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Warning: Changes should never be made in a patient's treatment or care based solely on the information found here. All patients have unique healthcare concerns and considerations and these must all be taken into account before any changes can be safely made. All medical and therapeutic decisions must come from a qualified health care provider. Read RenalWEB's Legal Disclaimer before proceeding.
| NEWS |
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Fresenius
Medical Care Salutes Patients Who Prioritize Fitness and Health -
Press release. - January 19, 2012 |
|
The
Correlation of Antidepressive Agents and the Mortality of End-Stage Renal
Disease: a Health Insurance Research Database Study in Taiwan - Accepted
Article abstract from Nephrology. - January 19, 2012 |
|
Enhancing
Cognition in Older Adults Also Changes Personality - January 18, 2012 |
|
"Southern
Food" Chef Paula Deen Hid Diabetes, Pushed High-Fat Food - Article
from AP. - January 17, 2012 |
|
New
Jersey Parents Say Mentally Disabled Girl, Three, Denied Kidney Transplant;
Experts Say Situation Is Complex - Articles from The Washington Post
and AP.
Blog posting from BioEdge.
- January 17, 2012 |
|
Xerostomia
(dry mouth) in Patients on Chronic Hemodialysis - Advance Online abstract
from Nature Reviews Nephrology. - January 17, 2012 |
|
Jack
Black Skips Golden Globes and Reigns at 13th Annual Renal Teen Prom ?
- Article from Patch.com. Video
from KARE. - January 16, 2012 |
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'Team
Amelia' Backs Kidney Transplant for Special Needs Child - Article
from USA Today. - January 16, 2012 |
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A
Washington State Patient Writes about Dialysis: It's a Really Bad Part-Time
Job - January 16, 2012 |
|
Quality
of Life and Protein Energy Wasting in Kidney Transplant Recipients
- Online First Abstract from International Urology and Nephrology - January
14, 2012 |
|
Data:
Hospice Programs Grow in Popularity - Article from Hospitals &
Health Networks. - January 13, 2012 |
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Kidney Dysfunction and Cognitive Decline in Women - CJASN Express Abstract - January 2012 |
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Jack
Black To Attend Renal Teen Prom - January 12, 2012 |
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Depression
in Dialysis Patients and Its Association with Nutritional Markers and
Quality of Life - Articles in Press Abstract from Journal of Nephrology
- January 11, 2012 |
|
Combine
Diabetes, Depression Care for Best Results - Article from MedPage
Today. - January 10, 2012 |
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Los
Angeles Area Teens With Kidney Problems Getting A Dream Prom - Video
from CBS Los Angeles. - January 10, 2012 |
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Evening
Option for Dialysis Patients (in Malta) - Article from the Times of
Malta. - January 9, 2012 |
|
On
Our Own: Why We Who Struggle To Live With Diabetes Could Use A Helping
Hand - Full-text article from Health Affairs. - January 2012 |
|
NKF
of Singapore Launches First Major Public Fundraising Campaign in Six Years
- Article from Channel News Asia. - January 7, 2012 |
|
The
Story Behind Nick Cannon's 'Mild' Kidney Failure - January 5, 2012 |
|
Zinc
Sulfate for Relief of Pruritus in Patients on Maintenance Hemodialysis
- Early View Abstract from Therapeutic Apheresis and Dialysis - January
5, 2012 |
|
Ironman
Shad Ireland: An Iron Will - KidneyTalk podcast from Renal Support
Network. - January 4, 2012 |
|
Book
Review: Keep Dancing: Life May Not Be the Party We Hoped For, But... by
Rosie Giesie - Posting from the Seattle Post Intelligencer. - January
2, 2012 |
|
The Elderly React Slowly Because They Want To Be Right - December 31, 2011 |
|
Clinical
Performance Targets and Quality of Life in Hemodialysis Patients -
Issue-in-Progress abstract from Blood Purification. MUST
READ!! - December 30, 2011 |
|
Prevalence
and Correlates of Erectile Dysfunction in Men on Chronic Hemodialysis:
a Multinational Cross-Sectional Study - Advance Access Abstract from
NDT - December 29, 2011 |
|
Elderly
Who Eat Better Stay Mentally Sharp: Study - December 28, 2011 |
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Increased
Presence of Cognitive Impairment in Hemodialysis Patients in the Absence
of Neurological Events - Issue-in-Progress abstract from American
Journal of Nephrology. - December 28, 2011 |
|
Diet,
Nutrient Levels Linked to Cognitive Ability, Brain Shrinkage - Press
release from Oregon State University. Article from AFP.
- December 28, 2011 |
|
Racial
Disparities Seem to Persist in Depression Diagnosis - Article from
HealthDay. - December 27, 2011 |
|
Simi
Valley (CA) Women Featured in Kidney Series Dies - Article from Ventura
County Star. - December 24, 2011 |
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RENAL
CAREPARTNERS Expands Services in Georgia - December 23, 2011 |
|
Virginia
Dialysis Patient Evicted From Home Over Mom’s Drug Arrest -
Article from The Huffington Post. - December 22, 2011 |
|
Antidepressant, Talk Therapy Fail To Beat Placebo - December 21, 2011 |
|
Engaging Patients in Care Design - Video from Hospital & Health Networks. - December 21, 2011 |
|
Cognitive
Function and the Risk of Death in Chronic Kidney Disease - Issue-in-Progress
Abstract from American Journal of Nephrology - December 21, 2011 |
|
Systematic
Review of the Impact of Erythropoiesis-Stimulating Agents on Fatigue in
Dialysis Patients - Advance Access Abstract from NDT - December 20,
2011 |
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AAKP
HealthLine Program Conference Call Scheduled for Jan. 25th - December
19, 2011 |
|
Pharmacist
Fired After Giving Notice of Kidney Transplant Surgery - Article from
Job Mouse. - December 19, 2011 |
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Baxter
Responds to Patient Needs in Aftermath of Thailand Floods - December
15, 2011 |
|
Optimizing
Life With a Chronic Health Problem (Kidney Disease) - Press release
from Diabetes Health. - December 14, 2011 |
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Having the Palliative Care Talk - Article from Hospitals & Health Networks. - December 14, 2011 |
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Nocturnal Leg Cramps and Prescription Use That Precedes Them - Online First abstract from Archives of Internal Medicine. - December 12, 2011 |
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UK
Dialysis Patient Gives Birth to Healthy Baby Girl after Daily Dialysis
- Article from Liverpool Echo. - December 10, 2011 |
|
Depression,
Disability Can Follow ICU Care: Study - December 9, 2011 |
|
| Live & Give Newsletter: Current Issue - Renal Support Network. | |
| DAILY COMFORTS |
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| Why Am I So Thirsty? and Porqué Me Da Tanta Sed? (pdf format requires Adobe Acrobat reader) from the ESRD Network of Texas web site | |
| Sleep and Sleep Disorders from the Centers for Disease Control and Prevention (CDC) web site (page down if you don't see the article) | |
| Obstructive sleep apnoea clinical signs, diagnosis and treatment full-text editorial commentary from Nephrology Dialysis Transplantation | |
| Restless Legs Syndrome from the BBC Health web site | |
| Just the Facts: Restless Legs Syndrome and Información esencial: Síndrome de piernas inquietas (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| Just the Facts: Skin and Hair Problems on Dialysis and Información esencial:Problemas del cabello y de la piel por la diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| Skin Problems in Chronic Kidney Disease - free, full-text , advance online review from Nature Clinical Practice Nephrology - February 2009 | |
| Uremic pruritus in chronic hemodialysis patients - review (pdf format requires Adobe Acrobat Reader) from the Journal of Nephrology - March/April 2008 | |
| comfort AND dialysis - PubMed search Continually Updated! | |
| restless leg syndrome - PubMed search Continually Updated! | |
| constipation and dialysis - PubMed search Continually Updated! | |
| exercise and dialysis - PubMed search Continually Updated! | |
| thirst AND dialysis - PubMed search Continually Updated! | |
| itching AND dialysis - PubMed search Continually Updated! | |
| VACATIONS & TRAVELING |
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| Just the Facts: Traveling on Dialysis and Información esencial: Viajes con diálisis (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| AKF 2006 Camp List for Pediatric ESRD Patients (pdf) from the American Kidney Fund (AKF) | |
| What do I Need to do Before Traveling as a Dialysis Patient? - from the AAKP web site | |
| Peritoneal Dialysis Travel “Tool Box” (pdf format requires Adobe Acrobat reader) from the ANNA web site | |
| Island Dialysis - Jamaica, St. Lucia and Barbados | |
| Dialysis at Sea Cruises - cruises for hemodialysis, CAPD, CCPD, and transplant patients | |
| Dialysis Travel Websites - dialysisfinder.com and Nephron Information Center | |
| EMOTIONAL EFFECTS AND DEPRESSION |
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| Just the Facts: Dealing with Depression and Información esencial: Cómo enfrentar la depresión (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| New Book: Dialysis without Fear from the Oxford University Press - Dr. Offer brings his years as a psychiatrist to bear as he provides practical advice on how patients can overcome fears and hardship | |
| Depression on Dialysis full-text minireview from Nephron Clinical Practice | |
| Understanding Depression in Kidney Disease from the American Association of Kidney Patients (AAKP) | |
| When Your Loved One is Depressed from the American Association of Kidney Patients (AAKP) | |
| Depression in End-Stage Renal Disease: Current Advances and Research abstract from Seminars in Dialysis. - January/February 2010 | |
| Depression and its association with peritonitis in long-term peritoneal dialysis patients - abstract from the American Journal of Kidney Diseases (AJKD) - August 2003 | |
| The Emotional Effects of Kidney Failure from the Kidney Patient's Guide (UK site) web site | |
| Depression AND dialysis - PubMed search Continually Updated! | |
| INSPIRATIONAL RESOURCES |
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| Chronically Happy is an inspirational book, by Lori Hartwell, that helps people living with chronic illness create joyful, fulfilling lives. | |
| Strength and Compassion in Kidney Failure, a book by Mildred Friedman | |
| Tips & Stories from the Life Options Rehabilitation Program web site | |
| Caregivers, Partners, Family and Friends from the Kidney Patient's Guide (UK site) web site | |
| Dialysis without Fear: A Guide to Living Well on Dialysis for Patients and Their Families - book about dialysis from the patient's perspective | |
| THAT DAMN DIALYSIS - book about dialysis from the patient's perspective | |
| SEX & PREGNANCY |
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| Pregnancy After Transplant from the Transplant Living web site | |
| Sexuality and Chronic Kidney Disease from the National Kidney Foundation (NKF) | |
| sexual function AND dialysis - PubMed search Continually Updated! | |
| childbirth AND dialysis - PubMed search Continually Updated! | |
| Efficacy of Oral Sildenafil in Hemodialysis Patients with Erectile Dysfunction - abstract from the the Journal of the American Society of Nephrology (JASN) - November 2002 | |
| Requiring Higher Doses of Erythropoietin Suggests Pregnancy in Hemodialysis Patients - abstract from The Nephron Journals - 1998 | |
| WEB RESOURCES |
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| Latest Scientific Journal Articles on Quality of Life - list compiled by RenalWEB's Journal Watch | |
| AAKP Diet Tips and Bits from the American Association of Kidney Patients (AAKP) web site | |
| The Fund's Help Line - A Community Service Lifeline from the American Kidney Fund web site | |
| BenefitsCheckUpRx - this fast, free, and confidential service will help you or someone you love find public and private programs to save the most money on prescription drugs - from the Access to Benefits Coalition web site | |
| Kidney Beginnings (pdf format requires Adobe Acrobat reader) - from the American Association of Kidney Patients (AAKP) web site | |
| Kidney Beginnings: The Magazine - from the American Association of Kidney Patients (AAKP) web site | |
| aakpRENALIFE - from the American Association of Kidney Patients (AAKP) web site | |
| Live & Give Newsletter - from of the Renal Support Network web site | |
| The Advance Health Care Directive Act (pdf format requires Adobe Acrobat Reader) from the Southern California Renal Disease Council web site | |
| CDC-TV online video resource from the Centers for Disease Control and Prevention (CDC) web site | |
| DaVita Patient Citizens from the DaVita web site | |
| Employment: A Kidney Patient's Guide to Working and Paying for Treatment (pdf format requires Adobe Acrobat reader) from the Life Options web site | |
|
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| Empowering Caregivers - Choices, Healing, Love, For All Articles, emotional & spiritual support, tools for caregivers | |
| End-of-Life Resources from the Kidney End-Of-Life Coalition | |
| Just the Facts: How to Talk to Your Healthcare Team and Información esencial:Cómo hablar con su equipo de atención médica (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| Keeping Fit On Dialysis from the UK National Kidney Foundation web site | |
| Kidney Health Podcast Series from the American Kidney Fund (AKF) web site | |
| Kidney Patient HealthLine - free, one-hour conference call designed to educate kidney patients on a variety of topics affecting them and their families, from the American Association of Kidney Patients | |
| KidneyTalk from the Renal Support Network web site | |
| Life Options Teaching Tools from Life Options | |
| Life on Dialysis: A Lived Experience - 7-page pdf from Nephrology Nursing Journal. - January/February 2010 | |
| Live & Give Newsletter: Current Issue - Renal Support Network. | |
| Managing your Life with Kidney Failure from the National Kidney Foundation web site | |
| The National Kidney Foundation’s, People Like Us is offering a series of monthly educational telephone forums entitled Coffee House Conversations™ telephone series. | |
| NeedyMeds Kidney Disease Resource Page from NeedyMeds. The resource page is intended to streamline and simplify the way those with kidney disease may find assistance paying for their medications. | |
| PatientsLikeMe is here to help. Our researchers, doctors, and patient caregivers are committed to helping collect and share information that makes a difference. | |
| Quackwatch - A Guide to Health Fraud, Quackery, and Intelligent Decisions. | |
| Just the Facts: Rehabilitation and Información esencial: Rehabilitación (pdf format requires Adobe Acrobat Reader) from the Life Options web site | |
| renalinfo web site from Baxter International Inc. | |
| Spanish Resource Guide - list of resources in Spanish from the American Nephrology Nurses Association (ANNA) - September 2006 | |
| Staying Fit With Kidney Disease from the National Kidney Foundation (NKF) | |
| Tips to Survive and Thrive on Dialysis - article from KidneyTimes™ | |
| PATIENT WEB SITES |
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| Health Platform for Kidney Disease web site by Shad Ireland Foundation |
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| Communications from the Heart web site by Lori Hartwell |
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| Barbara's Kidney Web Site | |
| ORGANIZATIONAL & EDUCATIONAL WEB SITES |
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| American Association of Kidney Patients (AAKP) web site |
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| American Diabetic Association (ADA) web site |
|
| American Kidney Fund (AKF) web site |
|
| Congressional Kidney Caucus web site | |
| Dialysis/Transplant Patient web sites | |
| The Disabled Living Foundation web site | |
| European Kidney Patients' Federation web site (UK version) | |
| Everyday Choices for A Healthier LIFE web site | |
| Forum of End Stage Renal Disease Networks with links to all 18 ESRD Networks |
|
| Home Dialysis Central web site | |
| Hope Street web site from the National Kidney Foundation |
|
| Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD) web site | |
Innovation Center a new website for a new approach to healthcare from the Center for Medicare and Medicaid |
|
| InteliHealth is the top-rated web site for general health information (subsidiary of Aetna U.S. Healthcare) | |
| Kidney & Urology Foundation of America (KUFA) web site | |
| Kidney End-Of-Life Coalition web site | |
| Kidney Patient News web site | |
| Kidney School web site and Printed Life Options Kidney School Modules | |
| KidneysDoThat.org web site | |
| KidneySpeak - Patient speakers' organization from Renal Support Network (RSN) web site | |
| Kidney Times web site from the Renal Support Network (RSN) web site | |
| Module Twelve: Staying active with kidney disease from the Life Options Rehabilitation Program: Kidney School™ | |
| Life Options Rehabilitation Program web site - "Dedicated to helping dialysis patients realize their fullest potential" |
|
| Lupus Foundation of America web site |
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| Mayo Clinic's Online Health Community web site |
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| National Family Caregivers Association (NFCA) web site |
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| National Institute of Diabetes & Digestive & Kidney Disease (NIDDK) web site |
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| National Kidney Foundation (US site) web site |
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| National Kidney Federation (UK site) web site |
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| National Patient Safety Agency web site (UK organization) | |
| Patient Advocate Foundation (PAF) web site |
|
| Polycystic Kidney Research Foundation web site |
|
| Renal Health web site |
|
| Restless Legs Syndrome Foundation web site (opens new browser window) |
|
| S.L.E. Lupus Foundation web site - helping people with lupus for over 35 years | |
| Small Comforts Foundation is a not-for-profit organization dedicated to funding and administering programs which will improve the quality of life and raise the morale of people living with chronic illness or other medical problems. | |
| PUBMED SEARCHES (National Library of Medicine's MEDLINE Database) |
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| PubMed Search Tool of the National Library Of Medicine's MEDLINE Database (allows you to search through over 11 million indexed articles). Due to copyright laws, only the abstracts (summaries) of the articles are usually listed. Some articles appear in full text on the publishers' web sites that are linked to PubMed. This page provides an Overview of PubMed. | |
| quality of life AND life style AND dialysis - PubMed search Continually Updated! | |
| well-being AND dialysis - PubMed search Continually Updated! | |
| coping AND dialysis - PubMed search Continually Updated! | |
| DISCUSSION FORUM |
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|
| Patient-Centered Dialysis Care Discussion Forum on RenalWEB | |
| Renal Rehabilitation Discussion Forum on RenalWEB | |
| Dialysis Nursing Discussion Forum on RenalWEB | |
| Ask Beth (Beth Witten, MSW, ACSW, LSCSW) from the Life Options web site | |
| DIALYSIS_SUPPORT - from Yahoo Groups - end-stage renal disease (ESRD) support and educational forum | |
| HealCam - from MedGadget. | |
| Nephkids - a cyber-support group for Parents of Children with Kidney Disease | |
| PRODUCTS |
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| Communication Prescription: A video education program for the renal care professional RN (Price $399 plus shipping and handling) from the Hartwell Communications | |
| Poignant Moments...A Caregiver's Perspective - New book written by John Francis Wissler, caregiver to his spouse Lois, an ESRD patient. | |
| The Lighter Side of Dialysis+ - book of comic illustrations by a dialysis patient | |
| Equipment for the disabled web sites from Yahoo.com | |
| Smart Technology for Aging, Disability and Independence: The State of the Science - 379 page book by William C. Mann (hardcover $84.95) | |
| Guided Imagery Tape for Dialysis Patients (Beware of claims that are not supported by medical evidence.) | |
| UPCOMING EVENTS |
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| August 9-11, 2012 - American Association of Kidney Patients (AAKP) 2012 Annual Patient Meeting: Kidney Care - Innovations in a Changing Enviroment, Grand Hyatt Atlanta, Atlanta, GA – meeting page, AAKP web site, (800) 749-2257, fax (813) 636-8122, e-mail | |
| National Kidney Foundation (NKF) Health Screening Schedule | |
| Kidney Walk Schedule - NKF web site, e-mail NKF (800) 622-9010, (212) 889-2210, Fax (212) 689-9261 | |
| Renal Support Network (RSN) Renal Events Calendar | |
| Renal Support Network Patient Lifestyle Meetings 2009-2010 Schedule | |
| Kidney Beginnings: Live Schedule presented by the American Association of Kidney Patients (AAKP) - AAKP web site, (800) 749-2257, fax (813) 5639-8122, e-mail | |
| RELATED TOPICS |
|
|
| RenalWEB's Patient Education Topic Page Continually Updated! | |
| RenalWEB's Well Nourished Patient Topic Page Continually Updated! | |
| RenalWEB's Adequate Hemodialysis Therapy Topic Page Continually Updated! | |
| RenalWEB's Adequate Peritoneal Dialysis Therapy Topic Page Continually Updated! | |
| RenalWEB's Kidney Transplantation Topic Page from RenalWEB Continually Updated! | |
| INPUT / SUGGESTIONS |
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| E-mail to RenalWEB on Comfort & Living A Full Life | |

Except where noted, no information within the RenalWEB web site can be copied, duplicated, or reproduced in any form without the express written consent of RenalWEB.
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