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Warning: Changes should never be made in a patient's treatment or care based solely on the information found here. All patients have unique healthcare concerns and considerations and these must all be taken into account before any changes can be safely made. All medical and therapeutic decisions must come from a qualified health care provider. Read RenalWEB's Legal Disclaimer before proceeding.
| NEWS |
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| Camp Sunshine Celebrates 25th Anniversary - Article from PRNewswire. - June 10, 2009 | |
| Natalie Cole To Resume Singing Tour After Kidney Transplant - Article from Reuters. - June 9, 2009 | |
| American Kidney Fund Receives 7th Consecutive 4-Star Rating from Charity Navigator - Article from PRWeb. - June 9, 2009 | |
| National Kidney Foundation of Hawaii Launches On-Line Auction - Article from the Honolulu Advertiser. - June 9, 2009 | |
| Cyclist's message: Dialysis doesn't restrict activity - Article from the Abilene Reporter News. - June 6, 2009 | |
| Prevalence of Major Depressive Episode in CKD - Article in Press abstract from the American Journal of Kidney Diseases. - June 4, 2009 | |
| Dialysis in the Elderly - Blog entry from Renal Fellow Network. - June 2, 2009 | |
| Elderly Patients and Elderly Donors - Viewpoint from Medscape Nephrology. - May 28, 2009 | |
| Expert Says Avoiding End-of-Life Care Discussions May Give Patients "Misguided Sense of Hope" - Article from The New York Times. - May 28, 2009 | |
| Couple May Divorce To Qualify For Dialysis Health Benefits - Article from WCCO TV (Minnesota). - May 28, 2009 | |
| Circadian Sleep–Wake Rhythm Disturbances in End-Stage Renal Disease - Free, full-text review from Nature Reviews Nephrology. - May 26, 2009 | |
| Planning
a Social Activity to Improve Psychological Well-being and Quality of Life
of Hemodialysis Patients: A Pilot Study - Early View abstract from Therapeutic
Apheresis and Dialysis. -
May 26, 2009 "This pilot study showed that social activity primarily improved depression and self-esteem in hemodialysis patients."- |
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| AAKP Mourns the Passing of Former President Joseph D. White - Article from the American Association of Kidney Patients (AAKP). - May 26, 2009 | |
| Intervention Helps Reduce Pain and Depression - News release and free, abstract from the Journal of the American Medical Association. - May 26, 2009 | |
| American Kidney Fund's New Podcast "Strength in Caring" Offers Care Providers an Overview of Compassion Fatigue - Article from dMediaWire. - May 26, 2009 | |
| Sleeping Through Dialysis: No Nightmare for Kidney Patients - News release and CJASN ePress abstract from the American Society of Nephrology. Article from HealthDay. - May 21, 2009 | |
| Community Dialysis Patient Support Group in St. Petersburg - Article from The Weekly Challenger. - May 21, 2009 | |
| Natalie Cole Recovering After Kidney Transplant - Article from WebMD. - May 21, 2009 | |
| Cognitive–Behavioral Group Therapy Is an Effective Treatment for Major Depression in Hemodialysis Patients - Abstract of Advance Online article from Kidney International. - May 20, 2009 | |
| Last Call for Nominations to the AAKP Board of Directors - Article from the American Association of Kidney Patients (AAKP). - May 19, 2009 | |
| Nephrologist Uses Photos To Take ill Patients' Minds to Other Places - Article from The Oregonian. - May 19, 2009 | |
| Hospital Room Design Can Have Effect on Patient Care, Outcomes, Studies Show - News summary from Kaiser Network. - May 19, 2009 | |
| American Kidney Fund Welcomes David Frazer as Vice President of Patient Services and Kidney Disease Education - Article from PRWeb. - May 19, 2009 | |
| 2010 Freedom Cruise Information - 7-day cruise for Jan. 3-10, 2010 planned by dialysis patients. - May 2009 | |
| Kidney-Themed 30 Rock Episode - Article from Renal Fellow Network. - May 16, 2009 | |
| DAILY COMFORTS |
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| Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site | |
| Sleep Apnea and Dialysis Patients news summary from RenalWEB - last updated on April 26, 2004 | |
| Sleep and Sleep Disorders from the Centers for Disease Control and Prevention (CDC) web site (page down if you don't see the article) | |
| Obstructive sleep apnoea clinical signs, diagnosis and treatment full-text editorial commentary from Nephrology Dialysis Transplantation | |
| Restless Legs Syndrome - news summary from RenalWEB - last updated on December 30, 2004 | |
| Q&A on Restless Legs Syndrome from the BBC Health web site | |
| Just the Facts: Restless Legs Syndrome and Información esencial: Síndrome de piernas inquietas (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| Getting on your nerves: neuropathy and dialysis - article from Home Dialysis Central web site | |
| Just the Facts: Skin and Hair Problems on Dialysis and Información esencial:Problemas del cabello y de la piel por la diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| Skin Problems in Chronic Kidney Disease - free, full-text , advance online review from Nature Clinical Practice Nephrology - February 2009 | |
| Uremic pruritus in chronic hemodialysis patients - review (pdf format requires Adobe Acrobat Reader) from the Journal of Nephrology - March/April 2008 | |
| End-of-Life Care news summary from RenalWEB - last updated on December 29, 2004 | |
| comfort AND dialysis - PubMed search Continually Updated! | |
| restless leg syndrome - PubMed search Continually Updated! | |
| constipation and dialysis - PubMed search Continually Updated! | |
| exercise and dialysis - PubMed search Continually Updated! | |
| thirst AND dialysis - PubMed search Continually Updated! | |
| itching AND dialysis - PubMed search Continually Updated! | |
| VACATIONS & TRAVELING |
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| Just the Facts: Traveling on Dialysis and Información esencial: Viajes con diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| AKF 2006 Camp List for Pediatric ESRD Patients (pdf) from the American Kidney Fund (AKF) | |
| What do I Need to do Before Traveling as a Dialysis Patient? - from the AAKP web site | |
| Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site | |
| Island Dialysis - Jamaica, St. Lucia and Barbados | |
| Dialysis at Sea Cruises - cruises for hemodialysis, CAPD, CCPD, and transplant patients | |
| Dialysis Travel Websites - dialysisfinder.com and Nephron Information Center | |
| Also consider using Yahoo to locate web sites on dialysis travel services. | |
| EMOTIONAL EFFECTS AND DEPRESSION |
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| Just the Facts: Dealing with Depression and Información esencial: Cómo enfrentar la depresión (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| New Book: Dialysis without Fear from the Oxford University Press - Dr. Offer brings his years as a psychiatrist to bear as he provides practical advice on how patients can overcome fears and hardship | |
| Depression on Dialysis full-text minireview from Nephron Clinical Practice | |
| Understanding Depression in Kidney Disease from the American Association of Kidney Patients (AAKP) | |
| When Your Loved One is Depressed from the American Association of Kidney Patients (AAKP) | |
| Depression and Dialysis Patients news summary from RenalWEB - last updated on September 14, 2004 | |
| Depression and its association with peritonitis in long-term peritoneal dialysis patients - abstract from the American Journal of Kidney Diseases (AJKD) - August 2003 | |
| Exercise Lowers Depression, Increases Stamina news summary from RenalWEB - last updated on October 5, 2004 | |
| The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site | |
| Depression AND dialysis - PubMed search Continually Updated! | |
| INSPIRATIONAL RESOURCES |
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| Chronically Happy is an inspirational book, by Lori Hartwell, that helps people living with chronic illness create joyful, fulfilling lives. | |
| Religion and Medicine news summary from RenalWEB - last updated on February 10, 2004 | |
| Strength and Compassion in Kidney Failure, a book by Mildred Friedman | |
| Tips & Stories from the Life Options Rehabilitation Program web site | |
| Caregivers, Partners, Family and Friends from the Kidney Patient's Guide (UK site) web site | |
| Dialysis without Fear: A Guide to Living Well on Dialysis for Patients and Their Families - book about dialysis from the patient's perspective | |
| THAT DAMN DIALYSIS - book about dialysis from the patient's perspective | |
| SEX & PREGNANCY |
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| Pregnancy After Transplant from the Transplant Living web site | |
| Sexuality and Chronic Kidney Disease from the National Kidney Foundation (NKF) | |
| sexual function AND dialysis - PubMed search Continually Updated! | |
| childbirth AND dialysis - PubMed search Continually Updated! | |
| Narrative Literature Review: Sexual Dysfunction in the Patient on Hemodialysis - (pdf format requires Adobe Acrobat reader) article from the Nephrology Nursing Journal | |
| Pregnancy: Kidney Diseases and Hypertension - free, full-text core curriculum outline from American Journal of Kidney Diseases (AJKD) - February 2007 | |
| Efficacy of Oral Sildenafil in Hemodialysis Patients with Erectile Dysfunction - abstract from the the Journal of the American Society of Nephrology (JASN) - November 2002 | |
| Requiring Higher Doses of Erythropoietin Suggests Pregnancy in Hemodialysis Patients - abstract from The Nephron Journals - 1998 | |
| WEB RESOURCES |
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| Latest Scientific Journal Articles on Quality of Life - list compiled by RenalWEB's Journal Watch | |
| AAKP Diet Tips and Bits from the American Association of Kidney Patients (AAKP) web site | |
| The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site | |
| BenefitsCheckUpRx - this fast, free, and confidential service will help you or someone you love find public and private programs to save the most money on prescription drugs - from the Access to Benefits Coalition web site | |
| Kidney Beginnings (pdf format requires Adobe Acrobat reader) - from the American Association of Kidney Patients (AAKP) web site | |
| Kidney Beginnings: The Magazine - from the American Association of Kidney Patients (AAKP) web site | |
| aakpRENALIFE - from the American Association of Kidney Patients (AAKP) web site | |
| The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site | |
| CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site | |
| DaVita Patient Citizens from the DaVita web site | |
| Employment: A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat reader) from the Life Options web site | |
| Empowering Caregivers - Choices, Healing, Love, For All Articles, emotional & spiritual support, tools for caregivers | |
| Just the Facts: How to Talk to Your Healthcare Team and Información esencial:Cómo hablar con su equipo de atención médica (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| Keeping Fit On Dialysis from the UK National Kidney Foundation web site | |
| Keeping Your Job When You Need Dialysis from the Home Dialysis Central web site | |
| Kidney Health Podcast Series from the American Kidney Fund (AKF) web site | |
| Kidney Patient HealthLine - free, one-hour conference call designed to educate kidney patients on a variety of topics affecting them and their families, from the American Association of Kidney Patients | |
| KidneyTalk from the Renal Support Network web site | |
| Life Options Teaching Tools from Life Options | |
| Living Day-to-day with Kidney Dialysis+ from the FDA Consumer magazine web site+ | |
| Managing your Life with Kidney Failure from the National Kidney Foundation web site | |
| The National Kidney Foundation’s, People Like Us is offering a series of monthly educational telephone forums entitled Coffee House Conversations™ telephone series. | |
| PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference. | |
| Quackwatch - A Guide to Health Fraud, Quackery, and Intelligent Decisions. | |
| Quality of Life: Subjective Descriptions of Challenges to Patients With End Stage Renal Disease from the Nephrology Nursing Journal | |
| Just the Facts: Rehabilitation and Información esencial: Rehabilitación (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| renalinfo web site from Baxter International Inc. | |
| Spanish Resource Guide - list of resources in Spanish from the American Nephrology Nurses Association (ANNA) - September 2006 | |
| Staying Fit With Kidney Disease from the National Kidney Foundation (NKF) | |
| PATIENT WEB SITES |
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| Communications from the Heart web site by Lori Hartwell |
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| Barbara's Kidney Web Site | |
| ORGANIZATIONAL & EDUCATIONAL WEB SITES |
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| American Association of Kidney Patients (AAKP) web site |
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| American Diabetic Association (ADA) web site |
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| American Kidney Fund (AKF) web site |
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| Association of Dialysis Advocates web sites | |
| Dialysis/Transplant Patient web sites | |
| The Disabled Living Foundation web site | |
| European Kidney Patients' Federation web site (UK version) | |
| Everyday Choices for A Healthier LIFE web site | |
| Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks |
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| Home Dialysis Central web site | |
| Hope Street web site from the National Kidney Foundation |
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| InteliHealth is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare) | |
| Kidney & Urology Foundation of America (KUFA) web site | |
| Kidney End-Of-Life Coalition web site | |
| Kidney Patient News web site | |
| Kidney School web site and Printed Life Options Kidney School Modules | |
| Kidney Times web site from the Renal Support Network (RSN) | |
| Module Twelve: Staying active with kidney disease from the Life Options Rehabilitation Program: Kidney School™ | |
| Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential" |
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| Lupus Foundation of America web site |
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| National Family Caregivers Association (NFCA) web site |
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| National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site |
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| National Kidney Foundation (US site) web site |
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| National Kidney Federation (UK site) web site |
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| National Patient Safety Agency web site (UK organization) | |
| Polycystic Kidney Research Foundation web site |
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| Renal Health web site |
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| Restless Legs Syndrome Foundation web site (opens new browser window) |
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| S.L.E. Lupus Foundation web site - helping people with lupus for over 35 years | |
| Small Comforts Foundation is a not-for-profit organization dedicated to funding and administering programs which will improve the quality of life and raise the morale of people living with chronic illness or other medical problems. | |
| PUBMED SEARCHES (National Library of Medicine's MEDLINE Database) |
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| PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed. | |
| quality of life AND life style AND dialysis - PubMed search Continually Updated! | |
| well-being AND dialysis - PubMed search Continually Updated! | |
| coping AND dialysis - PubMed search Continually Updated! | |
| DISCUSSION FORUM |
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| Patient-Centered Dialysis Care Discussion Forum on RenalWEB | |
| Renal Rehabilitation Discussion Forum on RenalWEB | |
| Dialysis Nursing Discussion Forum on RenalWEB | |
| Ask Beth (Beth Witten, MSW, ACSW, LSCSW) from the Life Options web site | |
| DIALYSIS_SUPPORT - from Yahoo Groups - end-stage renal disease (ESRD) support and educational forum | |
| Nephkids - a cyber-support group for Parents of Children with Kidney Disease | |
| United States Renal Data System (USRDS) Discussion Forum | |
| PRODUCTS |
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| Communication Prescription: A video education program for the renal care professional RN (Price $399 plus shipping and handling) from the Hartwell Communications | |
| Poignant Moments...A Caregiver's Perspective - New book written by John Francis Wissler, caregiver to his spouse Lois, an ESRD patient. | |
| The Lighter Side of Dialysis - book of comic illustrations by a dialysis patient | |
| Equipment for the disabled web sites from Yahoo.com | |
| Smart Technology for Aging, Disability and Independence: The State of the Science - 379 page book by William C. Mann (hardcover $84.95) | |
| Guided Imagery Tape for Dialysis Patients (Beware of claims that are not supported by medical evidence.) | |
| UPCOMING EVENTS |
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| National Kidney Foundation (NKF) Health Screening Schedule | |
| Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261 | |
| Renal Support Network (RSN) Renal Events Calendar | |
| Renal Support Network Patient Lifestyle Meetings 2009-2010 Schedule | |
| Kidney Beginnings: Live Schedule presented by the American Association of Kidney Patients (AAKP) - AAKP web site, (800) 749-2257, fax (813) 5639-8122, e-mail | |
| September 3-5, 2009 - 2009 American Association of Kidney Patients (AAKP) Annual Convention: Going the Extra Mile, Hyatt Regency Denver, Denver, CO - convention page, AAKP web site, (800) 749-2257, fax (813) 636-8122, e-mail |
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| RELATED TOPICS |
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| RenalWEB's Patient Education Topic Page Continually Updated! | |
| RenalWEB's Well Nourished Patient Topic Page Continually Updated! | |
| RenalWEB's Adequate Hemodialysis Therapy Topic Page Continually Updated! | |
| RenalWEB's Adequate Peritoneal Dialysis Therapy Topic Page Continually Updated! | |
| RenalWEB's Kidney Transplantation Topic Page from RenalWEB Continually Updated! | |
| INPUT / SUGGESTIONS |
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| E-mail to RenalWEB on Comfort & Living A Full Life | |
