric ESRD: Hemodialysis (pdf format requires Adobe Acrobat reader)
Just the Facts: Getting Enough Hemodialysis and Información esencial: Tener una hemodiálisis adecuada (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Hemodialysis Dose and Adequacy from the NKUDIC web site
blue ball Hemodialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.

A Patient Guide to Machine Alarms - from the Northwest Renal Network.

Find a home dialysis center in your area from the Home Dialysis Central web site
Daily, Home & Nocturnal Hemodialysis Topic Page from RenalWEB Continually Updated!
Adequate Hemodialysis Therapy Topic Page from RenalWEB Continually Updated!
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  PERITONEAL DIALYSIS INFORMATION
Latest Scientific Journal Articles on Peritoneal Dialysis Adequacy
Adequate Peritoneal Dialysis Therapy Topic Page from RenalWEB Continually Updated!
Fact Sheets from ANNA: Peritoneal Dialysis and Pediatric ESRD: Peritoneal Dialysis (pdf format requires Adobe Acrobat reader)
Hernias and peritoneal dialysis: What you need to know - from the Home Dialysis Central web site
How you look on PD: Coping with body image changes - from the Home Dialysis Central web site
International Society for Peritoneal Dialysis Training Plans (pdf), and Peritoneal Dialysis Training Video
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"Let's Talk about Peritoneal Dialysis" - from the Renal Fellow Network web site

  1. The Peritoneal Equilibration Test (PET)
  2. When There’s No Flow…
  3. Drain Pain…Ouch
  4. Not Drain Pain…But Infusion Pain
  5. Why Won’t My Patient Ultrafiltrate?
blue ball Peritoneal Dialysis - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
Peritoneal Dialysis (PD) Catheter Placement: What to Expect - from Home Dialysis Central web site
Peritoneal Dialysis Dose and Adequacy from the NKUDIC web site
Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site
Saying yes to PD: separating myth from fact - page down to view article from Home Dialysis Central web site
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  VASCULAR ACCESS INFORMATION
Latest Scientific Journal Articles on Vascular Access
Fistula First web page from the ESRD Network Coordinating Center web site
Dialysis Access from the VascularWeb web site

Patient Pocket Guide: 6 Tips to Prevent Dialysis Infections - Download file from the Centers for Disease Control and Prevention. - October 2013

Let's Talk About Fistulas - 13 minute video - short educational film for the ESRD Network of New England

Video: Dialysis Patients Speak: a Conversation about the Importance of AV Fistulas - 12-minute video on YouTube produced in 2005 for the ESRD Network of New England. - December 13, 2012

Frequently Asked Questions about the ArterioVenous Fistula from the Northwest Renal Network web site

Helping the Patient Make Healthy Fistula Choices - educational Web-EX Series from The Renal Network.

Understanding Your Hemodialysis Access Options from the American Association of Kidney Patients (AAKP) web site
Just the Facts: Vascular Access and Información esencial: Acceso vascular (pdf format requires Adobe Acrobat Reader) from the Life Options web site
Lifeline for a Lifetime – Your Vascular Access from the ESRD Network Coordinating Center (NCC) web site

Protect Your Access – It's Your Lifeline! from the Northwest Renal Network web site

Caring For & Developing Your New Fistula from the Northwest Renal Network web site
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Save Your Vein - 2-minute video from Kidney Care UK.

Vascular Access for Hemodialysis from the NKUDIC web site
Videos in Clinical Medicine: Placement of an Arterial Line from The New England Journal of Medicine (NEJM)
How Do I Look?: Taking the fear out of AV Fistula Placement - (pdf) from The Renal Network web site
3 Ps for Vascular Access Success - (pdf) Handbook from The Renal Network, Inc. - November 2010
Keeping Your Access Uncovered from the Northwest Renal Network
Blood Pump Speed and Your Dialysis Fistula - Article from Home Dialysis Central. - March 2010.

Self-Cannulation - Video via Renal Fellow Network web site

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Want To Learn about Hemodialysis Access? Here's "Hemodialysis Access 101"! - Posting from the Renal Fellow Network blog. - August 28, 2018

RenalWEB's Vascular Access Internet Resources Page Continually Updated!
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  TRANSPLANT & BIOTECHNOLOGY
Latest Scientific Journal Articles on Kidney Transplantation
2013 OPTN/SRTR Annual Report from the Scientific Registry of Transplant Recipients web site
Fact Sheets from ANNA: Transplantation and Pediatric ESRD: Trensplantation (pdf format requires Adobe Acrobat reader)
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Brochure Addresses Patients' Questions about Transplant Candidate Kidney Evaluation and Listing - PDF Resource from the United Network for Organ Sharing.

Financial Assistance for Living Donors web site
How the Transplant Waiting List Works - Article from KidneyTimes
blue ball Hundreds of Interlaced Fingers: A Kidney Doctor's Search for the Perfect Match - A young, hopeful doctor's memoir (book) --an unforgettable love story and an informative journey into the world of medicine and kidney transplantation that ultimately asks: What does it mean to let go of something that you love, even if it is life itself?

Kidney Transplantation - Podcasts from The Renal Support Network

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Kidney Transplantation: The Patient’s Guide - KidneyTalk podcast from Renal Support Network. - August 15, 2018

Living Kidney Donor Search Tools and Tips web site
National Patient Waiting List from the United Network for Organ Sharing (UNOS) web site

Organ Donation Toolbox - from the Organ Donation and Transplantation Alliance web site

blue ball Renal Transplantation - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
TransWeb (All about transplantation and donation)
US Government web site on organ donation
Treatment Methods for Kidney Failure: Transplantation from the National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) web site
blue ball Transplant Living from the United Network for Organ Sharing (UNOS) web site
Kidney Transplantation Topic Page from RenalWEB Continually Updated!
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  DIET
Latest Scientific Journal Articles on Nutrition
Chronic Kidney Disease: Nutrition Basics - Free, Full-text Article from Journal of Renal Nutrition - July 2011
Cookbooks for CKD Patients—2009 Update
DaVita Diet Helper from the DaVita web site

Delicious! - AAKP recipe cookbook

Diet Information from the Kidney Patient's Guide (UK site) web site
Eat Right To Feel Right On Hemodialysis from the NKUDIC web site
blue ball Fluid and Electrolytes - this is a growing library of key high-impact articles in nephrology, chosen by UKidney's contributors as suggested reading for nephrology trainees and practitioners.
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Food Safety for Transplant Recipients - from the U.S. Food and Drug Administration

Home-Delivered Meal Options for Chronic Kidney Disease Patients full-text article from Journal of Renal Nutrition - September 2012

Kidney Community Kitchen from the Kidney Foundation of Canada Helps Dialysis Patients with Complex Burden of Diet Planning

Kidney-Friendly Frozen Meal Tips and Suggestions “In A Pinch” full-text article from Journal of Renal Nutrition - September 2012
blue ball Kidney-Friendly Protein Choices from Journal of Renal Nutrition - Novembr 2017
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Kidney Smart Food Shopping - YouTube video (1 of 3) from Dialysis Clinics Inc.

Mom's Meals - home meal delivery for many with stage 5 kidney disease

Notes From the CKD Kitchen: A Variety of Salt-Free Seasonings article from the Journal of Renal Nutrition
Nutrition Counter from the American Association of Kidney Patients (AAKP) web site
Nutrition and Fluids for People on Dialysis from the Kidney School web site
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Patient-Friendly Renal Nutrition Guide from the Alport Syndrome Foundation - (9-page pdf) Alport Syndrome Foundation web site.

Rediscovering Food & Flavours - The KidneyCare Cookbook by Lawrence Keogh (chef and transplant patient)
RenalWEB's Well Nourished Patient - Internet Resources Continually Updated!
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Short How-To Recipe Videos Launch for Kidney Disease and Dialysis Patients - from DaVita Kidney Care

Smoothie Recipe Book for Renal and Heart Health by Victoria L Hulett JD (Author), Jennifer L Waybright RN (Contributor)

Spice it up! - Renal recipe web site from Canada. Spice it up! booklets are available in English and French, but they are not for sale. They are distributed by renal dietitians to dialysis patients (free of charge).

Truly Tasty - Renal cookbook from Ireland
Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site
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  K/DOQI™ -  Kidney Disease Outcomes Quality Initiative ( pronounced "kay DOE key" )

K/ DOQI Main Page on the National Kidney Foundation web site

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  PUBMED SEARCHES (National Library of Medicine's MEDLINE Database)
PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed.
hemodialysis Continually Updated!
adequacy AND hemodialysis Continually Updated!
peritoneal dialysis Continually Updated!
vascular access AND dialysis Continually Updated!
exercise and dialysis Continually Updated!
renal transplantation AND dialysis Continually Updated!
MEDLINE / Pubmed Information from the National Library of Medicine
Also consider using Yahoo to locate web sites and web pages on any topic of your choice.


  DISCUSSION FORUMS
Care-Partners for Home Dialysis discussion page
Dialysis Nursing Discussion Forum on RenalWEB
HealCam - from MedGadget.
I Hate Dialysis discussion page
Living Donors Online Message Board discussion page
Nephkids - a cyber-support group for Parents of Children with Kidney Disease
Patient Centered Care Discussion Forum on RenalWEB (moderated by Michael Williams, a patient)
Renal Rehabilitation Discussion Forum on RenalWEB (moderated by Beth Witten)
Vascular Access Discussion Forum on RenalWEB
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  ORGANIZATIONS AND GOVERNMENT AGENCIES
Alliance for Home Dialysis web site

American Association of Kidney Patients (AAKP) web site

American Diabetes Association (ADA) web site

American Kidney Fund (AKF) web site

B.Braun Avitum web site

BestHealth web site

Caregiver Action Network (CAN) web site

CaregiverStress web site
Coalition for Supportive Care of Kidney Patients web site
blue ball   DaVita Health Solutions web site
DaVita Patient Citizens from the DaVita web site
Dialysis/Transplant Patient web sites
The Disabled Living Foundation web site
The Dialysis Outcomes and Practice Patterns Study (DOPPS) web site
European Kidney Patients' Federation web site (UK version)

Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks

blue ball HealthUnlocked web site - Ask questions. Get answers. Connect with others like you.
HealthWell Foundation® web site - the Foundation provides financial assistance to eligible patients to cover certain out-of-pocket health care costs
Home Dialysis Central web site
Home Dialyzors United web site
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infoKID Web Site (UK) - Providing information for parents and carers about kidney conditions in babies, children and young people.

Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid

Kidney & Urology Foundation of America (KUFA) web site
Kidney Community Emergency Response web site

The Kidney Foundation of Canada web site

KidneysDoThat.org web site
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KIDNEYNATION, a Community United to Fund the Fight Against Kidney Disease

Kidney Smart web site from DaVita

Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential"

Living Kidney Donor Network web site
Living Kidney Donor Search web site

Lupus Foundation of America web site

MedWish web site for donating medical supplies
National Center for Complementary and Alternative Medicine (CAM) web site
National Foundation for Transplants web site

National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site

National Institute of Health (NIH) web site
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National Institute on Aging (NIH) web site
 

National Institute on Aging Health and Wellbeing web site

National Kidney Federation (UK site) web site

National Kidney Foundation (US site) web site

National Kidney Registry web site

National Kidney and Urologic Diseases Information Clearinghouse web site

National Patient Safety Agency web site (UK organization)
Patient Access Network Foundation web site - medication assistance

Patient Advocate Foundation (PAF) web site

Polycystic Kidney Research Foundation web site

Renal Support Network (RSN) web site

Restless Legs Syndrome Foundation web site

Transplant Living web site

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  PRODUCTS
Dialysis Arm Bands — Protect your access from GEM ideas LLC
Emergency Medical Emblems from Medic Alert
Emergency Medical Bracelets from The ID Band Company
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  STATISTICS
Renal Data Extraction and Referencing (RenDER) System - online data querying application accessible through the United States Renal Data System (USRDS)
Kidney and Urologic Diseases Statistics for the United States from the National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) web site
US Government Goals: Chronic Kidney Disease Chapter from the Healthy People 2020 Objectives
statehealthfacts.org - your source for state health data
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  UPCOMING EVENTS
National Kidney Foundation (NKF) Health Screening Schedule
Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261
Renal Support Network (RSN) Renal Events Calendar
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  YOUR WORDS
Fifteen dialysis cartoons by Lori James-Hartwell
Your Words feature on RenalWEB
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  RELATED WEB PAGES & TOPICS
A Full and Comfortable Life Topic Page from RenalWEB Continually Updated!
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  INPUT / SUGGESTIONS
E-mail to RenalWEB on the Patient Education Resources Page
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